Hi Persist ~
You say you are travelling the country to find help. Me too. When I was first affected, I went to Mayo Rochester, and they were of no help. That was 20 years ago. Recently, I began treatment with Dr. Yu in St. Louis. He'll likely treat you. Overall, I am doing a lot better. Besides the parasites, I have diagnoses for 5 auto-immune diseases. They are mostly sero-negative and only occasionally positive. I'm lucky to have an open-minded rheumatologist who is waiting to see if everything we thought was auto-immune resolves once the parasites are fully treated.