Hi!
It's been a hell of a journey but hopefully i'm nearing the end of it. I have had 4 years of fatigue,brain fog, depression, anxiety, malabsorbtion, massive weight loss, and had to stop following my dream of being a musician, the lot BUT i've still kept looking and the other day finally got diagnosed (as soon as i went private and steared clear of the NHS...Who have tried to perscribe me anti depressants over and over again, but when i was finally diagnosed refused to give me the medicines i need...)
Dr sarah myhill (UK ME/CFS expert) found out i don't produce enough stomach acid, have a
parasite blasto hominis, plus very little ammounts of beneficial bacteria, and a rare strain of candida dubliensis found in immuno compromised people - Now i have direction - However after lots of contact on this site i found out that blasto hominis may not be a pathogenic parasite, and is more than likley living in harmony with another more undetectable
parasite which is causing me harm. One of the best doctors in the world for diagnosing and treating
parasites is in New York. I come from the UK from a very poor family and am very poor myself, but am going to do what i do best, which is write songs, and sell them on the internet hopefully raising enough money to take me to New York! (For anyone who is interested in my music check out
http://www.youtube.com/trickthefox
<--- the band i was in and made music for on my good days!
After 4 years of being turned away from doctors and getting stupid diagnoseses so that they could chuck a label on me (bi-polar, untreatable ME...) and months of being on NHS waiting lists for endoscopys, CBT...list goes on...I finally found the cause of my problem, and through listening to my body worked out it was something wrong with my gut, I now have direction. Even if the doctor in New York can't help me, i still have something to go on, and will persue the correct treatment until i can live a full life again!
What i URGE people to do is not self diagnose, i did this for such a long time, and what i just found out, is the supplements that i was spending thousands of
pounds on were actually making me WORSE!! I've spent all the money i work for on - 5HTP,VitaminB,wheetgrass,tyrosine,rhodiola,glucosepowder,
parasite clensers,magnesium,probiotics,ginko,homeopathy,calcium,selenium,vitamin E, vitamin D,light boxes,accupuncture,osteopathy,chyropractors,shiatsu,reiki,coucelling the list goes on and on and on... These things at the time felt like they were helping, but only now with a PROPPER diagnosis can i truley say i'm starting to feel better. These days i'm barley taking anything, I'm following the medically correct diet for my condition (just vegtables and meat, nothing else!) and taking acid supplements to digest protein, and going jogging every day! I finally feel like i'm healing
I must urge every single person to not take my story and do the exact same things i do though. Listen to your body! If you notice some foods set you off then make a food diary, get a stool sample test from genova! if it is post-exersise fatigue, then it may be viral or something to do with your ATP production... But get a qualified doctor to interpret your results! Stop diagnosing yourselves! I did this for so long, thinking i had every condition under the sun (thyroid issues, SAD, hypoglycemia, adrenal burn out etc... sound fammiliar?) but it is so unhealthy! Don't just 'guess' you have candida! or 'guess' you have a parasite/depression/condition This is so dangerous. (Saying that, an anti-candida diet is healthy so can't hurt if you want to try it, but just because you feel better on it doesn't mean you have candida...)I'm broke but managed to find the money to go private and get the tests I felt I needed based on months of me listening to my body and seeing what made me worse and what made me better.
I hope you all are cured one day!! I also hope that I myself am cured so I can be a testiment to help pull others out of the dark place
Please do not guess because you could be making things worse, also things like kinseology testing is highly dubious, get some scientific results! The tests are out there (for anyone who suspects candida get a genova stool sample) Although some aspects of contempary medicine has let alot of people down it doesn't mean that you can't find the answeres there. Get some solid proof then start treating yourself! If one thing lets you down, or you find out you've been doing the wrong thing, don't loose hope! I felt like giving up so many times, but just see it as 'i tried this thing, it didn't work, that means i'm closer to the answer, MY answer'
I promise you will all get better one day
We will all be better one day :)
Love, Hope and Light!
Ren