Re: My story (Peeling Lips Exfoliative Cheilitis) 6/18/2012 1953146

Re: My story

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Published: 12 y

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Re: My story

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Nobody wants to have this. Noone. We are all suffering from this. What I was trying to say was.. please try not to make every single post about what a shitty condition this is and what "shitty lifes" we all have now (I've read a lot of your posts and most of them are about this "shitty life"). We all know how bad this condition is. It's important to stay positive. And if you can't do that, please try not to make other peoples situation even worse by being so negative.

Just my two cents..

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austria fregasedo 12 y 24,694
- There is one austrian guy in the Facebook group, I... sirpreis 12 y 24,634
  - Hi, I live in Germany and also lived in Austria. T... Wood Pigeon 12 y 24,511
    - Hi Wood Pigeon, are you happy for having shitty li... Vunk 12 y 24,552
      - My story Wood Pigeon 12 y 24,943
        
        Which humid, tropical country did you used to live... #128628 12 y 24,667
        
        Humid, tropical country Wood Pigeon 12 y 24,573
        
        Re: My story Vunk 12 y 25,089
        
        vunk my friend! are your lips always like that? i ... jsl123 12 y 24,557
        
        Wow, is that what your lips look like at their wor... sirpreis 12 y 24,467
        
        I hope that I am nearly healed, it would be perfec... Vunk 12 y 24,504
        
        yeah Vunk, i think this is some type of psoriasis,... fregasedo 12 y 24,524
        
        vunk you are nearly healed that is what happens at... jsl123 12 y 24,456
        
        I have thin, white flakes like this. It does not g... #128628 12 y 24,733
        
        Do you think EC in general is a case of psoriasis ... sirpreis 12 y 24,454
        
        My lips look somewhat like this: The crus... sirpreis 12 y 26,703
        
        Thank you fregasedo for this expression of hope! :... Vunk 12 y 24,656
        
        Those are my lips. I’ve posted one or two pictures... sirpreis 12 y 24,511
        
        @sirpreis: i don’t claim it IS psoriasis, i rather... fregasedo 12 y 24,541
        
        Well said. Sounds reasonable. I would rather like ... sirpreis 12 y 24,395
        
        Expand the next 26 of 46 messages
        
        hey sirpeis your lips are pretty much similar to m... jsl123 12 y 24,506
        
        Yep, it definitly sucks! I don’t really know ho... sirpreis 12 y 24,201
        
        Yeah it definitily sucks and like you say it is ex... Vunk 12 y 24,429
        
        Nobody wants to have this. But we do, unfortunatel... sirpreis 12 y 24,190
        
        Well I heal properly on all parts of my body excep... Vunk 12 y 24,511
        
        Nobody wants to have this. Noone. We are all suffe... sirpreis 12 y 24,382
        This is the position of the above message within the thread.
        
        I am not negative at all I live life to the fulles... Vunk 12 y 24,372
        
        vunk i understand your frustration i am same age a... jsl123 12 y 24,371
        
        Hi jsl123 you can disturb me whenever you want I h... Vunk 12 y 24,439
        
        Wow, your lips have improved a lot indeed! And yes... Wood Pigeon 12 y 24,277
        
        Yeah but I am still waiting, it has been nearly th... Vunk 12 y 24,626
        
        hey vunk i am french but i do not live in france... jsl123 12 y 24,305
        
        Hi again, Vunk, sorry for the late response. I’m a... Wood Pigeon 12 y 24,103
        
        Hi Wood Pigeon, Wow! Just curious, how can you ... Twopolarbears 12 y 24,143
        
        Btw, what’s the man holding in your avatar? Just c... Wood Pigeon 12 y 24,089
      - Re: austria my lips 12 y 23,510
    - Hey, where in Germany exactly? :) sirpreis 12 y 24,416
      - Hi, I’m in Berlin. How about you? Wood Pigeon 12 y 24,290
        
        Göttingen. We should arange a meeting if we find s... sirpreis 12 y 24,366
        
        yeah, we could include austrian sufferers (if i fi... fregasedo 12 y 24,500
        
        Yea. We’d have to meet somewhere in the middle tho... sirpreis 12 y 24,311
        
        Sure, all Europeans (and non-Europeans living in E... Wood Pigeon 12 y 24,312
        
        Yeah, a meetup sounds great. I’m not German though... Wood Pigeon 12 y 24,285
        
        Sure that’s ok. It would probably be a pretty smal... sirpreis 12 y 24,166
        
        where in austria did you live? fregasedo 12 y 24,440
        
        Vienna. Where do you live? I love Austria. Wood Pigeon 12 y 24,267

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Re: My story

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