Hi AznDollie
Have any Dr's done an MRI on your Brain and the brain Stem. I think you really need to get to ER and let them know what you just told me about you hands and feet are changing and pigmention. ANd your head shape and not being able to hold it up.
I am not sure if it is your Pituitury glad or hypotholumus gland that can be causing this. You need to get an MRI to see what is going on with these two glands.
I am not trying to scare you but I feel it is not just your adrenal glands. Please have you hubby read this too to see what he thinks. :)