I am new here and have HS. Something strange is happening. Let me first ask this question. Do any of you with HS have an allergy to sulphur? Let me explain. I was first stricken with HS at the age of 14 on my face while on penicillin for something else. When the breakout occurred they said it was the allergy to penicillin. Needless to say as the years went on i was treated with every abx you could think of. The only ones that did seem to work were mainline. Right into the vein. Some did have sulphates and some did not. So many years have gone by i have lost track but do remember some. ...
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Hi, I’m about a week and a half into this therapy. So was it about 3 courses before you noticed any improvement? Do you remember if you flared any upon starting treatment? And 4 years later, has the cure held?   [End]
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$$ GET PAID FOR YOUR OPINIONS $$ Have you or anyone you know been diagnosed with Hidradenitis Suppurativa/Acne Inversa/HS? Engage In Depth, a market research firm located in the Washington, DC area, is working with a national medical research company to help improve the treatment of this dermatological condition. We are recruiting participants for an upcoming study and are contacting you as we hope we may include you as part of this conversation. These telephone/online interviews will take place May 5-14. The interview will last 90 minutes and to thank you, an honorarium payment ...
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$$ GET PAID FOR YOUR OPINIONS $$ Have you or anyone you know been diagnosed with Hidradenitis Suppurativa/Acne Inversa/HS? Engage In Depth, a market research firm located in the Washington, DC area, is working with a national medical research company to help improve the treatment of this dermatological condition. We are recruiting participants for an upcoming study and are contacting you as we hope we may include you as part of this conversation. These telephone/online interviews will take place May 5-14. The interview will last 90 minutes and to thank you, an honorarium payment ...
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I have been thinking about a liver flush, but it only happens when I start wearing deodorant with baking soda as an ingredient. So I’m not sure if I actually have HS - it was just an idea. My diet is mostly gluten free, dairy free, very clean. I have been drinking and eating mostly warm/hot things instead of cold since it’s winter.   [End]
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Try liver flush. It is a symptom of congested liver. What is your diet like? WS   [End]
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HI there...I got my issue right around the same age. Personally, I think it has to do hormones. I get a flare-up just before my cycle. What to do? I can only say what worked for me. My Derm. and I decided to use doxycycline for flare-ups only. I described to him that it was around my period, and seemed to travel around my body. The doxy stops it. After everything clears, I stop taking it rather than staying on a low dose. Things I did that helped: I use an antibacterial soap for washing in morning. Then if I sweat at all... I mean even a little I either shower immediately, (whic ...
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Hi there. I am a 23 year old female and this past May(6 months ago) I started developing what I thought were cysts in my armpit. They were very large, swollen, red, and painful. It took me almost a month to go see a ND about this and he thought it was clogged sweat glands that lead to an infection, and it spread to my other armpit. I stopped using all deodorant (I was using a homemade deodorant of baking soda, coconut oil, corn starch, and lavender essential oil). We are assuming it’s the baking soda that was causing irritation and clogging my sweat glands. I was not put on antibiotics ...
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The link still is not working.   [End]
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I just searched online for irregular heart beat and HS and I found your post. I am 48 and just had surgery. I was diagnosed with HS late last year after suffering for years, but otherwise thought I was in decent health. But at my surgery yesteryear they said I have irregular heartbeat shown on ekg and need follow up on that. I never had that before and your post was very interesting to me.   [End]
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My first advice for hidradenitis is to STAY AWAY FROM DOCTORS!!! They do not know what they are doing when it comes to HS. I’m sure you will get some answers here: follownaturesway (dot)com ”Celiac disease is an autoimmune disease due to gluten exposure. Other gluten diseases include Hidradenitis suppurativa, Dermatitis herpetiformis, Gluten ataxia, gluten allergy and Gluten Intolerance.”   [End]
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Hi all, I am new hear and I am a suffer since I was 17, I am now in my 50’s. I have searched for years for an answer to my HS, and recently have come across something interesting which I would like to share with you all. I have been suffering from SVT’s or Supraventricular Tachycardia for years, and four weeks ago had a radio frequency ablation done to prevent the SVT. Now this is the interesting part. Prior to the ablation, my HS went wild on me, for the last two years I have been suffering every few days,I had a hysterectomy 8 years ago, came off the HRT two years ago, and t ...
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Cannabinoids are known kill antibiotic resistant organisms. pptu.lefora.com/2011/12/07/got-pot/ Neem oil used externally may be an alternative. *Do not ingest neem oil.   [End]
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Hello labby, not sure if anyone ever responded to your Question? I find myself in the same boat myself now. my joint pain began as early as I can remember. I get acne outbreaks on my circumcision scar. would love to catch up with you. take care   [End]
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I’ve had this disease for 24 years. It peaked last year when I was diagnosed with Diabetes II. I have before and after photos of how my Hidradenitis healed while using Western Magic Glycerite Cannabis Oil. My before and after photos are here: http://cbdcure.livejournal.com/817.html Antibiotics will NOT CURE this disease. It will actually harm your health to continue to take antibiotics. If you do not live in a state that allows the medical use of cannabis, you better think about relocating if you’re serious about curing yourself.   [End]
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Hey everybody. I have had HS for at least 13 years now (maybe longer). It was never really that bad until a few years ago, when I ended up having incision and drainage in two sites on either side of my groin. Since then and the birth of my second child, it has gotten progressively worse. Last year I started using diet to help control it. It had a huge impact and areas that used to swell to the size of golfballs rarely swell anymore and have never gotten to golfball size since I changed my eating habits. Whilst I have not managed to get it into remission, I am much happier and more heal ...
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Hey there! I’m a 21 year old female that has been struggling with HS since i was 14. I was diagnosed when i was 16, then referred to a dermatologist. He prescribed me harsh anti-biotics, i can no longer have dairy because ive taken them so many times. The infections would go away, but i was constantly sick and getting infections still. About a year ago i decided to go completely off the antibiotics because they were just making me sick. I started eating a raw diet to balance my Ph. It worked for a while, but i was still getting them about a week before my period would start. I admit, i ...
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3 mnths ago startd to hve ths bumps in my pits. i thought thy were nrmal bcoz at tht time a shavd my pits and usd bking soda fr deo(lng story).thn the scary thing happen. the bmps were trning to smethng like sveral acne that has pus in it. it was so painful!!i nver talk about it to anyone bcause i thought it would just go awy after a couple of dys the pus were starting to drain and it did go awy. after about a mnth the acnes were all ovr my armpits again. and sme acnes under my breasts. it was so painful!! i cnsultd my drma about it and she said its bcteria and gve me things that didn’t w ...
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3 months ago i started to hve bmps in my pits. i thought it ws nrmal bcoz i shave my ua that dy and i ws using bking soda fr deo(long story).i wnt to my dr and she said its folliclits and rfferd me to a drma. she gve me stuff bt i still hve 1-2 flare ups evry mnth.sveral acne like thingy would pop out in my pits that would drain after about a week and under my breasts(not as painful) i hve this scars in my pits. its so dsgusting and embarassing. i tried the diet bt i still hve flare ups but they are definitely smaller and thy heal faster.and i thnk hs is also in my fce. help pls! wht am i ...
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Hi. I have been suffering with HS for over 23 years. They first started out as red bumps in the vaginal area. After repeated infections my doctor surgically removed the tissue. That didn’t work. The lesions started appearing in the same location but on the opposite side. My physician didn’t know what these bumps were and in 2009 he sent me to a dermatologist. She took one look and told me instantly that I had hidradenits suppurativa. I was in shock. I read up on everything I could find. I was put on doxycycline for the next 4 years and was miserable. The anti-biotic would cause me to have ...
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Hi, I am a newbie and have had this dreadful disease since i was 14 and am now in my 60s. 100’s of surgery’s and plastic surgery’s and even the removal of half my vagina with talk about additional surgery to remove all. It has been a long and tough road as you all know the stories. :( However in the meantime in between all of this horror, I got MS and then told it was Lyme Disease. My question is...is there anyone in this forum or any that you belong to who have Hidrandenitis also have MS or Lyme Disease (Ms being a co infection of Lyme Disease )that you are aware of. I am finding more an ...
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What is contained in yur cream, and what does it do. Many people who suffer with eczema are allergic to differenr things. Before I buy a new cream to use for eczema I would like to know some more about it. If you want to know more about how to control eczema, visit the link below http://allergyrock.com   [End]
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you can buy it online at Zyderma.com   [End]
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Is this only available with a Rx or is it an over the counter item?   [End]
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but since it kills good bacteria, so I’m not using it.I think once you stop using it, the good bacteria can still build back up, becasue topical is not that harmful.   [End]
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Hello to all, This is the first time I have ever joined a support chat, but I have to share this with everyone. I came across a product called ”Zyderma HS” That is a topical silver color cream, that worked in just a few days of applying it to my boils. I first started using it for acne cysts on my face and gave it a try on my bikini area as I had two huge HS boils for months and within a few days it completely drained and the whole area was cleared up with out the skin cracking and drying out. Also no stinging or discoloring of my clothes. I have tried everything over the past 15 years, th ...
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I’ve used various modalities trying to get rid of my Hidradenitis suppurtiva - Herbs - western, Chinese even Ayurvedic, also acupunture and meditation and recently with recommendations from abchomeopathy.com they list various Homeopathics for hidradentis but still the boils and skin eruptions continue. My last try was a simple formula containing a bottle of antigen or peptide and 2 packs of herbs. Here is explaination of the treatment: Ist according to this company, HS is an autoimmune disease resulting from antibodies to gluten and is similar to celiac disease but ...
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A friend has hidadentis surppurative, which is a form of boils that are very painful. I would say it is stage 2 or 3 at this point. I am looking for some ideas to relieve the many outbreaks, ant suggestions will be much appreciated.   [End]
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I have hs and have had radical surgery to remove large areas. Im 1 1/2 years out and have had no recurrance in that area, my other areas are controlled bu dial gold body soap, epson salt and taking zinc   [End]
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I have Hidradenitis Suppurativa. This is a skin disease that typically starts during the teenage years and occurs in areas supported by the apocrine glands (sweat glands). For some unknown reason, people with Hidradenitis get chronic plugging of the glands. Outbreaks usually occur under the arms, breasts, groin and inner thigh. Many medical journals state that people suffering from this disease do not seek a diagnosis due to embarrassement. I disagree with this. I have chatted with several sufferers and they have verified that often this illness is misdiagnosed. I did not get this illness ...
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dearest fledgling, i don’t have enough time to reply properly but, i wanted to thank you for caring about my problem and, for your wonderful response... and also, i’ve seen and enjoyed some of your posts around at random before and i think you’re such a positive part of this community... i have to dash now but i’ll be back later! blessings, missy   [End]
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Oh my, you hit that nail on the head, 109287! That’s exactly the hardest part...waiting for a reply when online is the only place you can think to ask! I mean, just plain posting brings all kinds of puzzles to mind...let alone posting a very personal question. I am female, and I have had experience with difficulties in this area...but...I’ll be darned if I know what to suggest. Maybe this is something Uniquity has thought about. Her forum is Natural Healing. But you may get her attention sooner by sending her a Personal Message. ...That’s near the top right-hand co ...
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though you’re not female, i appreciate your trying to help me, shroom... i still don’t really know what to do (my living situation is terrible, trying to do hot compresses or anything else is very complicated here, and i don’t have any money [to buy stuff that might help] or access to a doctor) but it was the waiting for anyone to answer that was the worst ...from the heart, thank you...   [End]
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You really should get it looked at; but if it is affecting the inner labia, then could be internal abscess. That would cause a pressure pain. Try and keep a hot compress on there as much as possible, I guess. If it is internalized infection, it should break eventually. This is a shot in the dark, and I am male, so best to wait until females think about this one. Shroom   [End]
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i’ve posted about this before so i apologize for posting again, but i am really in pain and scared... and i apologize sincerely for being graphic but, i don’t know where else to turn... i have never been to a gynecologist and have no way of going (and where i live is so cramped, i can’t even lay down and look with a mirror...). i have this awful but vague pain down there that i don’t know what it is or even where it’s specifically coming from - it began as a barely noticeable feeling like maybe my inner vaginal wall on the right side was pushing against the left side (and i was ...
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Since I posted that message, I have been diagnosed by a dermotologist at Brigham and Women’s Hospital in Boston. He also has a degree in internal medicine, which is sort of unusual for a dermotologist and has been treating me with Trental, a medication used to treat poor circulation and lower blood pressure, as well as topical Retin-A and steroid injections (it’s similar to cortisone) in the actual cysts (or whatever you want to call them). I only had the steriods three times since July because they have gotten so much better. When I went for my initial appointment, he said that he’d ...
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Me too. I have them in the same locations. And I also have not been diagnosied. There are alot of sites w/ info on our condition. If you like I can send you what links I have. I am also on Yahoo.360 or Myspace if you would like some one to talk to. Good luck. Just let me know if I can help you in any way.   [End]
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After being on a steroid type medication for 8 months, putting on 14 kg’s, I have refused to take them for the ninth month. The Dr. promised, I’ll lose the excess weight. Yeah, I wished. After two yers, I’ve remembered the Beverley HIlld diet book, by Judy Mazel, dug it out, read it in half the night. It was like somebody hypnotised me. Next day, I’ve started it, surprisingly, easily stuck to it, although I was working in a cake shop at the time. I was eating all day. I was satisfied, the weight just fell off. friend, relatives could not believe it. Since then, four friends have f ...
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dear mrs2b If you truly want to lose the weight, read Dr. Lewis’s book, ”Why Weight Around?”, available at lulu.com. It will change your life!   [End]
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hi, ive been suffering with hs now for 8 yrs and am now stage 3 none of the drugs or antibiotics ever worked for me... but now ive got a bigger problem due to not being able to excersise very much (apart from a 10min walk anything more and im in agony for days....) ive gained alot of weight and i am trying everything to get it off as im getting married in the carribean in march and cant find anything thats working for me please does anyone have any advice?   [End]
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What experimental medication are you talking about? I have not be diagnosed yet, but I believe this is the condition I have. If this is true, I will have had it for about ten years with virtually no treatment due to incorrect diagnosis. I was put on various antibiotics and even did 1 course of Accutane which failed to help at all. I have them under my arms and on my inner thighs which can make walking very painful. I have just started to research this condition and am not overly encouraged by what I am reading, especially since it appears that I am at stage 2 due to lack of treatment. ...
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I am living like this. Although the only place I have them are in the groin area. It is very painful but the experimental medication is working and they are not draining and my scarring has gone way down.   [End]
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I really don’t know how to keep living like this. I feel so bad every time i have to drees up and i need to star thinking on the scars on my arm pits. I dont go to the beach or pools because i dont feel good showing my body.Lately i dont even want to have sex with my boyfriend because is painfull(when i have one on the groin) and i dont feel pretty anymore.   [End]
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I was recently diagnosed. I should say finally diagnosed. I was put on minocycline to treat it. I really believe there has to be a way of eating to control it, but haven’t found it yet.   [End]
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hi, I have suffered with HD for almost 8 years now, am caucasion f, 30 and have had no treatment that has worked. I came accross a person who claimed to have had complete sucess with overcoming HD through fasting and as I am not looking forward to any radical surgery I have begun to fast to see if it works for me. After 5 days on a water fast all of my avtive boils have reduced to almost nothing without coming to a head and have not had any new boils. This is significant because I tend to always have active boils and have not had this amount of remission in 8 years with any treatment ...
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I have had HS for about 15 years now and was only recently diagnosed with it because the long string of incompetent doctors i have been to had no clue what it was. I also get them on my bikini line, under my breasts, on my waistline, and genital area. I also get them on any surgical site. I was always told mine was either staph or ingrown hairs. What bothers me is they say it is rare but how could they know since there arent many doctors that even know what it is when they see it? Anyone else have that problem?   [End]
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Hi, I am not very happy at all, yesterday i went to emergency doctors as i had several very painfull lumps under my arms, i have also been getting for a couple of years now boils on the underside of my breasts, i was told i had HS and that i would have to take penicillin for six months, i just assumed that would be the end of it. i read up on HS when i got home and could not believe my eyes. several years ago wheen i was 13 i was told in a very similar casual way that i had psoriasis (incurable) several years later i was again casually told i had lupus(incurable) more recently i was in ...
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Hi, I started getting these (underarm) when I was around 15-16 yrs old. I finally went to the dr when I was 18, and he lanced them, made a drain, told me not to wear deodorant until they healed up. After they healed up, I was instructed to use Mitchem Deodorant. After they tested the blood they drained, they told me it was a Staph Infection? I’m now 50 yrs old, and still have these. What I have noticed however is that I am hypoThyroid/Graves Disease after a 2 yr stint on atd’s for hyperT/Graves, and the more hypo I am, the worse they are. When the hypoT is addressed, they go away ...
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If you don’t mind me asking, where did you get the lumps? Under the breasts, inner thigh, where??? I have them on the inner thigh, right on the underwear line going around the leg, and it is misery to say the least. Everything aggravates it, and nothing seems to work. You say the dermatologist with lancing and injecting cortisone into them? My derm did this for the cystic acne I get on my face. This sounds much the same. Please let me know anything you can on how to deal with this nuisance of a condition they say has no cure. I don’t want surgery!   [End]
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unfortunately, i have been a suffer if this condition for 21 years. surgery did not even work, as after the glands were removed..as the surgical wound was healing...it found another one to attack. i have tried EVERYTHING i can think of including colloidal silver, to zero success. The only thing that helped me was going to the dermatologist, getting them lanced, cortisone treatment. It is very temporary, and i find that if i get sick, (very rarely) the darned thing flares up with a fever, much like a fever blister does. WHAT A NUISANCE !! Any suggestions since this posting?   [End]
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I am thinking about building or buying a collodial silver machine. Thanks for your post. I have been buying collodial silver from a health food store but it is might pricey. But....until I get my own machhine...well worth it. rudi   [End]
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A friend of mine had this. He was on his second occurence and I think it had been a few years since his first bout. He was on long term antibiotics the first time. His second bout had gotten to the point of causing him pain and he was pretty miserable. I gave him colloidal silver. He started it right before bed, 1 teaspoon, and noticed very good improvement the next morning. It stopped the lumps and I think it took about a week or two to totally go away. It’s been about 6 months with no reoccurence. His diet stinks and his environment is definitely toxic. (He does autobody work, an ...
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Sorry ,the above mentioned webpage recommended link to support group and info ha changed to : http://www.angelfire.com/amiga/hssg/ Magpie   [End]
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Hi Lavonna, I have put up with the same problem for many years and believe, in my case at least, it is connected with thyroid function. More prone when on the hypo side I think. Here’s a link to a web page which includes an article regarding the connection and a forum support group for hidradenitis suffers in case of any help. (Sorry, might have to copy and paste ) http://thyroid.about.com/cs/hidradenitisboils/ All the Best, Magpie   [End]
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Hi! Im 46yr old fm. I have had this disease call HS or adult acne inversa. I am on disability for this as of 4yrs ago. TONS of antibiotics over the years, also accutane(YUK)Kenolog shots, prednisone etc.. NOTHING WORKS, not even surgury. I feel like im toxic! Constantly depressed, BLOATED and my legs hurt so bad i cant stand it! I always had this HS problem in the groin area and as of 6 mo ago, now its in my armpits. This is a progressive disease. It started when i was 27. Im 40 lbs overweight, which adds to the misery! I think im full of candida due to ALL those useless meds! Is there ANY ...
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Try recommending tea tree oil, it has worked wonders for me for my Hidradenitis Suppurativa. I have heard that more often than not, the surgery is not a good option because the ”lumps” continue to grow back.   [End]
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I only know basics about your problem...but after reading a bit more on the subject, if you were a client of mine I would recommend the following: Cleanse the colon - toxins are leaving your body through the skin as other avenues are built up or sluggish in their ”clean up”. Drink plenty of water. Eliminate or cut out red meat/poultry and cut way back on dairy, only consuming organic when you do. I would recommend a female balancing herbal formula to regulate and to get the hormones leveled out. I would also recommend not using anti-perspirant as much as possible, only using a n ...
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I seem to have my worst flare-ups after taking multivitamins, especiaaly around menstruation cycles. I do not fit the profile for being Afro American , overweight, excessive exposure to heat and moisture, nor am I diabetic. I have had these for 8-9 years.   [End]
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I am in the medical field and also support much of what you do. I can not find any cure for this ailment and it causes my patient a great deal of shame. Do you know a nonsurgical cure for this? Thanks   [End]
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