Re: Autism & Mold - *edited*

Hello again.

Re:
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"When I finally managed to reveal the organism -after a couple of long years of study as I recall-, and when it finally 'hit me' that this thing was attached to my bone structure itself, with undeniable evidence I would have LOVED to disprove, Reality set in: This thing was growing inside of me, and there was "little chance" to ever get it out, according to all the information I had gathered and learned. Maybe you can NOT imagine the Shock. Well, maybe you can. It was a truly frightening moment, a blood-chilling realization, this one. To this day I try to forget the feeling."

I absolutely, without a doubt, believe you. Yes I can imagine the shock. How did you get out of this?
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'Luck' must have had a lot to do with it, I have to admit -if there's ever such a thing anyway-. After I revealed the organism, it became my 24/7 work to try to identify it. This took me around one more year of HARD study -I think, if I remember correctly-, but finally I 'pinned' it down to the species level, which I thought gave me enough information to deal with it. Boy, was there a lot more to learn.








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I promise I won't consider it medical advise. I understand disclaimers.
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Oh, no problem there. Even if I wanted to anyway, I couldn't explain to you through posts all the measures I had to take to deal with this thing. You see, during the process of identifying it, I tried to see how much around my nose/nostrils area this mold had extended, so I performed some simple tests. When it became evident that 'simplicity' wouldn't be enough in this case, I had to figure out a way to determine exactly where in the area the mold was. Eventually, a small device helped me with this. What I discovered then horrified me even more.

It seemed like there was a network of these organisms extending well beyond the sinus cavities. How far beyond I dare not say it at this time, because I still consider what I found to be 'possibly ambiguous evidence' [after all it's just a "test" device, a laboratory 'gadget' of mine under development], and I don't want anyone to 'freak out' on that kind of untested evidence, despite the great deal of clinical documentation there is that appears to suggest this as well.

So anyway, despite the then ambiguous possibility, that time around I decided to assume on the side of error [for safety], and to consider the 'likely' possibility that I was being overriden entirely by a huge 'mat' of these organisms doubtlessly, albeit really slowly. It would take them years to cover me up entirely, maybe, but that they would do so eventually seemed a Mathematical Statement. So I knew then that there was no turning back.








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Are you still living with it?
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I don't think so, Thank God [but in one way or the other, maybe, aren't we all?]

I stopped taking follow-up samples about two years back [I followed up the process for a LONG time, until I could sleep quietly and sometimes dream again]. All the follow-up samples became 100% negative all the time, so I consider that at least for now, I'm "ok". I say it this way because how's one to know if that thing is hiding deep inside somewhere, as some kind of 'isolated' Foci that I'm unable to find? I mean, I doubt it Mathematically, but one never knows, right? [I've also come to learn a few things that have me thinking in some 'curious' direction regarding it]








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How did you convince your doctor?
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Doctor? What doctor?
I was A L O N E.









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Did the MD trust your diagnosis because of your profession?
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No MD worthy of his name would or should ever trust/consider the diagnosis of an 'unqualified' person [without a medical degree or equivalent displayed expertise] -let alone a patient-, I think, and I understand them completely for acting this way. What I see wrong with this behavior, however, is that [most - let's say most] wouldn't even consider THE POSSIBILITY of an occurrence if you told them so, and they would imperceptively refuse to look at any possible evidence you brought to them even if it hit them right in the face. I say this based on people's unfortunate experiences with medical doctors. What 'possibility' is this that I think they won't consider from most people? The possibility that after all maybe things are the way they're being told or considered or even 'imagined' by the patient or by anyone else. I think maybe that's why people like me continue to learn when it seems like they just won't. We both deal with Science, true, but this small difference in perspective may make all the difference in the world, I think, and I may have data to show for it.

[On another post I give my reasons [to some detail] for quitting going to medical doctors for assistance with those afflictions I had, but basically it happened after I realized they would never help me, probably because they didn't know any better. You see, I'd been told by all of them that there was 'no cure for Asthma' and that it was something I'd just have to learn to live with. For some reason I wouldn't buy that, and it seemed to me like there was "something funny" going on with the whole thing, so eventually I found myself 'forced' to pursue knowledge on my own]

Now I'm almost sure that if I had convinced some doctor back then of this "mold affliction" I was carrying inside, quite likely I'd have been dead from treatment, because there were so many things going on with me. I'm almost sure of this after understanding what I just posted about Koch's Postulates and these organisms, and after learning that Mold, being deadly as it is, is often the least of a patient's concern.

Why do I say this? Well, for several reasons. One important one, as I said before, is that "Maybe it isn't just mold the patient has to worry about". This understanding carries heavy facts with it, none to overlook under any circumstance, in my opinion.

Other reasons of importance have to do with Mold itself. For instance, Molds grow very slowly given certain conditions [One of those conditions being Temperature]. Since Molds grow very slowly, they tend to remain more like some 'Potential' or latent threat than an active one; much like something you KNOW is there and just won't go away, but that's just waiting quietly [The worst kind of Enemy if you ask me, the one that just waits patiently because it can]. For this reason, then, while they do pose an ever present threat, molds are not likely to cause an acute problem inside the patient that could result in a 'fast' Death, as long as some form of homeostasis is guaranteed [some form of balance]. This may help to explain, I think, why many patients with Mold are said to die from "other causes" so many times, when in fact the mold may have been there all along, waiting.

For example, let's say that a patient with a lifelong problem of Sinusitis dies suddenly of some apparently unrelated Heart problem. On autopsy a 'mass' or formation consistent with a colony of bacteria is revealed somewhere in the Heart, and cultures grow colonies of some Bacteria [doesn't really matter which type - it could be cocci, maybe some Streptococcus, doesn't really matter]. With this Evidence, I'm sure that many pathologists would be 'tempted' to yield a prompt and final diagnosis of "Death from Heart Failure due to Bacterial Endocarditis" or something like that, when maybe there was "something else" behind the whole deal all along, just waiting. In this example, what caused the Death could have been the fast action fo Bacteria, true, but it must be wondered how or why the body couldn't deal with it properly, or how things fell into place to allow Bacteria to position themselves to such strategical advantage. Could Mold have been behind all this? Would the patient have lived if the bacteria would have been cleared from his heart then, despite the presence of mold in the sinus area? Probably.

As you see, there may be many things to consider when dealing with these organisms. To me, Molds grow pretty much like common weed, and unchallenged they're able to cover a vast area in virtually no time.

So, as you can see, many conditions make these organisms very dangerous to treat, and at the same time probably often the [apparent] least of a patient's concerns.