Re: Unfortunate event -

Thank you for your sympathy K, I just never thought I'd go at this age, especially not to probably the worst disease imaginable. I am trying to get to grips with everything, but am resigned to the fact that for rapidly progressing types like mine there really is nothing you can do. I am pretty sure that had I not done this cleanse in March, I wouldn't be where I am today, and it is my fault for not making myself have regular BMs in that month. Logically, if it took 4 months to get sudden onset of symptoms (1/3 of motor neurons dead) then in 8 more months all of them would be dead. This is pretty much the speed which this is progressing. Yes I'm aware I may have ended up developing ALS at some point, but not now and not this fast. There are no Lyme docs in Australia, and no neuros here would go near this with experimental treatments like anti-virals, IvIg, and so on. As much as I want to be positive, I know what lays ahead in the coming months, and I am seriously considering ending everything to spare myself and my family the horror of the final stages of this. People may think this is wrong, but if anyone was in this position with a unrelenting terminal illness, they would agree that going peacefully on your terms would be the most humane thing to do, and modern society needs to wake up and address this. Sorry for the morbidly depressing rant, but unless someone has lived through it like yourself and myself, they can not possibly understand what is happening to us. Give me a disease which I have some hope with, cancer stroke anything, not this. I can't think of anything worse than an alert mind in a motionless deteriorating body. The only solace I have found has been in online ALS forums, but even here I feel like a balck sheep as the youngest person with this illness. Tweet