ALS is often misdiagnosed. Or rather, the root cause if it can be a pathogen or pathogens. The reson I know this is because my doctor's sister had what they thought was ALS but was really Lyme and co-infections.
Also, some symtoms you describe to me sound like BArtonella, another common and painful co-infection that is closely associated with Lyme.
I encourage you to seek answers. I know of many people who were diagnosed with ALS only to find out they were infected with lyme and with long term treatment got better. Lyme can mimic als, MS, fibromyalgia, lupus, and a host of other diseases. I encourage you to get a western blot test through Igenex and find a lyme literate medical doctor to see if this is the case with you.
LAstly, my lyme symptoms really kicked in when I did a parasite cleanse too.