Re: Unfortunate event -

Hi there - I wanted to respond to your post.

First, please let me say how sorry I am about your ALS diagnosis. My Mom died of ALS. There are no words to describe how horrific the disease is - to the person with it and to everyone he or she loves. For me, it's been 9 years since my Mom died, and I am still damaged. My Dad, who was married to her for 35 years, has been walking dead since she died as well. So, please konow, I do have a sense of your pain.

While we were going through the ALS process - both just to get to the diagnosis and then post diagnosis to prolong or even treat my Mom - we tried all kinds of things. The sad fact is ALS is an aggressive disease killing your voluntary muscles... I don't claim to be a scientist of any type - Rhumatologist, DNA expert, etc... but I really think that your disease would have come about whether you ran marathons and were the most physically fit person, or someone who was morbidly obese and ate at Burger King everyday, or someone in between who used Humanaworm.

It's a mean disease. And, it is not fair. And, I'm so very sorry.

K