LYME, LYME, LYME! https://www.youtube.com/watch?v=KFwm0HiuB9s   [End]
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I have systemic whipple’s disease and you’re describing everything I’m dealing with to the ”T” worst thing you’ve ever been through in your life isn’t it and to make matters worse doctors don’t believe a word of it so we’re forced to suffer in silence and try to find some natural remedies that can give us some kind of comfort or relief because lord knows these doctors don’t care to investigate it that’s for sure.   [End]
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Omg i have all those symptoms. I even feel things crawling on me. I feel crawling in my ears and hear a flutter sometimes. I’ve lost a lot of weight always have a headache and forget alot of things very quickly. I have so many more symptoms.     [End]
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If the source came from an ac unit it could be an actinobacteria which is commonly found in silos, soil, corn mills, air conditioning units, and closed stables I have the same systemic infection and issues which came from taking a health supplement called deer antler velvet spray which had the infectious bacteria t. whipplei in it. Hope this possibly helps you. It took me a while to figure all of this out and the only reason I did is because God that and because I was a respiratory therapist for 10 yrs in a major city hospital in Philadelphia. Basically it’s whipple’s disease which can spr ...
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I feel several sympmons, but i think im recently figguring out that im being poisoned, sometimes i feel rashes and it seems that is not a sympton in the list, i also find disturbing that the person im woth is allawys touching me in the nipples and ears, also allaways very in control of the food. My worst fear ia that the person i think is the guilty one is a doctor, and knows my passwaords, this is scary   [End]
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I have had intermittent fatigue and it has been difficult to pin exactly the triggers and hard to know when exactly I can rely on my energy at different points in the day. I have found now, after 3 months of trial of a particular diet I have been able to reduce my fatigue and discovered my biliruben count at the doctors reduce by half. I know this is connected. My biliruben has always been high, upto 28. Not it’s 16. Still not perfect but 50% improvement. This is my diet: - 8am breakfast: 1 tsp slippery elm powder with water, 10mg nadh - 9am glass water - 10am half a sandwich + 1 ...
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I have no energy too the point of sleeping up too 20 hrs a day.anxiety almost constant.heart paputations ,my blood pressure runs 130-150 over 80-90,stomach cramps, . When eating I can barely Finnish a meal without having too run too the bathroom too have bowel movement, my stomachs is constantly bloated. 5yrs ago I moved too a new town and I noticed a almost immediately noticed decline in health. I can’t remember dates, common words, sometimes I can’t even make understandable sentences. Behin my bathroom vanity I found a dry mold on the wall. Also we had the hot water pipe break in the s ...
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As someone who has dealt with a myriad of symptoms of an unexplainable nature including many that are described herein, for over 10 years now, I want to offer up my theories given the medical community is not helpful in trying to identify the sources of the symptoms. Before I share, please note I have no history of pyschological disorders and have never taken any legal or illegal drugs. I work and have worked in a professional legal environment at the highest levels of my field for many years now. The following may sound paranoid but eventually when nothing else makes sense the theory of ...
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I agree   [End]
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My skin is litterally burnt like a chemical burn. My fingernails are thinning hair is falling out. I’ve gotten where I cannot do more than 30 min standing up.   [End]
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I believe you. I experienced a similar situation about 12 yeara ago...It may have been a mold issue in the house...I am extremely aware of metal in mouth feeling...like eating pennies. I sold the place...and the symptoms left   [End]
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I haven’t really, simply because whatever I am dealing with has remained relatively steady for 30 years. As an infant it was ”failure to thrive”. I could see how issues with liver detox pathway could cause parasite issues, so treating for that could definitely be helpful. Thanks for the tip!!   [End]
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Thank you, Grizz! I suspect you are right, and that the Gilbert’s is not only restricted to bilirubin but instead likely involves other enzymes and aspects of the conjugation process in the Liver. I get apprehensive about liver treatments and supplements, not wanting to overstimulate the phase one pathway and over loading my already low functioning phase two pathway. I tried taking some SAMe, taurine, and carnitine (NOW brands) after the Gilbert’s diagnosis, but stopped the second day when I experienced terrible pain in my kidneys. I stopped. I currently taking Garden of Life zinc ...
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Have you considered parasite and Lyme combo? I’m dealing with most symptoms you stated and treating parasites.   [End]
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I’m afraid that somebody lied to you. You have all the classic symptoms of Gilbert’s Syndrome. There is an outstanding website dedicated to GS Symptoms, and weight loss is frequently mentioned: Search this document for all the occurrences of ”WEIGHT” Hold the CTRL key Plus the F key and enter weight into your search term: http://www.gilbertssyndrome.com/symptoms.php Also search this doc for your other symptoms. Also see the home page: http://www.gilbertssyndrome.com/ My advice: Focus on things to treat your Gilbert’s Syndrome. It is hereditary, so cannot be cured, but it can ...
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I am a 31 yr old female. Been through rounds of tests for diagnosis since infancy to no avail. Desperate, I am reaching out online in a last ditch effort for help. Tests for thyroid, celiac, liver, anemia, diabetes, all clear, except for Gilbert’s in the Liver, where I have elevated bilirubin, but that does not account (they say) for my symptoms. Abdomen CT clear. At 5’3 and 88lbs (for the past 15+ yrs), I am chronically underweight, the only skinny one in my family. As a child and young adult I had frequent fainting episodes - a couple of times a month on average until mid-twenties, a ...
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I has all the same symtoms and its been for at least 3 years I’ve never been checked for lead poisoning or parisites!   [End]
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And what do you mean waste?? f*** off.   [End]
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Forbetter all the tests were negative, im still doing lots of testing.   [End]
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Yeah when you’re are very sick u are surely going to think of the tax payers instead of u getting healthy..   [End]
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Massive waste of tax payers money, comes to mind.   [End]
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Has anyone with Gilbert’s experienced a burning smell coming from them?   [End]
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I have a few plastic fillings, never had any amalgams. One wisdom tooth pulled out 1,5 - 2 years ago. No root canals/fillings. But i will check the dental part with a holistic dentist anyways just incase, but for now im going to focus on infectious causes like parasites :)   [End]
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The two causes that most docs miss are parasite/dental   [End]
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Hey, nope i have never felt any movement, i have no clue what im suffering from but i do suspect some parasitic/protozoa/bacterial infection, hoping the tests ive taken will reveal something :)   [End]
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It sounds like u have a doc who actualy cares! So happy for u! Hope u have the species he is testing u for. Do u have large scattered flukes or ascarias? Can u feel the worms moving? I think most the tests he ordered are for the microscopic kind, but u may have both microscopic and lymes and other larger species also. Let us know how the tests come out!   [End]
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Hey all. For those of u that still remember me and my story :), here is a little update of whats going on. I recently got back from my doctor, he ordered aloooot of tests for me. These are the ones he ordered for me: Blood serology: Lymes Blood serology: Legionella Blood serology: Toxoplasmos Blood serology: Strongyloidiasis Blood Test: Quantiferon ( Tuberculosis etc) Blood serology: Cytomegalovirus (Only active infection not carrier) Blood serology: Epstein barr-virus (EBV) (Only active infection not carrier) Blood serology: Herpes simplex virus (Only active infecti ...
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I lost 10lbs of weight very strangely--the last few lbs of which while I was trying to gain weight. A Metametrix stool test reported two parasites. They matched the unpleasant symptoms such as having to go to the men’s room on short notice twice or more per day even though I had a long history of being very regular. After a week of medication I was back to normal. Will you have difficulty getting appropriate tests and if positive, appropriate medication?   [End]
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White stool... Yellow eyes... Bile blockage in liver or gallbladder? Scarring of bile tubes? Viral Hep? Cirrhosis? Liver Infection? I think you need to see a ...liver doctor... Parasites are not fitting very well. I had an unbelievable case of parasites, yet my liver still worked (mostly). In any case, your body cannot take much more of this, how far below 100 pounds are you? You are loosing weight because you are not absorbing ...any... fat soluble vitamins. Matt Mayo: _____ Bile is a digestive fluid produced by the liver and stored in the gallbladder. Stool gets its ...
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I haven’t got checked yet, but that makes me feel better knowing it’s probably candida or parasites. My alt was slightly raised over a year ago but I had no other symtoms. Don’t have s history of alcohol or drug abuse.   [End]
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Yeah ive done some testing for the liver and pancreas, also scan. Have u gotten a diagnosis? :)   [End]
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Thanks! Is there any instructions how you use it rectally, dosing?   [End]
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A quote on ivermectin for strongyloides from the CDC (cdc.gov) ”Ivermectin, 200 µg/kg per day orally until stool and/or sputum exams are negative for 2 weeks. For patients unable to tolerate oral therapy, such as those with ileus, obstruction, or known or suspected malabsorption, published case reports have demonstrated efficacy with rectal administration.” Hanko, I believe rectal administration bypasses the liver and would not harm the small intestines. It is highly effective. If you have strongyloides, you must kill them off before your bowels can heal. It took me several m ...
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I have very similar symtoms as you. Have you had your liver or pancreas checked?   [End]
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Do you know any way i can take antimicrobials so i dont strain the liver and lose weight?   [End]
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Probably because colostrum has growth factors that build tissue and muscle. Antimicrobials cause die off and kick up toxins that strain the liver. When the liver is strained it doesn’t make IGF-1 growth factors as much. Probably why you gain weight from colostrum. I use colostrum myself to keep everything healing while I cleanse my body.   [End]
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Ive recently had Fresh stool (within 1 hour) PCR testing for Microsporidia, GIardia, Entamoeba histolytica, cryptosporidium, Blastocystis, dientamoeba fragilis and a blood serology for entamoeba histolytica. All came back negative. Ive done these at the serum staten institut with christen rune stensvold, a world famous parasitologist.   [End]
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Ive noticed the more i use antimicrobials as garlic, goldenseal, oregano oil, i lose weight. The only thing that works to hold my weight is colostrum, alot of colostrum   [End]
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Its yeast.   [End]
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Well, I’d say cancer is the ultimate and most likely its not cancer. Detoxing the body can cause dramatic weight loss very very quickly. Its because most toxins make you hold on to weight and when you remove cellular/body toxins the weight comes off immediately. Other weight loss causing things are parasites and adrenal fatigue. When you cleanse it burns the adrenals... If theres parasites; parasites also work the adrenals. Burnt adrenals=weight loss.   [End]
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Gardia is one that i had lost over thirty pounds in a three month time frame - i had pain in gut no daiherra but would hurt when i ate - I thjink the parasite feeds when you eat and does a dormant phase or feeling when not- took three months of going to docs stool testing showed negative but finally convinced them to give me the medication for it and i got better - my neighbourhood was affected - five others plus me - they all got treatment early. sounds like your liver is working harder then it should or not working well,I certainly would do all testing to rule things out then go from ...
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Sadly many types. Officially diagnosed through Diagnostechs with ascaris, trichinella, toxoplasmosis. A LLMD diagnosed tricuria tricuris, another Dx’d lung fluke. From the initial parasite cleanse it was clear that I also had tapeworm. How do many? I was on 43 weeks of antibiotics in my 2011 pregnancy with GERD medicine which made my stomach acids nil (not killing off parasites). Then steroids and just a sad story thereafter to present.... Whatever you do make 100% sure you don’t suffer from permeable intestines with parasites and take steroids. My doc always thought IBD but Ya.... ...
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Thank you so much for telling me this. What parasite did you have?   [End]
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I was always 127 lbs but could hardly maintain 110 lbs with parasites and a PEG tube. Whatever you do, don’t advise doing what I did and taking steroids. That caused a real death sentence for me with now a hyperinfection. I am not a troll. I am a person who always had negative O&P. Those tests are so unreliable but I didn’t know that at the time. Parasites can cause extreme diarrhea and weight loss. I had abnormal duodenitis and small bowel atrophy and microscopic colitis. If that sounds familiar please be forewarned that parasites could be the problem. Hope you feel better soon!   [End]
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The only thing that has found something was The scio machine but im not sure i trust it. It found amoeba/giardia entamoeba histolytica   [End]
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Ive done most tests out there. They cant find anything :(. I just turned 20, this started one year ago. Symptoms are: Intermittent diarrhea/constipation, undigested stool, sometimes mushy yellow stool that sticks everywhere, black under eyes, slight yellowish Tint on eyes, the doctors said gilberts which i dont believe for a second. Ice cold hands and nosetip, slight bloodshot eyes, white tongue, white lines over nails, severe weight loss, very foamy urine with slime afterwards in it, eye floaters, long term swollen lymph nodes in groin, not much but u can feel em.   [End]
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Cancer will cause an immediate rapid weight loss. If you have experienced this amount of weight loss for no obvious reason, you need to take it seriously and tell a doctor about it. There are simple tests for bowel cancer. If you are asking if intestinal parasites would cause this amount of weight loss over a short period, I very much doubt it, but I could be wrong.   [End]
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Guys is there many gastrointestinal diseases you can lose 35% of your bodyweight in a short time?   [End]
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it’s been five years. are you still going thru this? I need to talk to you.   [End]
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I have every single sign/symptoms you have listed. I also have a reoccurring UTI. I am so miserable. My symptoms started at least a year ago. I no longer seek medical attention because it’s useless. Like you mentioned my tests are always normal. I have so much more to say but am unable to continue right now. Please contact me!   [End]
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google fluoroquinolone toxicity. cipro, levaquin, avelox, floxin etc. or look up fluoroquinolone toxicity group on facebook. you may be dealing with this. i am and my symptoms are identical   [End]
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Does anyone else have no/ low libido caused by direct correlation to Gilbert’s ? Just curious how the sex drive of others are effected by this disease.   [End]
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oh and I forgot I also have gilberts syndrome. better check this out: http://www.curezone.org/forums/fm.asp?i=2269351#i   [End]
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I give you a good advice - DONT TAKE IT ANYMORE. Look up the critical infos about MMS instead, I collected some in my german forum: http://meulengrachtforum.altervista.org/forum/index.php?topic=901.msg3762;topicseen#msg3762   [End]
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Dear Forum, I think you should better check this out: http://pubs.sciepub.com/ajmcr/3/4/9/ As far as I can see this is the first scientifically documented case of a “quasi” gilbert syndrome cure by diet / nutrition alone, aka by this paleolithic (ketogenic) diet!!! Please test this and/or forward this to other gilberts syndrome sites! Best regards, medicineman9 P.S.: This is also supposed to have a beneficial effect on lyme disease / borreliosis.   [End]
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Hi, I am 39 y male from Australia and I have been having problems with my renal system for the last 3-4 months , I am unable to pass normal flow of urine and its very less compared to the fluid intake ,Some days I have more urge to go more frequently with large amounts of urine and have persistent kidney pains and back pains . I have been to my g.p and othe doctors too have had numerious tests but nothing has been diagnosed . Now this may sound strange but I have a doubt that my partner is giving me something as we are having marriage problems and I have a fair bit of property in my name ...
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I’ve been reading about this and have been poisoned for over 3 years, I’ve eliminated all but two possiblities, mabey somthing is in my food or water, which is what I thought. or what I just realized was those sneaky bistros broke open a thermometer and poured the mercury in the back of my sweatshirt. It obsobed into my shirt where it vaporized and I inhaled, the mercury vapor dose not vent away as it sits in the air where it was vaporized. This is at a poker game and they use this to make me stupid for the upcoming poker game’s. I will now test for mercury and it seems to be the most expl ...
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head related issues-dental is usually the major issie. see a biological dentist   [End]
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MrSavvy, read this whole thread, to get some ideas: http://www.curezone.com/forums/am.asp?i=2219983&s=1#i1 WS   [End]
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First post, but I’ve been browsing this forum for a while now. I need help!! I have some problems, I know they’re all connected, and doctors are dumb; I’m hoping you all can help me connect the dots and fill in the blanks! I have been diagnosed with the following: Gilbert’s Syndrome, IBS, Infectious Mononucleosis, Kidney Stones, and Seborrheic Dermatitis. I haven’t been diagnosed for the following, but I know I have these issues: Oral Thrush (white tongue, white roof of mouth, occasional cracking corners of mouth, ”oral thrush spit test” definitely tested positive), Tinniti ...
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Did you find out what it was. I have the same thing only it’s every Friday after spending 4 hrs or so playing poker with iffy ppl and rarely otherwise. By iffy i mean sone smoked meth and I made them mad and one day I start feeling this poisoning. I’m convinced these guys are somehow poisoning me by air or touch and it’s not a medical issue. I’m pretty sure it’s killing muscles like the brain! Killing the brain and lowering iq is like slow murder! I’m no longer sharp at 28 I’m so mad, To think some body has this power over me makes me so mad I never understood anger like this! My life is o ...
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I have these symptoms you speak of, and I am nauseated a lot, yesterday I turned grey then really pal and had to be taken to the hospital, they found nothing, vitals all normal. I have a gritty substance that has been showing up on the surface of my hot beverages being served to me by someone close. I have a sample on the end of a fork that I saved in a plastic baggy, but I can not convince anyone to test it. I spoke with doctor and he said they could not and I even had the police called and they said I had to press charges before anything was confirmed and I did not want to do that. They ...
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I Have Some Of The Same Kind Of Symptoms, Idk Why I Have Been Feeling Like This Its Been Going On Since About This Past July 2014, I Got Real Real Sick Could Not Even Barely Walk Went To Doctors Theu Checked Me And My Blood Pressure They Said It Was Not Bad But It Wasnt Good Either But Never Gave Me Any Diagnosis Just Said For Me To Stop Drinking Soda And More Water (I Was Like Ummm Ok) Weird So I Did I Got Better But Not Completely And All Of The Sudden Same Exact Thing Happen Again Been Laid Up In Bed Could Barely Walk Etc.. Same As Back In July 2014 I Get Better Then Right Back Down Ag ...
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See table 1 for serum fluoride levels from long term use of various fluoridated triazole medications. Fluoride Excess in Coccidioidomycosis Patients Receiving Long-Term Antifungal Therapy: an Assessment of Currently Available Triazoles George R. Thompson, III,corresponding authora,b Derek Bays,a Stuart H. Cohen,b and Demosthenes Pappagianisa   [End]
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plz help me   [End]
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all of the above could’ve very well been written by me. I’ve been diagnosed: crazy. ever been tested for lymes? many symptoms are uncanny.   [End]
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Its called vitamin deficiency disease coupled with a toxic Diet. If that makes sense to you, contact me with age and symptoms. …dez...   [End]
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Doctor did blood test, i have severe fatigue and restless legs: (very low) hemoglobin 6.5, yet, he says my iron level is normal, what could cause this?   [End]
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Maybe some extra magnesium or a stool softner until your body recoups from the cleanse.   [End]
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can a child take doxycycline a toddler how do we get it . they performed a test on me for tick borne dieases just the other day still waiting on results.. i do not know how to find a llmd doctor in southern indiana   [End]
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i agree with you and her i a so freaked out it seems like my symtoms are getting worse day by day . i have a daughter that is 2 years old and she is haveing the same things this all started a month ago . we also have dilated veins that seem to get worse every day or every few days i dont know what this is . oh i also have a cold rain tingleing feeling all over body any my forhead and lips are going numb . i do not know what to do and i cannot not get any doctors to listen if you all have any suggestions please feel free!!! thank you so much in advance !!!   [End]
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maybe the dose is ok or maybe it will take a number of days or weeks for sfx to build. That is what happened to me on less than 25mg.   [End]
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100 mg of DHEA is lot. Dr. Lam suggested 1 pill 25 mg. Klauss. P.S. I do not feel anything when taking DHEA.   [End]
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not to be afraid of, and take it with good and healthy source of fat to avoid having low HDL or cholesterol. Methylation problems, maybe b12methyl 1-4 mg,folate 1mg, 100-200mg of p5p and a general coenzymed B vitamin with taurine and selenium,zinc can push your cycle of methylation a step further (from self experience).   [End]
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Yes that is a big dose. ”Sulfur intolerance” can mean different things, including thiols (SH). I doubt that the typically desirable sulfate would be part of such a test. Its potentially problematic precursor, sulfite, might be part of such a test.   [End]
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7-keto supposedly doesn’t convert to estrogen/testosterone. I don’t know how true the statement is, but from what I read, 7-keto causes less acne than DHEA.   [End]
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I take 100mg in capsule form from a compounding chemist. Thanks for the feedback.   [End]
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Cheers!   [End]
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Hi Joe, Food for thought- thanks. I do have a methylation defect but have been tested for histamine & sulfur intolerances & they don’t seem to pose a problem. I’m on 100mg of DHEA so that seems quite high.   [End]
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No I haven’t. I thought that was DHEA...   [End]
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Why not try pregnenolone, the grandmother steroid adrenal hormone, instead? The body makes DHEA from preg. With CFS/ME you’d probably benefit from the extra preg; however, your body might not be making all of the conversions at a normal rate to allow you to make enough hormones at the end of the production lines, for example cortisol. http://en.wikipedia.org/wiki/File:Steroidogenesis.svg Note DHEA is not abbreviated in the image. Have you gotten a good hormone panel? It seems fairly common for people in heavy metal detox groups to report that they don’t tolerate normal doses of ...
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