Re: How other people can live like this!
Since I posted that message, I have been diagnosed by a dermotologist at Brigham and Women's Hospital in Boston. He also has a degree in internal medicine, which is sort of unusual for a dermotologist and has been treating me with Trental, a medication used to treat poor circulation and lower blood pressure, as well as topical Retin-A and steroid injections (it's similar to cortisone) in the actual cysts (or whatever you want to call them). I only had the steriods three times since July because they have gotten so much better.
When I went for my initial appointment, he said that he'd never seen it as bad as I have it, and that it would be a long and difficult treatment process, but it seems to be going well and he is very pleased with how well I am doing.
This is, of course, not to say that I am cured. I still get the large, inflammed cysts on occassion, but I get them MUCH less frequently, and if I have them when I go to his office, he injects the steroids and they go away.
If anyone has any questions, feel free to email me. I can ask if he has any other recommendations for reading for other doctors, such as where he learned of the treatment method he is using.
I hope this is helpful for someone.