I started this thread 14 years ago. It didn’t get much traction so I stopped checking. Recently, I took a look and have been surprised at how many of you responded. It makes me feel less alone. My mother had the condition. When I was a young child, she lied to me and told me that all her teeth were capped. She then said when I was older, all my teeth would get capped, too. About a year before I was due to get caps, she admitted to me that she had dentures---not caps. She also said she didn’t want me to get caps because they didn’t work for her. The dentist lied and said that t ...
[retrieve this message]

---

HI, I am doing some research for a friend. Did this work for you? Any new information I can pass on. Her son-in-law has it and now one of her grandaughters has it.   [End]
[retrieve this message]

---

I have dentinogensis imperfecta. We can trace it back 4 generations. It is very dominant in my family. I’m currently going to a local university dental school and they do not want to extract my teeth either. I have lost 2 on top (they were crowned when I was 21, I have not 59). I have lost both ridges on the bottom. I want an upper denture but they don’t want to do it.   [End]
[retrieve this message]

---

Hi. I just read your post. I also have DI as do 2 of my 3 children. I am curious about the ICD-9 code and How it worked for you. I am located in Northern California and in need of some serious dental care. Any ideas? Have a great day. Thank you!   [End]
[retrieve this message]

---

I ’m a 37 year old female with DI. I can trace it back 5 generations. 2 of 3 of my children have it as well. I’ve has veneers on my front teeth now for 17 years with little problems until recently . Endodontist wants to do an Apicoectomy for an abscess on tooth #7. As much as I would love to save the tooth, I’m reluctant as It is expensive and ultimately it will need to be extracted. I already have 1 implant on #30. I would love to sign any petition to help people like us with this genetic condition. I don’t think we should have to suffer the pain of infected teeth and have to pay th ...
[retrieve this message]

---

I am at least the 5th generation with this disease. I elected to have my teeth pulled, but now I am facing sinus and bone augmentation to replace bone loss. The good news is I found a medical code that may cover the expenses through ICD-9 code 520.5 Hereditary disturbances in tooth structure, not elsewhere classified (this specifically lists dentinogenis imperfecta. If only someone had shared this with my 20 years ago, I could have saved so much money and aggravation. If insurance doesn’t cover costs, Dr. Zhang in Anaheim, CA is beyond affordable when it came to implants. I spent ...
[retrieve this message]

---

I stumbled across this discussion today. I am British and can trace the condition back to my grandmother. My 3 children also have inherited it ( how unlucky is that - 3 out of 3), but in varying severity. I had full dental clearance at 16, following 5 years of crowns ( they kept falling off - quel suprise) followed by a fixed bridge to the lower jaw (with 8 implants and a bone graft), when I was 34. I have relatively few problems. All my work has been carried out by consultants (maxillofacial and restorative), as a general dentist is deemed not to have the necessary skills in performi ...
[retrieve this message]

---

Thanks so much for sharing. I am at least a 5th generation victim of Dentinogeneis Imperfecta from WI. I refused to cap or veneer any of my teeth, because it just hasn’t worked for any of my relatives. I compare it to a flat tire. You can only fix the tire so many times before it just doesn’t work anymore. That is my personal philosophy on caps and veneers. Like everyone else, this has been horrible. I was fortunate to get upper dentures when I as 20, but now that I’m in my late 30’s the bone is deteriorating, and I need implants. I’m also trying to deal with my lower teeth. ...
[retrieve this message]

---

I have dentinogenesis imperfecta and so does one of my sons. All my teeth have been crowned and my son had his done at two years to save his baby teeth. He had a spreader in the roof of his mouth and currently has braces on his upper teeth. After braces come off, the plan is to crown all his teeth. I love how we have dental insurance, but they will only pay 50% for one crown a year. It would take almost three decades at that rate. I would be happy to sign a petition.   [End]
[retrieve this message]

---

Hi, I know this is an old post. I am 43 and have DI. My father has it, his father had it as did HIS father. It is not as bad as some genetic disorders, but it does crush your self esteem. I had a mother who was very popular growing up and she was extremely dissapointed in the fact that I was not pretty and outgoing like her and she let me know it constantly. I experienced much cruelty growing up. I was so distressed that I pulled out my hair... twice. I have begged dentists to give me dentures, but they will not. I have had 10 abcesses and they were extremely painful. Fortunately I ...
[retrieve this message]

---

I have been trying to find a support group for this condition with no success. Therefore, I started one on face book. You can go to https://www.facebook.com/#!/profile.php?id=100003680083491 Hopefully we can support each other, exchange ideas and information on how best to treat this and help our children afflicted with it.   [End]
[retrieve this message]

---

According to the geneticist I saw last month, she stated that it is an autosomal dominant disorder, therefore if one of the parents have it, there is a 50% chcnce of passing it on to their children. If neither parent has it, then BOTH parents had to have a recessive gene.   [End]
[retrieve this message]

---

I agree with you, we need to do something to gain support for this rare disease. Both my twins have it and I have no experience with dealing with it. I’m trying to find out what treatment to do with them and it seems that I have not been able to find a dentist that doesn’t have to look it up first to be able to give me information on it. It’s going to be VERY expensive for treatment and something needs to be done to insure that insurance companies help us out more. You may private message me if you want.   [End]
[retrieve this message]

---

I am 26 and have Dentinogenesis Imperfecta. My mother, sister, and nephew also have it. It has been a pain since I was born. When I was little they put caps on all of my teeth except for the front four. They didn’t seem to help at all. And growing up my teeth were contantly breaking and hurting. I also would get abscesses in my mouth all the time. My mother took OsCal while pregnant with my sister and hers seem to be a little better than mine, although I am not sure if it is because of the OsCal or not. But I am currently trying to get pregnant right now, so I am taking it just in case. I ...
[retrieve this message]

---

Hi I have Dentinogenesis imperfecta. I m 25 years old & have already lost lower & upper jaw teeth. I am using bridge for lower jaw teeth on both left & right side. on Upper right corner I have done implant just two months back. The crown is yet to be placed. This teeth disorder is giving me pain since childhood. Wherever I go , I face this question why my teeth are like this brown yellow colored. Now as I have lost my teeth, I smile only with close lips. I talk less so that I can hide my teeth from people . I have visited several dentists & nobody knows the solution. Implants ...
[retrieve this message]

---

We have Dentinogenesis Imprefecta in our family and it has hit 4 generations. I have gone through braces, two sets of crowns, root canal’s, fillings, implants, you name it I have done it. With no money left in our bank account. in 2011 alone I was left with a 8k dental bill and have ”dentures” It is very hard to get a dentist to understand the emotional stress that we have with this disease. After 50yrs of dealing with it I have come to this conclusion. Get veneers to help support the enamel of the teeth for as long as you can. Keep them as CLEAN as you possibly can to keep ...
[retrieve this message]

---

Hi, I’m from Malaysia. I also have dentinogenesis imperfecta. I think I am the unluckiest because all my children (4 of them) have DI. Everytime we meet with people they will ask why the teeth like that. Sometimes I feel like avoiding meeting people. Some dentists never helps us and never support us. Maybe ,they thnk that people like us can’t afford to pay for the treatment which is very expensive. Nevertheless, i will try my best that all my children will never wear dentures. My suggestion is, we should have a fund for DI, so it can be used for the treatment. Hello dear,millionaires, bil ...
[retrieve this message]

---

I know your post was more than a year ago, but I wanted to respond for any future readers. I doubt this is what your son has, but I have a sister with blue whites and it’s because she has Osteogenesis Imperfecta, a fragile bone disease. But hers are more than just a tiny bit blue. IF your son breaks bones easily, it’s possible he might have a mild form of this. But it is a rare genetic disorder, so I do doubt he has this. Blue whites is something doctors look for when they suspect Osteogenesis Imperfecta.   [End]
[retrieve this message]

---

I have the same condition. I am 33 years old and have lived with the deterioration, discoloration, and constant teasing as a child all of my life. It tends to destroy ones self-esteem. I, too, have asked several different dentists to just extract my teeth, but they always give me the run around. They tell me dentures should not be an option for me. The latest today told me that he strongly disagreed with this route and that I have another ten years left on the teeth that I have. Problem is, they continue to deteriorate and break off. I don’t feel I should have to wait for the rest of them ...
[retrieve this message]

---

dixiekitten---Here’s my two cents--please, please, please!--save your money! Caps don’t work for people with dentinogenesis imperfecta! I’ve had caps in the past and eventually, the tooth under the cap decayed and had to be pulled. As a teen, I had my 6 front top teeth capped. I was in an accident which knocked out the caps and at that time, it was discovered that the teeth underneath had deteriorated down to the gum line. They had to be pulled and thus, my first plate. My brother also has the condition and over the years has spent a fortune trying to save his teeth only to end up ge ...
[retrieve this message]

---

How is it that women when pregnant frequently have crumbling tooth problems - I personally know 4 women including my sister who had molars partially crumble during pregnancy. her doctor stated that this was due to nutrients either not being delivered to the tooth and/or essential nutrients/minerals being taken from the teeth and used during the babies development. Teeth have a blood supply indicating that they like bone are constantly maintained and retain their white colour. Dead teeth are often dark grey in colour but can remain in the jaw without discomfort for years unless they b ...
[retrieve this message]

---

Hi I know this post is almost 3 years old, hopefully someone will reply back. My husband has dentinogenesis imperfecta and our son has inherited this dental problem as well. Our son is 3 years old and has to have 8 crowns put on his teeth. We have no dental insurance and we tried billing our medical insurance but of course they denied it because they said it affects his teeth only and if it was TMJ or affecting his jaw they may consider it. We do have a dental discount card which saves us some money. I guess it is frustrating as a mother to know what my son will have to endure and the cos ...
[retrieve this message]

---

great! i’m just happy to know that my teeth are getting healthier, and perhaps my bones too. thanks harley gyrl   [End]
[retrieve this message]

---

yes, teeth can remineralize.  it can be done with diet and/or topically applied products.  sometimes small cavities will remineralize.  i am sorry to tell you, human teeth do not regenerate.  if they did, you would need a hard chew toy to keep them from growing through your skull.  rodents, rabbits, and horses teeth grow throughout their life.  since you are typing on a computer, i don’t think you fall into any of those categories.  be careful with using hydrogen peroxide all the time, as it can make teeth sensitive.  your bones store m ...
[retrieve this message]

---

last year i stopped using store bought toothpaste. i floss and brush every day, using just a dry brush and no wax/no flavor floss. my teeth were getting a bit yellow, so for the past 2 months i’ve been dabbing 12% peroxide on my teeth with a q-tip, only when my teeth are looking yellowish and NEVER brushing with peroxide or immediately after i use the peroxide. i’ve done it maybe 5 times, and my teeth are much whiter now. my question: where my teeth used to be kind of translucent (i could see the shadow of my tongue behind my front teeth), i’ve noticed that they now seem to be fillin ...
[retrieve this message]

---

Red can mean just about anything. Usually an irritation or broken blood vessels but it can represent a systemic condition also. It’s best not to use drugs like Visine. Try using cold distilled water with eyebright tea for an eye wash a couple times a day. Also orally you may try Horestail, Oatstraw and Alfalfa. If this doesn’t help then I would back off all the therapies that you are doing and see if you get better. If you get better start each therapy one at a time and see which one is causing problems. No one likes looking like a Pot Head so I understand your distress. I wis ...
[retrieve this message]

---

what if it’s red eyes? here’s what I posted off topic in the oil pulling forum: hey-- this is off topic. sorry-- but at least I know there’s enough OPers that will respond quickly. I was just at the grocery store close to midnight and some pothead in front of me is tickled pink that I’ve got red eyes JUST LIKE HIM (I don’t smoke pot.) I’ve had red eyes for almost two months now!!! I’ve been on a liver cleanse for almost three weeks. My water intake is good-- 50 ounces to 80 ounces or more. I admit I tend more towards the 50 ounces than the 80 but still-- (I’m 150 lbs, so 75 o ...
[retrieve this message]

---

Do you even realize how obnoxiously patronizing you are being? Making jokes about my health and assumptions about the state of my liver? If we were having a friendly discussion then I could take t ...   [End]
[retrieve this message]

---

My son’s white part of his eye is very light bluish in color. It is very faint but I do notice it. Does anyone know what this is from?   [End]
[retrieve this message]

---

Two things come to mind: 1. Does he get enough of vitamin C in his food? Do you get enough vitamin C? Also, the amount of vitamin C that mother was getting during pregnancy pretty much determines what kind of teeth the child will have for the rest of his life. 2. Does he get regular sugar in his food? If yes, then that’s probably the reason. Most of the food today has some sugar in it, and most of it has too much sugar in it. Make sure that the only type of sugar he ever gets is fructose. Regular white sugar, brown sugar, honey, and starches (white bread, white rice, white noodles, w ...
[retrieve this message]

---

I was checking info about amelogenesis imperfecta, sounds like it is not your case. In amelogenesis imperfecta all teeth would have the problem along with few other sympthoms that I don’t see in your story.   [End]
[retrieve this message]

---

If you’re breast-feeding, then the ”disease” I described won’t apply to you. Baby Bottle Decay happens because up to 1/3 of the day is spent with a bottle in the mouth....bathing the teeth with they’re favorite sugar water. No amount of brushing the teeth can keep up with that. Perhaps your child does have one of the rare developmental dental problems such as amelogenesis imperfecta or dentin dysplasia. I should stress that these are INCREDIBLY rare and often very obvious from the beginning. Tragically, the vast majority of dental decay is simply an imbalance between the amount of s ...
[retrieve this message]

---

Thank you for the links. It makes sence why the lower teeth are doing much better. My son has only been breastfed all this time, and never slept with a bottle. It is then my milk that is destroying his teeth... I have now started to wean him gradually from breastfeeding, which is another problem to be discussed in another topic. The only strange thing that is still unclear for me is: why were the teeth so weak and soft when they were coming out first? Teeth on the pictures from the above mentioned links look like they were good and then got decayed. Another question is: Are the fu ...
[retrieve this message]

---

What you describe sounds like Baby Bottle Decay. Do you ever put the child to sleep with the bottle? Do you ever let the child just hold on to the bottle even though it’s not feeding time? The tongue protects the lower teeth from being bathed by the juice/milk. This is a specific pattern of decay. Here are some easy websites to get more info and see pictures: http://www.brushem.com/baby%20bottle%20decay.htm http://www.augustadental.com/babybottlecaries.htm http://www.crha-health.ab.ca/hecomm/oral/caries-prevention.htm Remember, a child should NEVER be put to bed ...
[retrieve this message]

---

Newmother: sounds like we have the same problem. You can read my post and some answers here: http://curezone.com/forums/fm.asp?i=776911#i I am also worried about my sons teeth. The exposed tooth surface under enamel became dark, and the teeth are rubbed off some almost to the gum. But this only happening with the upper teeth, the lower teeth look pretty normal, which confuses me most. I am not sure what caused it, but these upper teeth were very soft from the moment they appeared, like nails, ulike the lower teeth. Dentists here suggested pulling all 6 of them at once u ...
[retrieve this message]

---

Are there any inherited dental problems on either side of the family? In my family dentinogenesis imperfecta runs in my mother’s family. This is a condition where the tooth has little or no enamel thus is prone to decay. I think it’s good that you’re brushing his teeth. When my daughter was his age, I just wiped her teeth with a damp washcloth after each feeding. Fortunately, she didn’t inherit the bad teeth. The worn enamel won’t grow back but take comfort that these are his baby teeth, not his permanent ones. It sounds like you’re doing everything right but I have to ask--does he ...
[retrieve this message]

---

” I think this probem is attributed to us not brushing his teeth like we should.” If only everyone else in this forum could see the obvious as you have. And enamel does not grow after the tooth is erupted. When it’s gone, it’s gone. Please don’t neglect this problem as many people do ”because they’re just baby teeth and will fall out anyway.” These teeth must fall out at a certain time to allow for proper eruption of the adult teeth. Otherwise the child’s adult teeth become crowded without the baby teeth serving as ”space maintainers”, and may look like this: [Image Embedded Here]   [End]
[retrieve this message]

---

Tooth decay is caused by too much lacto bacteria in the mouth.The bacteria feed off of sugar,one of the worst sugars for tooth decay is juice.Here is an easy solution to help.after he drinks juice or has a high carb meal make sure he rinses with water,that will solve alot of the problem.make sure he rinses with water before bed because thats when your body stops making alot of natural saliva and when most tooth damage is done. Hope this helps   [End]
[retrieve this message]

---

Hello, My son is now almost 14 months and my husband and I noticed that two of this upper teeth (not the biggest ones) have an enamel that has worm away exposeing the more delicate lighter area of the teeth. He does nurse and I read that nursing actually helps protect the teeth and is un likley to cause decay because the baby swallows the milk un like a bottle where the milk can pool upwards. I think this probem is attributed to us not brushing his teeth like we should. We actually just started to brush his teeth and he persists. I wonder if we would of started brushing his teeth at the f ...
[retrieve this message]

---

Hello, My son is now almost 14 months and my husband and I noticed that two of this upper teeth (not the biggest ones) have an enamel that has worm away exposeing the more delicate lighter area of the teeth. He does nurse and I read that nursing actually helps protect the teeth and is un likley to cause decay because the baby swallows the milk un like a bottle where the milk can pool upwards. I think this probem is attributed to us not brushing his teeth like we should. We actually just started to brush his teeth and he persists. I wonder if we would of started brushing his teeth at the f ...
[retrieve this message]

---

Hi, Kerin --- Thank you for your response to my posting. It’s good to find others with this problem. I think your idea of getting a petition together is a good one. In a few weeks, I’ll be getting together with my brothers and their families. I will certainly bring up your idea and see how they feel about it. You’re quite right -- dental insurance, for those of us who have it, is very poor in what it covers. People wonder why others with bad teeth don’t have them fixed. While I think it’s true that some are afraid of the dentist, I’m willing to bet that it’s because most can’t affor ...
[retrieve this message]

---

Hi I have dentinogenisis imperfecta as well and it has cost me and my family A LOT of money. I appreciate your advice about not wasting money but I really think that we need to petition for dental or medical insurance to cover more costs. I am very interested in heading up a campaign. It is crazy that we have a documentated medical/dental genetic disorder and no insurance company is wiling to help us. PLEASE write back with as many names of people in your family or you know that would be willing to sign a petition if I send one out.   [End]
[retrieve this message]

---

Dear BlueRose, if you haven’t done so already, you might want to learn about crystal healing. With carefully planned, gentle and consistent application of crystals to your environment or to certain ’chakras’, you and other family members could adjust your genetic disposition towards having stronger teeth. Obviously, it’s your decision as to whether you think that having stronger teeth’s important, and as to whether adjusting your hereditary genes is worth addressing. The term dentinogenesis imperfecta suggests that there’s something imperfect about the condition, whereas I see it ...
[retrieve this message]

---

Does anyone have Dentinogenesis Imperfecta (aka Hereditary Opulescent Teeth)? Supposedly 1 in every 8,000 people have it but the only ones I’ve met are directly related to me. After years of suffering, going to dentists who refused to extract my lower teeth and trying to convince me to save them by spending thousands of dollars, I finally found one who extracted all but the six teeth in the front. They were worn down to the gums so he just fitted a lower plate over them. This was the solution I kept asking other dentists about and they refused to consider it. The advantage of this is i ...
[retrieve this message]

---