What experimental medication are you talking about? I have not be diagnosed yet, but I believe this is the condition I have. If this is true, I will have had it for about ten years with virtually no treatment due to incorrect diagnosis. I was put on various Antibiotics and even did 1 course of Accutane which failed to help at all. I have them under my arms and on my inner thighs which can make walking very painful. I have just started to research this condition and am not overly encouraged by what I am reading, especially since it appears that I am at stage 2 due to lack of treatment. Any tips or information anyone could share would be greatly appreciated!