Thanks a ton for sharing your progress and general info about the condition. I just found out about this rope worm business some six weeks ago, and I'm so glad I did.
This whole thing is so weird I almost can't believe it. But I see these strange and disgusting things leaving my body, and as they do my symptoms keep improving. It has taken pretty much every fiber of my will power and energy to even put a small dent in this beast and mostly I feel like I'm fumbling around in the dark.
I believe enemas have been key for me, in combination with nutrition, vitamin/mineral supplements & herbs. There is so much to write about this, but this is not the time and place.
I too think about others suffering. It would be nice to have all this knowledge and experience collected in one place. Maybe we can create some kind of web site dedicated to this issue?