New here and need advice 
#145122
11 y
3,629
Hi
I'm struggling with several health issues and was hoping that NB might be able to address them and help me heal. I've tried numerous things thru the years and nothing has really helped. Here are some issues I'm struggling with:
-gi issues: neurogenic bowel (nerve damage in the gi tract that causes chronic constipation and Gastroparesis)
-ulcerative colitis
-chronic infections like klebsiella pneumoniae, mycoplasma pneumoniae, hhv6, rickettsia, lyme and Co, he pylori, demodex....
-autoimmune issues like uc, fms, cfs, adrenal fatigue, hashimoto/hypothyroidism, hypoglycemia
-malabsorption, gerd
- food intolerances and histamine reactions
-nutritional imbalances
-restrictive diet
-mthfr and other snps... Major methylation errors
-genetic defects to biotoxins and mold (shoemaker labs)
-heavy metals
-insomnia, anxiety, depression
-mitochondrial issues
-hormonal issues and pcos, amenorrhea, hpa issues
And others....
I'm sensitive to most things.... I've been living in mold toxic environments for many years and have the 2 most dreaded shoemaker hla genes where my body doesnt illicit and immune response against molds and such. Add in mthfr and other snps, and no wonder I'm so toxic
The biggest issue is my gut and the nerve damage in my colon and gi tract. I have to rely on a crutch to go to the bathroom, whether that be pounds of dates or daily coffee enemas. I used to be fruitarian, which didn't help my high yeast count. I've been off that for a month, but my gi tract is back to being frozen. I went to a detox center that put me on coffee enemas. They help, but now I'm dependent on them (i feel great afterwards tho... Less brain fog, more energy, less bloat, etc). However,, i long to just go normally
Anyways, i currently eat a vegetarian diet and cannot digest protein well at all. Fats are difficult too and starches as well. . I'm grain free, except for rice protein powder and a rice cake. I try to juice, eat salads, steam veg, avocado, nut butters, and noodles made from mung Beans, spirulina. This is much more variety than when I was fruitarian(i could only digest dates due to ffructose malabsorption). I sometimes do some berries too
Anyways, i did many tests like stool, 23andme genetic test, nutraeval, organic acids, etc and all show many imbalances and infections. I've recently undergone a 3day water fast, which was harsh, and also several rounds of rife and saunas. Now, i feel it's time to rebuild and work on healing the gut and balancing my body
NB sounds like a great way to go... Would it be able to address these lingering issues and solve my gi issues and chronic constipation/nerve damage? Would it also address the mold and methylation?
If so, who ought i see? Any practitioners that are skilled in my complex health concerns and conditions? Also, what's the diff between arl and tei and which would be best for me? I really want to explore this and would love advice as to what to do, whom to see, and what I might benefit from. Also, approx how expensive is this approach?
Thanks so much for reading this
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- Re: New here and need advice Onwards
11 y
3,866
This is a reply to # 2,107,163Hi 145122- NB will most definately help to correct mineral imbalances but it will NOT cure your gut and infection problems. You can only do this with proper diet and paracides to kill what has taken over your body. I had to bring down the infection load while building up the body. Otherwise your body is fighting 24/7 against these infections and eventually ends up in a very weak and exhausted state.
I too went the raw vegan road for a couple of years and was at my sickest as a result of this. Hybridized fruit is one of the worst foods for those of us with chronic infections. I think the Gaps Diet is what you should be on. Lots of bone broth, cooked veg, meats and eggs are what healed my gut. It sounds like your gut is severely compromised. Stop eating the pounds of dates in order to have a bm. Steady Sugar is like throwing gas on a fire with infections. With very little nutrition for you.
You also need to take a digestive aid with everything you eat. I have to continue with a high dose of betaine hcl with every meal. This is working beautifully for me now. Perfectly formed and good bowel consistency. I still have to take herbs daily for the lyme and to keep other infections in check.
Get a hair test and follow the diet and supplementation recommendations. Most NB practitioners will not have a clue about treating the infections. You will have to do this on your own. Your diet is the most important part of all of this. It is the foundation of your healing program.
You can click on my avatar to see all that I have done to get well. It has taken me 5 years.
Best of health!
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- Re: New here and need advice phoenixceliac
11 y
3,547
MoreThis is a reply to # 2,107,427You have a lot of serious issues. I recommend that you speak to a practitioner about your issues and get his thoughts on proceeding with NB. I have been working with ARL for 4 years and have found their approach most beneficial. You are welcome to PM me, and I can give you the name of my practitioner.
Phoenixceliac- Re: New here and need advice petluvr10
11 y
3,673
- Re: New here and need advice petluvr10
11 y
3,673
- Re: New here and need advice petluvr10
11 y
3,781
This is a reply to # 2,107,427I haven't had dates in a month and my neurogenic bowel came back. I can only go with coffee enemas. I don't eat fruit except for maybe berries or kiwi in the am.
I am taking fungal enzymes and herbs for the infections. (oregano, gfse, caprylic)
My diet is green juice, salad, steamed veg, nut butters, coconut butter, rice protein powder, noodles made from only mung Beans, avocado, dulse and himalayan salt. I cannot digest eggs or other proteins... My enzyme count is really poor (low elastase). I want to do eggs, but the sulfur bothers me too (sulfate on issues... 23andme genetic test, also mthfr and other snps)
I don't handle digestive enzymes well bc most are grown on aspergillus and i am very mold allergic. I moved back to il and am suffering bc I'm staying in a moldy place again, after going to a detox center (my immune system is uber reactive right now from being depleted). How do papaya and Bromelain enzymes work? I might try these
I was looking into taking swisskriss for the constipation and nerve damaged bowel.... Would this help?
Gaps didn't work for me.... Too high histamine and heavy on meats
Who would u recommend for a practitioner? I need someone who is good with tough cases
Also, what's the diff bn arl and tei?- Re: New here and need advice Onwards
11 y
3,681
This is a reply to # 2,107,454I don't know of any practitioners that I could suggest considering your issues. I feel a lyme literate doctor would be your best bet. You are taking lots of anti-fungals but nothing for parasites and other co-infections. I never bothered much with anti-fungals as the candida will just go away once you are eating correctly and eliminating the larger parasites. I take a broadbased mix of herbs which takes care of all of my chronic infections.
I interviewed several practitioners regarding infections and none of them really knew what to do. That is why I work as a practitioner for myself, family and friends.
It won't be easy to transition to a traditional diet. This should be your priority imho.- Re: New here and need advice petluvr10
11 y
3,564
This is a reply to # 2,107,467My diet seems very nutrient dense. I don't believe u need animal pro, but would love to do eggs and maybe sardines (but worry abt the toxins in fish)
Have u had experience with Morley or malter or Wilson? They seem top knotch
How do i address the parasites? I did several rounds of rife recently- Re: New here and need advice Onwards
11 y
3,730
This is a reply to # 2,107,473Best to interview each of them. See what they think. This will help you to get to know them a little and see which one feels right for you.
Treating parasites is a long process for someone who is heavily infected with many different pathogens. Probably take you a year to eliminate them all. It took me 1.5 years. I still have to stay on top of the lyme daily. I use a broadbased dewormer that I make myself. I have no experience with rife.
I disagree about needing animal protein. Both ARL and TEI suggest eating animal proteins daily. Your diet is not nutrient dense in my opinion and you will have a very hard time healing with this diet. Free range organic eggs are an absolute powerhouse of nutrition. I hope you can at least eat some each day. I eat 2 or 3 every day.
The diet is the most important part of NB.- Re: New here and need advice petluvr10
11 y
3,572
This is a reply to # 2,107,892Yep, once I build up my ability to digest, I'll add in eggs and maybe sardines and white fish... The mercury and toxins worry me bc i have mercury issues and methylation errors
My biggest dilemma is figuring out who to use... Arl or tei? I've heard pros and cons of both and that the supps used aren't great quality due to fillers and such.
Some reacted badly to arl bc it focuses on heavy detox that they weren't ready for. Some didn't like tei bc they didn't notice much progress. So, Idk what to do. Tei seems like a more comprehensive test but i could be wrong
Onwards, given my list of issues, what would u recommend I do?
- Re: New here and need advice petluvr10
11 y
3,572
- Re: New here and need advice Onwards
11 y
3,730
- Re: New here and need advice petluvr10
11 y
3,564
- Re: New here and need advice dave505
11 y
3,556
This is a reply to # 2,107,454"I don't handle digestive enzymes well bc most are grown on aspergillus and i am very mold allergic"
you definitively shoudl add enzymes if you want to heal your gut - search and try some that you are able to tolerate. I tried many combination until found that works for me - had similar problem and Enzymedica was ok - usually the suppliers write the ingridients and pancreatine from porcine source is very common.
for mold exposure things that help are some that reduce the response and inflammation - you could try D3 vitamin, C vitamin, Mg / Ca, omega 3 - if you tolerate. these helped me - not cure but helped. Bromelaine apart from food also help but read all the info about it.
i would reduce also anti fungals and go with milder form if possible like coconut oil and low amount acidophilus.
Sorry to say Onwards is right again - if you have big parasites this should be your first target - but pay attention to your body ability to detox. Mold can do a lot of damage true but if your body has also worms it will add more allergic reaction in your body. Chronic infections like H.pilory can result in allergic response to many things and MHTFR mutations. NB will help but not cure IMO also.
take care
- Re: New here and need advice phoenixceliac
11 y
4,263
This is a reply to # 2,107,476My practitioner is Dr. Larry McHaney. He with is ARL and was trained by Dr. Wilson. In regards to how ARL and TEI differ, Dr. Wilson's site gives a comprehensive view on how ARL works. It's http://www.drlwilson.com,
and you can find Dr. McHaney's contact info there. I can't speak to how TEI works, but there seem to be major differences between the two.
My view on parasites differs from others already expressed. I do believe based on my experience with them that the body needs to become healthy enough to not only expel them but prevent them from returning. NB got me to the point that parasites starting coming out and still are. I had no idea I even had them. coffee enemas also seemed to be strategic in getting them out. It took me over 2 years on the program before I started seeing them.
NB is a powerful tool for healing, and I highly recommend it. However, you will have to learn to really listen to any practitioner you choose and try some things that you don't think will work for you. It's not an easy road but amazing in its results.
Dr. Wilson has worked with patients for many years and has tackled many difficult cases. He doesn't see patients now but does work closely with many practitioners. Again, the list is on his site, and I can recommend Dr. McHaney 100%.
Phoenixceliac- Re: New here and need advice petluvr10
11 y
3,566
- Re: New here and need advice petluvr10
11 y
3,487
This is a reply to # 2,107,485May I ask what ur treatment plan is like (supplement and brands) so i can see what a plan might entail? Also, what's the diet like and other therapies?
- Re: New here and need advice phoenixceliac
11 y
3,504
This is a reply to # 2,107,701I'm glad to share. I take Endomet supplements which come from ARL. By going through Dr. McHaney, I get a 20% discount on the supplements plus pay no tax so it's like getting them 30% off. Supplements recommended are based on the most recent hair retest so they can change slightly from test to test. Right now I'm taking all the following 3 times a day: Megapan, Paramin, Zinc, Endo-Dren, Kelp, GB-3, Renamide, and Selenium. I take Vit. D3 once a day and TMG twice a day. Go to http://www.arltma.com
to see what each supplement contains. The Selenium and Renamide are optional, but I think they are important for me to take.
Some people can only take 1 supplement daily, and the practitioners are sympathetic if you need to start slowly.
The diet is described really well under the heading of the free program on Dr. Wilson's site. Basically, spring water, lots of cooked veggies, no fruit, good quality protein, etc. It's not a hard diet...it just requires discipline and planning.
TMG is a product that Dr. Wilson has been recommending to lots of us who don't detox well. Again, read the info on his site. I just started it back in April, and I think it is making a big difference in my ability to dump copper. I plan to retest in about 2 weeks and am very curious to see what the test shows.
Hope this helps.- Re: New here and need advice petluvr10
11 y
3,528
This is a reply to # 2,107,715Thanks a bunch. How often do u retest and how often are consults?
Also, how much do consults and the testing? How long are each consult session? Do u get a thoroughly written out plan?
Lastly, i heard that the diff bn arl and tei is that arl is high into detoxing first, whereas tei is more about building up first. Is this true? What detox therapies are u doing? (coffee enemas? Saunas? Etc)?- Re: New here and need advice phoenixceliac
11 y
3,569
This is a reply to # 2,107,730I retest every 6 months and pay $150 which includes the test and Dr. McHaney's advice/insights. He sends me a copy of the test with a list of recommended supplements and a CD going over the tests. I am free to call or email him with ?'s whenever I wish to. He is super available. Maybe if I called him weekly, he would set limits, but I don't contact him that often. He himself made tremendous strides with NB. Was diagnosed with Juvenile RA, put on steroids, told he wouldn't live past 30, etc. NB totally turned his health around.
I am doing enemas and using a single watt red bulb as a make-shift sauna. I shine it on my stomach/liver area for 20 minutes, flip over to my back for 10-15. It seems to make a difference.
I don't think those different descriptions of TEI and ARL are accurate. Again, I can only speak for ARL. Balancing takes place...for some of us who have lots of toxic stuff, whether it shows up on the first test like my copper of over 9 (ideal is 2.5), or it's hidden metals, when they start coming out, you feel worse before you feel better. And that is something you need to be willing to go through. In my case, I felt worse for a long time before feeling better. And I still have some lousy days. But it's all worth it in the end!!
Lastly, I agree with what Onwards just wrote. Animal protein is necessary for getting well. You may have to build up to it slowly, but your body really needs it.
Phoenixceliac- Re: New here and need advice petluvr10
11 y
3,621
This is a reply to # 2,107,922What is ur diet specifically like? How often do u do enemas?
And how did u decide on doing arl vs tei? How did u settle on dr mchaney vs the others?- Re: New here and need advice phoenixceliac
11 y
3,442
This is a reply to # 2,107,956I do enemas daily. Again, look at the free program on the site regarding diet. I am not perfect about the diet but do my best. I do eat a little grain, usually gluten free bread or oatmeal.
ARL was all I knew about 4 years ago, and I have no regrets in going with them. I started out just testing directly through the lab which anyone can do. It costs $80, and Doug Eck is a consultant who will go over test results with you, answer ?'s. He is incredibly patient and great about explaining things. At some point I needed more help than he could give, especially in the area of detox. Things were being stirred up but not coming out too well. Slow oxidizers don't sweat much, my bowels were very sluggish, etc. I found Dr. McHaney, and he made a huge difference for me. He slightly tweaked the computer-generated supplement recommendation list that ARL sends out, and that helped. But he talked me into doing CE's, and those really helped. Obviously, my liver was very congested from copper, parasites, etc.
Again, to quote Onwards, interview some practitioners. Also, read on the 2 sites I've given you and learn all you can. NB is not mineral replacement...it's balancing, and there is a world of difference.
Phoenixceliac- Re: New here and need advice petluvr10
11 y
3,633
This is a reply to # 2,107,970Can u explain your method for making your ce? I have been doing them since sept 1sr,but they were made for me by the detox center i was at that did rbti. I took some quarts when i left, but I'm out now and need to know how to do them. Each online search i do has vastly different instructions
I infuse 1qt at a time. The detox center made them in bulk with a huge coffee maker, but it seems that gerson uses a stove top... Why is that?
So, how do I make 1qt?...bow many TBs of ground coffee, how long to boil, how long to simmer, etc?
Thanks so much- Re: New here and need advice phoenixceliac
11 y
3,367
This is a reply to # 2,108,352Dr. Wilson has great directions on his site and different options. I have used my coffee maker, using organic dark or medium roast coffee. I do 1 tablespoon to 1 cup of H2O, but I started out weaker than that to make sure I could handle it. I easily went up to the ratios I am using now. I do 8 cups of water at a time and use 2 cups for each session and refrigerate the rest. Since my energy when starting on this was very poor, that made it easier. I didn't have to wash my coffee maker parts every night. I don't think you need to stress on how you make it...do what works best for you. But I would buy organic coffee. I use filtered water.
Phoenixceliac- Re: New here and need advice petluvr10
11 y
3,595
This is a reply to # 2,108,426Several sites say that the boiling method is best, but each recipe is different. One i found said to not boil the coffee, but to boil the water, remove from the heat, then add the coffee. The majority say to boil the ground for 3-5min,then simmer for 10-25min,as this removes the aromatic compounds, which can be dangerous.
Here are two different sites:
-this one says to boil the grounds and has some very informative pdfs:
http://alternativecancertreatmentgerson.com/detoxification/enemas/
-this one says to not boil the grounds.
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/116757?#000011
Which is best? I've found these to be very helpful for my mold toxicity and also my mthfr and shoemaker hla genotypes- Re: New here and need advice phoenixceliac
11 y
3,561
This is a reply to # 2,108,456Again, I say don't stress over the method. I go by Dr. Wilson's recommendations on this (and lots of other things relating to NB). He is quite specific on many subjects, but on this he says that the method doesn't seem to matter a lot. I have a coffee maker that has a built-in grinder, and that is what I use. But I've also used my mother's Mr. Coffee maker using pre-ground beans.
IMHO, the internet is a great resource, but we can spend oodles of time looking up various topics, stressing over what's the ideal way to do things, etc. I have that tendency, but with NB, Dr. Wilson is my go-to guy on most things. It's better to just get started rather than keep researching.
Phoenixceliac- Re: New here and need advice petluvr10
11 y
3,588
This is a reply to # 2,108,466I will be moving out of state soon and will be on the road. How can I do my ce if i dont have access to a private bathroom while on the road?
Also, how many TBs of coffee do u use? And what kind of water... Distilled? I'm finding that it takes me along time to expel the fluid, like my colon won't release the fluid. Any ideas why?- Re: New here and need advice phoenixceliac
11 y
3,375
This is a reply to # 2,109,605I doubt you can do ce's while on the road. Sometimes we have to postpone the "ideal" and get back to it asap. I addressed the amount of coffee in an answer to your a few days ago...reread that. I use filtered H2O from my RO sink filter, but use spring H2O otherwise.
Perhaps you can explain what a neurogenic colon means...I don't know, and maybe that makes it harder to release the enema?? Is the nerve damage permanent?- Re: New here and need advice petluvr10
11 y
3,653
This is a reply to # 2,109,651I've been using distilled for the ce. Is that ok to use?
Would adding trace mineral drops be good... If so, how many per qt?
Neurogenic bowel is a nerve damaged bowel.... My nerves are damaged from chronic infections, celiac, and ulcerative colitis, pelvic floor dysfunction, rectal prolapse, etc. Enemas help me go, or else I cant go. The only other thing that helped was being fruitarian, but it's not a sustainable diet- Re: New here and need advice phoenixceliac
11 y
3,321
This is a reply to # 2,109,683You really need a practitioner. All I can do is refer you to Dr. Wilson's site with ?'s about distilled H2O. My dr. said to use either RO water or spring. All I drink is spring, per his instructions, but he approved used RO for the enemas and cooking. On the trace minerals, I have no idea. Again, check out Dr. W.'s site.
If enemas are what keep you "going", I don't know what Plan B will be when you are moving. Does your GI dr. have a recommendation? I do hope you have an excellent GI since you have some very serious issues.- Re: New here and need advice petluvr10
11 y
3,542
This is a reply to # 2,109,694No... Every gi doc only made things worse ("drink miralax like water "...." eat gas Xlike candy" etc)
Isn't to similar to distilled?
- Re: New here and need advice petluvr10
11 y
3,542
- Re: New here and need advice phoenixceliac
11 y
3,321
- Re: New here and need advice petluvr10
11 y
3,653
- Re: New here and need advice phoenixceliac
11 y
3,375
- Re: New here and need advice petluvr10
11 y
3,588
- Re: New here and need advice phoenixceliac
11 y
3,561
- Re: New here and need advice
- Re: New here and need advice phoenixceliac
11 y
3,367
- Re: New here and need advice petluvr10
11 y
3,633
- Re: New here and need advice phoenixceliac
11 y
3,442
- Re: New here and need advice petluvr10
11 y
3,621
- Re: New here and need advice phoenixceliac
11 y
3,569
- Re: New here and need advice petluvr10
11 y
3,528
- Re: New here and need advice phoenixceliac
11 y
3,504
- Re: New here and need advice petluvr10
11 y
3,566
- Re: New here and need advice petluvr10
11 y
3,445
- Re: New here and need advice phoenixceliac
11 y
4,263
- Re: New here and need advice Onwards
11 y
3,681
- Re: New here and need advice petluvr10
11 y
3,419
This is a reply to # 2,107,427Onwards, which program do u feel is best... Arl or tei? How do the quality of supplements differ? The dietary approach?
How do i tackle the parasites?
Have you heard of gotmag (dot) org and Morley and dr liz? Any thoughts on their program and approach thru tei? They seem to break away from the molds and constraints of the programs and use the test as a piece of the puzzle to individualize the program more
- Re: New here and need advice phoenixceliac
11 y
3,547
- Re: New here and need advice Onwards
11 y
3,866
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