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Re: o/t looking for mthfr advice
 
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Published: 12 y
 
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Re: o/t looking for mthfr advice


I wish I knew more than I do, but I'm only one step ahead of you in that I had the test done, other than that I don't know what I'm doing. I guess I can be a good guinea pig and post results when I actually start doing something about the test results.

I just post here from time to time because I'm into all the same things as you guys are doing except for the fact that NB did not work out for me at this point. I have done so many things in the past including the NB diet, but my body went through all sorts of shifts that now I cannot do the diet and the supplements didn't really seem to do much for me. So I guess I am a meta-NB person but not in reality.

Also it looks like this gene testing is is its infancy, both the testing and treatment and I'm seeing schisms on the boards in treatment plans. It looks like I will give L-methylfolate a try, perhaps bh4 but I don't know if I have an ammonia problem. My liver is totally f-ed, and with tons of Liver Flushes and ce's in the past nothing ever resolved, which is why I'm looking for a different solution.

Some of the other test results were interesting in that they predicted my blood type correctly, that I metabolize caffeine very slowly (I have always been very sensitive to caffeine), resistance to norovirus, increased risk for lupus (very interesting because when I was first sick they thought it might be lupus but then I was dx'd with cfs). The methylation panel is what I'm most interested in though I have some CBS defects too.


I think I fall into the ASD spectrum as I might have had these problems from childhood but they went undetected, and supposedly there is a link between this and methylation defects.

I was passing ropeworms, flukes, and all sorts of monsters many years ago.
 

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