yes , most drs will say it does not exist. my dr said it is controversial. That is true. That really only confirms even further that drs that tell you to get fillings removed can be just as off base. Again, we must our own sense I believe. Afterall , I don't care if a dr tells me it does not exist , I am suffering with it and they will not convince me it does not exist because of that. Besides most say only aids and cancer patients get it...so they are admitting it exists...just not that the general public can get it.