REFLEX SYMPATHETIC DYSTROPY 
#165324
22 y
7,467
my girlfriend has been diognoised with rsd. i had never heard of it before and i wish i hadn't. this is one of the saddest diseases i have ever seen. in the past i have improved my health and energy with a natural diet and have cured myself of hepititis c through alternative methods. does anybody have any information on rsd as far as ways to recover from it. she is in constant pain and had gone to the doctor to have these giant needles put in her spine. the doctors seem to be totally in the dark concerning this affliction. any insight or info would be appreciated.
paperman- My Daughter and RSD Southern Belle
22 y
6,261
This is a reply to # 26,379Hello Paperman!!
I couldn't believe your post! So very few people have RSD! I am so very sorry for your girlfriend. It is by far the most painful and most misunderstood illnesses.
I would suggest you put RSD into keyword on your computer and you will find a wealth of information. That is where I learned the most.
My daughter, who is now 27, has not had a flare-up of RSD in over 5 years. She became pregnant after the RSD and now has a wonderful 4 year old daughter.
I believe my daughter's RSD went away mostly because she has a powerful mind. You know, "mind over body." At the time her RSD was at its worst was when she was going through some of the worst emotional troubles of her life. She was having major problems in her marriage and her relationship with her Dad was, to say the least, very rocky. Once she solved her relationships with both her husband and her Dad, the RSD just went away. It really was kinda weird, too. Prior to that, she had lost most of the muscle mass in her right leg. The leg itself was noticeably smaller than the left. She described the pain as a fire going up and down her leg. She would scream the pain was so bad. I took her to a specialist (RSD Dr's are hard to find) who wanted to keep her in a hospital there, which would have been 10 hours away. She refused. She could no longer wear shoes. But, being a hard-headed Mom, went to the store and bought her a brand new pair of shoes, took them to her and gave her a month to get better and have her feet in them.
Yes, I was hard on her, but it also gave her the motivation to get better. I am so proud of her today because she is fine. She is the best Mom. She stayed in her marriage and her husband is a different person today. Her Dad, I am sorry to say, commited suicide last summer. She dealt with that in a way that made me so proud of her.
She takes no medication today. We believe her RSD is over and it will not come back again.
Good luck and good health!
- Re: My Daughter and RSD caroljw43
20 y
6,386
This is a reply to # 26,395"I couldn't believe your post! So very few people have RSD!"
I don't know where you get your information but you are so wrong, there are more than 7 million people with RSD, and no telling how many misdiagnosed people are out there that have it and don't know it. It is the leading cause of missed work in the country (undiagnosed pain)
As for my situation, both me and my husband have it, mine after carpel tunnel surgery 3 years ago. My husband has had his since 98 from a surgery to his knee, His 13th knee surgery BTW!!
As for treatment not much has helped either of us, but we are gonna do the liver and parasite flushes to see if they help, sure can't hurt to try, and alot less expensive than the Oxycontin he is on at $125 a script ( that is our cost after ins)
he has had 1 failed infusion pump and they want to do another one, he had to have it removed because he got infections and the incision wouldnt stay closed.
Carol
- Re: My Daughter and RSD waterc ure2
16 y
6,116
This is a reply to # 26,559See & hear the no cost answer to most of the RSD pain and other problems on a WYOU TV news special. It is on watercure2.org. Hear the story of a nurse, Donna Riviello, who got amazing results in two weeks. She is talking to people all over the country. Please listen to her story nd talk to her. all we ask is that you pass it on.
- Re: My Daughter and RSD waterc ure2
16 y
6,116
- Re: My Daughter and RSD waterc ure2
17 y
6,203
This is a reply to # 26,395RSD now appears to be a simple fix. Go to the RSD testimonial page on watercure2.org. Read the incredible testimonial from Donna Riviello & see how quick she got results. Within two weeks she was 75% symptom free. Anyone can email her.
Bob Butts-
[video/audio embedded] Re: My Daught... waterc ure2
16 y
7,076
This is a reply to # 918,138View this CBS affiliate's TV news special on RSD and diabetes. Listen to Donna and Jim tell a northeastern Pa. TV audience how they got their lives back and at no cost.
If you do not get major improvement and at no cost, email me at watercure2@comcast.net. You can also call this nurse who was no longer bedridden in days and got rid of most RSD pain in two weeks along with many other problems. You can email her at D Riv
Please tell everyone you know who suffers needlessly from any so-called incurable illness as in most cases, they are not sick, they are just thirsty. Once you know this is true, please help us pass it on.
Bob
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- Re: My Daughter and RSD caroljw43
20 y
6,386
- Re: REFLEX SYMPATHETIC DYSTROPY #162676
22 y
7,221
This is a reply to # 26,379To anyone is dealing with RSD, or who how knows someone who is. I am a 26 year old women who has had to deal with RSD for over a year.It started at my factory job as severe tendonitious and a sprain in my right(DOMINATE)wrist.I won't go into details but it proceeded up my arm to my jaw,because of disbelief from certain parties.
My entire life has been turned upside down.My wedding put off,children, career,everything...I get so depressed sometimes it is hard to breath,but I still fight.
I have gone through all possible treatments and medications.Believe me the pain is REAL.My advice about medications is this,Oxycontin,Oxycocet,some sort of epileptic nerve medication:tegratol,divalproex...and pantoloc(protects your stomach).Don't take the pain killers if you feel decent but take an over the counter pain killer:advil,or you will regret it!
NO INJECTIONS WORTHLESS.Believe me I had four different kinds.In my injured hand(oh the pain still haunts me).In my neck,vomiting and lost use of my entire right side of my body.Also my spine,none of them were worth it!
I have severe problem with cold but not to bad with heat.What works for you find out!Anything that helps is benificial, textures are tricky. Everything is hard or sharp, learn to avoid.Movement well..Push it, but you will get what your body is ready to give back.
Oh,listen to music, play with your pet, yoga and try to find something to smile about! Its your life. I know its hard but make the best of it.- Re: REFLEX SYMPATHETIC DYSTROPY #163196
22 y
6,363
MoreThis is a reply to # 26,415I was been diagnosed with RSD after major foot surgery 4 months ago. So far I have learned that it is very important to keep my foot and leg active at all times. I have been told to avoid alcohol, chocolate, hot dogs and sausages and to eat a diet high of fruit and dark green vegetables. Stay away from ice and heat as it flares up the RSD. I have not yet moved towards any medications or nerve block treatments but may have to try it if this doesn't get under control soon. Daily physiotherapy has been the best course of action so far but I still experience swelling and pain at the end of each day.
- Re: REFLEX SYMPATHETIC DYSTROPY Arlene
21 y
6,300
This is a reply to # 26,415My Husband has been diagnosed with RSD 2 months ago. The doctors gave him Sympatheic nerve blocks (2) to no avail, the pain was still there. They have prescribed percoset and topamax and oxycontin for him to take for the chronic pain. They really don't do anything for him. He was injured on his job when his left foot was crushed by building materials on the job ( floor truses, 5 of them at 80 pounds each. They said he would never get better and he will have pain the rest of his life. Unfortunately, there is no known cure for this disease. Now they want to insert a Spinal Cord Stimulator in his lower back to subside some of the pain. He has been very depressed and aggitated by this disease and his moods change constantley. I don't know how to help him, all that I can say is he should see a psychiatist for this so they can help him deal with this. His quality of life has dropped dramatically and he can no longer play sports with our children, (who are very young), and I have taken on the roll of mother and father. I would like soke information on how other people dealt with their RSD and what they did to help them get through life as normally as possible.
- Re: REFLEX SYMPATHETIC DYSTROPY Southern Belle
21 y
6,352
This is a reply to # 26,483If it helps you any, my adult daughter's RSD had been in remission for several years until a few months ago. She had an injury which brought it all back. Her right foot will just go out on her when she is walking and she will fall or almost fall. It's kinda scary. She takes neurotin. (I have no idea how to spell that) That helps the pain and she is in constant pain.
What helped her so much before was taking therapy. I am trying to get her to do it again.
I am sorry for your husband. RSD is a very serious condition.
Paulette G.
- Re: REFLEX SYMPATHETIC DYSTROPY Southern Belle
21 y
6,352
- Re: REFLEX SYMPATHETIC DYSTROPY the sunshine
21 y
6,603
This is a reply to # 26,415To all with REFLEX SYMPATHETIC DYSTROPHY:
I have had RSD(CRPS) in my lower left extremity since 2000 and have been struggling with it tremendously!! I have tried all the nerve blocks and have not had too much success with that approach. I was hospitalized on one occasion for 13 days. I have however found a few things to assist me. Number 1: try to keep a positive attitude Number 2: try to appreciate the small things in life that bring you joy & harness that wonderful feeling (i.e. if you enjoy the smell of morning coffee, the song of birds in the morning, the sight of children playing outside, the feel of a nuturing pet) Number 3: surround yourself with positive influences (i.e. positive books on tape to listen to, guided imagery cds such as those provided by Belleruth Napperstack for Pain, search for individuals with RSD(CRPS) and correspond with them) Number 4: try to remember the saying "if you look for the bad you will surely find it" and instead look for the good that you can do Number 5: each morning say "get up, get moving, get going!" Number 6: try a homeopathic approach *Remember You CAN Be Your Best!* - Re: REFLEX SYMPATHETIC DYSTROPY snuggles123
21 y
6,405
This is a reply to # 26,415Hello my name is Robin and my husband has RSD he has suffered for eight years. It came from a crush injury to his right hand. It has been a nightmare for his whole family. He went through numerous surgeries to repair the initial injury to his hand and when the pain continually got worse the doctors tried carpal tunnel surgery, that didn't work so they tried nerve blocks, then a sympathectomy and of coarse that did not work, he now sweats on just one side of his body and none on the other side. the doctors then decided to put him on morphine for 5 1/2 years that is when the nightmare really began he became addicted to it severly and began abusing it and almost died twice from it. The doctor that had put him on the morphine decided that he no longer wanted to deal with the problem so he washed his hands of him. We finally found some good doctors who care and have got the RSD somewhat under control. He is still in pain all of the time, but it is better than dealing with the drug addiction to the morphine. I hope you all the best in dealing with your RSD. We'll keep you in our prayers.
- Re: REFLEX SYMPATHETIC DYSTROPY #75365
17 y
6,097
This is a reply to # 26,530Hi there. I'm sorry to hear about your husbands struggle. I have recently been diagnosed with RSD myself(atleast by one dr). I had carpal tunnel surgery on both hands last summer and as of now, the pain is worse and starting to spread. My question is, how did they make a definitive diagnosis of RSD? Was he sent to a pain specialist or a rheumatologist? The pain specialist I saw said that symptomatically I have RSD, but the clinical exam was inconclusive.
- Re: REFLEX SYMPATHETIC DYSTROPY #75365
17 y
6,097
- Re: REFLEX SYMPATHETIC DYSTROPY #163196
22 y
6,363
- Re: REFLEX SYMPATHETIC DYSTROPY katemn98
21 y
6,673
MoreThis is a reply to # 26,379Hi,
I read your email and thought I would point you to a book by Daniel Haley "Politics in Healing" that I just bought a week ago.
In it, there is a reference to RSD and that one person was actually "cured" of RSD with the use of electromedicine that was developed by Dr. Becker. (page 310) Info can be found at www.alpha-stim.com
Hopefully it could bring some relief.
Good Luck and I hope your girlfriend feels better soon.
Kate- my husband gets ringing in his ear h... margaret111
19 y
6,238
This is a reply to # 26,505My husband says the ringing in his ear is getting worse he works outside
- my husband gets ringing in his ear h... margaret111
19 y
6,238
- My Daughter and RSD Southern Belle
22 y
6,261
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