Re: Does Anyone Have Dentinogenesis Imperfecta? (Dental Problems Support Forum) 4/1/2012 1924541

Re: Does Anyone Have Dentinogenesis Imperfecta?

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Re: Does Anyone Have Dentinogenesis Imperfecta?

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I agree with you, we need to do something to gain support for this rare disease. Both my twins have it and I have no experience with dealing with it. I'm trying to find out what treatment to do with them and it seems that I have not been able to find a dentist that doesn't have to look it up first to be able to give me information on it. It's going to be VERY expensive for treatment and something needs to be done to insure that insurance companies help us out more. You may private message me if you want.

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Does Anyone Have Dentinogenesis Imperfecta? BlueRose 20 y 11,467 † C †
- Dear BlueRose, if you haven’t done so already, ... sebastianreed 20 y 10,967
- Hi I have dentinogenisis imperfecta as well and it... kerin 20 y 11,159
  - Hi, Kerin --- Thank you for your response to my po... BlueRose 20 y 11,359
  - Hi I know this post is almost 3 years old, hopefu... dixiekitten72 16 y 10,800
    - dixiekitten---Here’s my two cents--please, please,... #28223 16 y 10,924
  - I am 26 and have Dentinogenesis Imperfecta. My mot... kflick85 13 y 9,485
  - I agree with you, we need to do something to gain ... ChrisBella 12 y 8,943
    This is the position of the above message within the thread.
  - I have dentinogenesis imperfecta and so does one o... mathmom 11 y 7,538
  - I am at least the 5th generation with this disease... asprag127 10 y 5,713
    - Hi. I just read your post. I also have DI as do 2 ... KM2727 9 y 4,897
    - HI, I am doing some research for a friend. Did th... #222030 7 y 3,062
- I have the same condition. I am 33 years old and h... krazycatz 16 y 10,807
- Hi, I’m from Malaysia. I also have dentinogenesis ... bucu 16 y 10,523
- We have Dentinogenesis Imprefecta in our family an... #139505 13 y 10,313
  - I have been trying to find a support group for thi... ChrisBella 12 y 8,860
- Hi I have Dentinogenesis imperfecta. I m 25 yea... Brinel 13 y 10,827
  - According to the geneticist I saw last month, she ... ChrisBella 12 y 8,919
- Hi, I know this is an old post. I am 43 and have ... librarygrl 12 y 8,785
  - Does Anyone Have Dentinogenesis Imperfecta? asprag127 11 y 7,196
    - I stumbled across this discussion today. I am Brit... UKDiane 11 y 7,062
- I ’m a 37 year old female with DI. I can trace it ... KM2727 9 y 4,695
- I have dentinogensis imperfecta. We can trace it ... kdschley 7 y 3,418
- I started this thread 14 years ago. It didn’t get... BlueRose 6 y 1,923

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Re: Does Anyone Have Dentinogenesis Imperfecta?

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