Re: Another vicitm (Peeling Lips Exfoliative Cheilitis) 1/6/2017 2349836

Re: Another vicitm

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Johnnnnn Views: 5,149
Published: 7 y

This is a reply to # 2,349,834

Re: Another vicitm

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I really dont know what to say. 20 years with this shit, i could not handle this. I would rather kill my self seriously. It breaks my heart to see people suffering for all these years.

People without EC cannot relate of how hard it is to live with this condition.

The issue is that with every test that doesnt give you the answer your hope gets smaller. It just my personal opinion but i think the truth is that besides a specific kind of this condition EC can not be cured.

All of my messges on this board All of my messges anywhere

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Another vicitm Johnnnnn 7 y 5,755
- Hey John, I’m sorry to hear of your struggles w... Gdizzle 7 y 5,423
  - First of all thanks for your reply. It feels good ... Johnnnnn 7 y 5,252
    - hey again, Wow thats quite an extreme option t... Gdizzle 7 y 5,284
      - My EC was a result of my acne treatment so it was ... Johnnnnn 7 y 5,322
        
        Had a similar issue 20-15 years ago. After seeing ... haugheyd3 7 y 5,200
    - Someone who had the EC lip area cut off was sorry ... longterm 7 y 5,369
      - Well i already have tight lips 24/7. And yes i can... Johnnnnn 7 y 5,373
        
        yes your right that your E.C was caused by your ac... RR Educational Gdizzle 7 y 5,791
        
        There are a lot of people in this forum similar to... Abd44 7 y 5,258
        
        Besides a few rare cases, literally no one is cure... Johnnnnn 7 y 5,379
        
        For how long have you had this condition? It ma... sirpreis 7 y 5,504
        
        Thank you for your reply. Well as long as EC is i... Johnnnnn 7 y 5,210
        
        I completely understand. It’s that ”desperation mo... sirpreis 7 y 5,344
        
        No i never tried this. I guess thats another p... Johnnnnn 7 y 5,223
        
        Hey John, you words ring so true with me that y... Gdizzle 7 y 5,193
        
        Thanks for all your suggestions. I will try some ... Johnnnnn 7 y 5,241
        
        I was cured by treatment with oral medication Lamp... haugheyd3 3 y 2,585
- I understand your frustration, but at the same tim... Pariah34 7 y 5,319
  - Well i guess im the only one who is thinking about... Johnnnnn 7 y 5,306
    - Expand the next 20 of 71 messages
      
      I’ve read about people’s lips that have improved a... R Educational longterm 7 y 6,017
      - Well i will try the water fast for 3 days. Thanks ... Johnnnnn 7 y 5,257
        
        these are complications of lip reduction surgery w... Questlf 7 y 5,198
        
        I will try my best to find the ”cause” (even thoug... Johnnnnn 7 y 5,192
        
        AHHHH Johnnn i feel you man! If you do your resear... jsl123 7 y 5,254
        
        I already tried the leave alone method and yes it ... Johnnnnn 7 y 5,199
        
        I am one of the people you mention having had EC f... Tergot223 7 y 5,234
        
        I really dont know what to say. 20 years with this... Johnnnnn 7 y 5,149
        This is the position of the above message within the thread.
        
        Quite possibly it can’t but it can be managed and ... Tergot223 7 y 5,313
        
        If its manageable than tell me how. How do you ”ma... Johnnnnn 7 y 5,264
        
        The jury is still out on my lyme diagnosis as you ... Tergot223 7 y 5,261
        
        Lyme diagnosis? Thats the most random theory ive h... Johnnnnn 7 y 5,069
        
        Lyme disease has been attributed to many cutaneous... Tergot223 7 y 5,588
- OK Guys something super weird happened. I did ... Johnnnnn 7 y 5,323
  - Looks pretty good man. I know when I started getti... Zeily 7 y 5,258
    - They are soft, but feel dry as hell. Anyway it... Johnnnnn 7 y 5,110
  - Your lips look perfect! I can’t fix mine at all. W... Becky92e 7 y 5,004
    - Yeha maybe they looked good for a few days, but th... Johnnnnn 7 y 5,108
      - I started using aquaphor yesterday. This morning t... Becky92e 7 y 5,050
        
        johnnnn and Becky Questlf 7 y 5,081
  - Expand the next 20 of 71 messages
    
    Re: Another vicitm Johnnnnn 7 y 4,873
    - I did the constant moisture and had the same ”new ... AlesiaLips 7 y 4,851
      - Oh no, i saw your thread about your condition beco... Johnnnnn 7 y 4,923
        
        Johnn, I have 2 questions: 1. What happens when y... Cottonmouth 7 y 4,819
        
        I never leave my lips alone longer than 10 minutes... Johnnnnn 7 y 4,752
        
        I think my lips might be the same as yours but the... Cottonmouth 7 y 4,770
        
        yes i know this thread. I started to do some resea... Johnnnnn 7 y 4,796
        
        Butting in to say I do. I believe our dermis, epid... AlesiaLips 7 y 4,854
        
        Well, I am seeing new skin every day (similar to G... Cottonmouth 7 y 4,809
        
        That sounds pretty good. But i would recommend you... Johnnnnn 7 y 4,977
        
        I’m basically a hermit. No social life or anything... Cottonmouth 7 y 7,302
        
        Im always between ”i have to go out” and ”i need... Johnnnnn 7 y 5,372
        
        They definitely look better than mine. Do they loo... Cottonmouth 7 y 4,779
        
        Yup they get red every time i let them dry or for ... Johnnnnn 7 y 4,838
        
        Hello John, I have been a long time browser of thi... Robert223 7 y 4,771
        
        Accutane was a very bad decision. But why do y... Johnnnnn 7 y 4,815
        
        Accutane may have been a bad decision but my acne ... Robert223 7 y 4,724
        
        I’m trying to continue it. Thanks for the encourag... AlesiaLips 7 y 4,760
        
        I can’t help but comment on this I have had dry li... Robert14 7 y 4,820
        
        If it’s an issue with dental fillings it could be ... AlesiaLips 7 y 4,806
        
        Expand the next 11 of 71 messages
        
        Can you post an update on when you get your fillin... Robert223 7 y 4,702
        
        I have chronic fatigue as well and just had cavita... Robert14 7 y 4,647
- Hey man, sorry to hear about getting this conditio... cryogenic 7 y 4,708
  - Hey, this was the acne medication that i used: h... Johnnnnn 7 y 4,880
    - So i did some pictures today. EC is the mos... Johnnnnn 7 y 5,123
      - Johnnn, I think your lips look perfectly nice. You... CrustNoMore 7 y 4,645
        
        Haha no i dont have body dysmorphia. Like i said i... Johnnnnn 7 y 4,593
        
        It kills me because I had nicely shaped lips befo... CrustNoMore 7 y 4,598
        
        So just to show you guys, this is how my lips lo... Johnnnnn 7 y 4,741
        
        And this is how they look like soaking wet. They... Johnnnnn 7 y 5,054
    - Thanks for that. Aknenormin is a brand name for... R Educational cryogenic 7 y 5,449

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Re: Another vicitm

This Forum message belongs to a larger discussion thread. See the complete thread below. You can reply to this message!

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