Re: What is a good diet to eat for sufferers of TMAU?

hello all,

Believe it or not I've been living with some kind of problem for over 30 years that results in either a fish or stool order. At times it could be so bad that the place I happen to be will completely be engufed with the smell. I don't know what the problem is, but people think I'm a discusting pig or some knid of a freak. I don't blame them. This hit me when I was about 18 years old. Just woke up one day like any other day and there it was. I remember one of my friends turning to me and saying "You smell". We all laughed about it... even me. I went hope and took a shower thinking nothing of it. Then the next day came and I quickly noticed people rubbing their noses when I got close to them. I could go on for ever, but I think you'll all know what went on after that. It just never went away and i think has gotten worse. I don't know how i've continued on, hav a wife, and keep a job!

The funny thing is from day one i've never really smelled it. However, every once and a while I do get a wiff of it. I also think it is bad at times and really bad at times. I also don't think this is coming through my skin. I think it's coming from my butt. I always seem to be wet there. I also feel like I never have a complete evacuation when I have a bowel movement. There is almost alway blood with the stool (not in the stool). I think it's the blood that builds up in my bowel that ends up smelling like fish. I don't really know but somehow I keep going on.

I've washed myself for hours on end and actually think i've caused more of a problem. I do kno if I eat any dairy foods I pay for it the next day with much more blood in my stool then usual. I've tried every kind of over the counter digestive product, every type of hygiene product know to man, and have been laughed out of most doctor's offices with an exiting comment of "go home and take a bath." My usual answer is I just did before I came here.

I din't think ther was anyone in the world out there but me with this problem. I'm sorry to say that i'm a little relieved. Sorry... I don't talk about it with anyone. Believe it or not, I finally got the nerve to bring it up to my wife of 20 years, and she said that I was crazy. She actully said that sh doesn't smell thing. I think we're both just used to it. I know it's there because I could see it on peoples faces when we go out to eat, or go to some event. I don't know why my wife doesn't notice the people but if you lookm at them you can tell.

Well, I can't keep going on. I could tell you stories that would make your nose hais curl... no pun intended. I am getting to point where I don't know how much longer I can go on. I'm doing my best to not go anywhere as much as I can. I've even lucked out in my job where I can work from my home mostly. The only reason why I havn't take more drastic measures sooner, is because I don't want to hurt my wife. I do go to bed ever night asking God to take me off this earth. When I wake up the next day, I ask God to please have something happen to me that would take me off this earth so that way I don't hurt my wife becaue of something I did by my own hand.

This does feel good to let some of this out. i'd love to know if anyone out thre talks about the problem openly with their familes, friends, etc. maybe it will go away one day just as unexpected as it came. At this point I'm numb to it and life. I just try to get through the day with out having anyone find out how bad I smell. Tweet