I'm still trying to get the diagnosis for it too they won't help me or treat me without it. The gi doctor even told me it may not show because it has spread to other areas of my body which it absolutely has. Nervous system, brain, and skin being them. I'm hoping they can do a biopsy of these circular brownish/blackish looking sores I have from this. I have severe hyperpigmentation on my arms, legs, feet, and hands. My left arm is grayish/dark brown. I know this is what I have because of working in the medical field for so long and the supplement came from New Zealand where the disease is very common. I have all the puzzle pieces showing that I have this yet the doctors still won't help me without the definitive disgnosis. I've had to selftreat for the past year.