I am really bad at this so forgive me if I say something stupid, but is there ANYTHING to think about trying-even a probably idiotic doctor? I kept saying they were useless and I wouldn't go for months, but then I'd make another appointment. It gave me some hope every time that they would say something helpful. At least they ruled some things out. What about progesterone cream or calming herbs or vitamin b shots? Acupuncture? I sure haven't found the cure but I hate to stop looking because it could be around the corner. During my second back surgery they cut me neck to waist (again)and I had practically unendurable pain for 2 full years. I'd tried 20 things and none of them worked. The 21st thing I tried, weight lifting, took almost a 3rd year to work. But since then the pain is gone! 21 tries to get results. So I know it is possible to find things that work, even though it takes forever. I truly hope you can find some relief very soon.