Hello,

I saw your story on this site and I have a very similar story! I'm only 26 and I was diagnoised with CRPS/RSDS in January or so of 2007 which resulted from a metal T-post pounder falling off a shelf in a store onto the top of my foot back on 8/2/06. I have had nothing but pain and am allergic to almost all of the medications that are suppose to help. It started with a crushed foot that resulted in the RSDS in my foot but now I have pain up to my knee and rapidly heading towards my hip. I have a been on crutches for 10 months now and everything is wasting away. I doubt if the pain went away if I would even be able to walk on it. I have horrible pain and the only thing that I am on for it is Lorazepam for my nerves, Temazepam for sleeping, and Percocet and extended release morphine. None of them fully helps, on most days I have to just suck it up and deal with the pain. It goes up into my back and hurts. I've tried TENS units but they don't seem to help or they irritate the pain further, I've tried pool therapy but the warmer water irritates it as well but too cool of water will set it off as well. I've tried several different kinds of pill but again allergic to them and it causes a lot of pain when I go to dental procedures and such. But the one thing that I've found that works well is ACUPUNCTURE. Depending on the time of day (because my pain is always worst be early afternoon to ALL through the night!) I get anywhere from 2-4 days almost total relief, enough relief to where the pain killers can do the rest. Unfortunately I can't go more then once a week otherwise I think that I would be virtually pain free if I could go at the beginning of the week and the end. I don't know about you but I'm incredibly NEEDLEPHOBIC but I deal with it and the slight pain from the needles pricking for the relief. Acupuncture helps me with the swelling and pain which is great. I get a lot of pain in my foot, arch, achilles tendon/ankle, knee, hip, and back and this seems to help all of it. I just wanted to throw that out there as a suggestion because I hate being on all these pills, especially when no one can tell me the long term affects. They want to give me a shot in my leg/foot that will permanently deaded from the point of the shot down and I will never regain feeling again, but not sure if I'm ready for that yet when the acupuncture seems to be doing ok. Just wanted to throw that out to you...you're the first person I've ever seen as young as me with RSDS so it was nice to help you.

~Kat

Find your self a GOOD pain management dr. Ive had it since 93. Tried parriffn bath, soaking in hot tub some many meds Ive forgotten some. Heres a list of meds to ask about, Neurontin, elavil, soma,reflen,ultram, cymbalta,hydrocodone,durgesic patch, also ask for a stellate block or beir block these gave my instant relief stopped the burning for 3days up to 4 weeks.
I have a dorsal cord stimulator that stops the pain on meds of neurontin,soms,reflan,elavil,oxycontin.SOme of these meds Im on 3 x's a day 4 x's a day twice a day
But to be pain free for one day is worth it.
Ask your dr about these meds and others to help with the pain. You must be very honest with your dr so he /she can help. DO NOT BE AFRAID to ask for pain relief.

God bless you and bring you a PAINFREE DAY soon

I also have RSD. I was diagnosed with RSD in my right arm in 2001. I was 29 at the time. I read many articles on it and joined an online support group. I read how badly others were suffering and how there is no cure for RSD.
I was in horrible pain and most days could not get out of bed until I got angry! I stopped reading ALL info regarding RSD and made up my mind to heal myself. I am aware of the mental struggle and tried to accept my disease. Until I realized that there was no need to! It is YOUR BODY ... not RSDs. IT is YOUR LIFE to claim NOT RSDs. The more YOU allow the pain to control you the more it will. The more believe that nothing can be done... nothing will change. The power of your mind is incredible... you can use it to bring about your destruction or salvation.

Have I been cured? NO! But I am no longer bed ridden or in as much pain as I was even though they say it progresses! Although it has spread some over time.

My advice is to get mad and get really determined to take back your life.
There is a fine line between too lil activity and too much. The term no pain = no gain does not apply to RSD but Use it or Lose it DOES APPLY... so you must use your limbs! Do not become dependant on crutches or a wheel chair.
Practice affirmations, self hyponosis DAILY & Meditate! Visualize yourself as being completely healthy. Learn your limitations and practice living happily with them rather than feeling bad about the thing you can't do.
Every night I use a TENS unit ,a heating pad,biofreeze and listen to a self hyponsis CD to go to sleep. Hot showers and baths also help. I get a treatment from a QXCI/SCIO machine as often as possible and it does help. I have sought emotional release therapy and it is also helpful. Myofacial and chiropractic care is very beneficial. I have an inner peace that I had never experienced until I had a Reconnection and especially after reading "The Reconnection" by Dr Eric Pearl.


I've tried numerous meds and nothing works better than the suggestions above.

DO NOT fall prey to self pity nor seek pity from others!
DO NOT USE ICE!! DO NOT HAVE SURGERY!! ( studies have been done to prove that ice and surgery make RSD spread much faster!- for info read
http://WWW.RSDRX.com
)

This is a VERY good RSD website with incredible information -

http://rsdrx.com/


The QXCI/SCIO is an amazing machine that cured one of my close friends of cancer.
Google QXCI/SCIO

READ - The Reconnection By Dr Eric Pearl and find a practioner to Reconnect you.
The benefit is undescribable and unexplainable!

Biofreeze is a pain relieving ointment sold at health food stores - no others have worked for me!


Much Love,Light and Respect!
Plunkins