Re: My story (Peeling Lips Exfoliative Cheilitis) 6/18/2012 1953107

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Re: My story

Peeling Lips Exfoliative Cheilitis

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sirpreis Views: 24,189
Published: 12 y

This is a reply to # 1,953,080

Re: My story

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Nobody wants to have this. But we do, unfortunately, have it. I know how hard it is (I've started taking antidepressants), but we have to accept this and try to stay positive. As another sufferer said the other day: "We have to fight EC in our minds before we/our body can't fight the actual EC". I think this is very true. Our mind sometimes plays a big part in our health and healing.

Sorry for saying this, but I would suggest you to try being a little more positive in your posts, and also in your life, which of course is difficult, but that's the way it is right now. If you can't manage to be a little more positive, think about talking to a psychotherapist (which I'm doing as well now).

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Expand the next 20 of 46 messages

austria fregasedo 12 y 24,694
- There is one austrian guy in the Facebook group, I... sirpreis 12 y 24,634
  - Hi, I live in Germany and also lived in Austria. T... Wood Pigeon 12 y 24,511
    - Hi Wood Pigeon, are you happy for having shitty li... Vunk 12 y 24,551
      - My story Wood Pigeon 12 y 24,943
        
        Which humid, tropical country did you used to live... #128628 12 y 24,667
        
        Humid, tropical country Wood Pigeon 12 y 24,573
        
        Re: My story Vunk 12 y 25,088
        
        vunk my friend! are your lips always like that? i ... jsl123 12 y 24,553
        
        Wow, is that what your lips look like at their wor... sirpreis 12 y 24,466
        
        I hope that I am nearly healed, it would be perfec... Vunk 12 y 24,503
        
        yeah Vunk, i think this is some type of psoriasis,... fregasedo 12 y 24,524
        
        vunk you are nearly healed that is what happens at... jsl123 12 y 24,455
        
        I have thin, white flakes like this. It does not g... #128628 12 y 24,733
        
        Do you think EC in general is a case of psoriasis ... sirpreis 12 y 24,453
        
        My lips look somewhat like this: The crus... sirpreis 12 y 26,702
        
        Thank you fregasedo for this expression of hope! :... Vunk 12 y 24,655
        
        Those are my lips. I’ve posted one or two pictures... sirpreis 12 y 24,511
        
        @sirpreis: i don’t claim it IS psoriasis, i rather... fregasedo 12 y 24,541
        
        Well said. Sounds reasonable. I would rather like ... sirpreis 12 y 24,393
        
        Expand the next 26 of 46 messages
        
        hey sirpeis your lips are pretty much similar to m... jsl123 12 y 24,506
        
        Yep, it definitly sucks! I don’t really know ho... sirpreis 12 y 24,201
        
        Yeah it definitily sucks and like you say it is ex... Vunk 12 y 24,428
        
        Nobody wants to have this. But we do, unfortunatel... sirpreis 12 y 24,189
        This is the position of the above message within the thread.
        
        Well I heal properly on all parts of my body excep... Vunk 12 y 24,509
        
        Nobody wants to have this. Noone. We are all suffe... sirpreis 12 y 24,382
        
        I am not negative at all I live life to the fulles... Vunk 12 y 24,372
        
        vunk i understand your frustration i am same age a... jsl123 12 y 24,370
        
        Hi jsl123 you can disturb me whenever you want I h... Vunk 12 y 24,439
        
        Wow, your lips have improved a lot indeed! And yes... Wood Pigeon 12 y 24,277
        
        Yeah but I am still waiting, it has been nearly th... Vunk 12 y 24,626
        
        hey vunk i am french but i do not live in france... jsl123 12 y 24,305
        
        Hi again, Vunk, sorry for the late response. I’m a... Wood Pigeon 12 y 24,103
        
        Hi Wood Pigeon, Wow! Just curious, how can you ... Twopolarbears 12 y 24,143
        
        Btw, what’s the man holding in your avatar? Just c... Wood Pigeon 12 y 24,089
      - Re: austria my lips 12 y 23,510
    - Hey, where in Germany exactly? :) sirpreis 12 y 24,416
      - Hi, I’m in Berlin. How about you? Wood Pigeon 12 y 24,289
        
        Göttingen. We should arange a meeting if we find s... sirpreis 12 y 24,366
        
        yeah, we could include austrian sufferers (if i fi... fregasedo 12 y 24,500
        
        Yea. We’d have to meet somewhere in the middle tho... sirpreis 12 y 24,311
        
        Sure, all Europeans (and non-Europeans living in E... Wood Pigeon 12 y 24,312
        
        Yeah, a meetup sounds great. I’m not German though... Wood Pigeon 12 y 24,284
        
        Sure that’s ok. It would probably be a pretty smal... sirpreis 12 y 24,165
        
        where in austria did you live? fregasedo 12 y 24,440
        
        Vienna. Where do you live? I love Austria. Wood Pigeon 12 y 24,267

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