MS and LDN 
wordww
21 y
6,397
† Cross †
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Has anyone here come across MS and LDN? I would really appreciate your feedback. I am researching pros and cons its very important.
Word- Re: MS and LDN capp3735
21 y
6,223
MoreThis is a reply to # 4,899Hi,
The LDN website: www.lowdosenaltrexone.org
Gives you tons of info about MS and LDN.
I am refusing to give myself any more interferon...I have bad side effects.
Will be seeing my MS doc the end of this month with internet info printouts and see if she will prescribe it.
Margie - Re: MS and LDN meshak
21 y
6,278
RR
MoreThis is a reply to # 4,899Advertisement
Hulda Clark cleanses
Wormwood, Clove, Clarkia, Turmeric, Epsom Salt, Uva Ursi, Goldenrod
In regards to your inquiry,
My step-father started taking LDN Jan 1st 2003, at that time, he was and is restricted to a wheel chair, due to spasticity in his right leg, however since taking it, he indicates that he hasn't lost further functionality, and due to the relief of symptons, he has actually regained some slight mobility in the right leg, this isn't to say it's a reversal, it just means without the apparent afffects of MS actively affecting his system, he seems to have built back up some strength in that leg, we realize he may never be able to go back from the wheel chair, but it's nice to think he may not get any worse. If you wish for more anecdotes and other info, goto www.ldninfo.org that's where we discovered it.
Cheers,
Michael - Re: MS and LDN Now that I have been ... Reggy2
20 y
6,184
This is a reply to # 4,899There has been so many good results from ldn. I don't know how they have managed to keep it covered up for so long. I know the big drug companys wish we would shut up about ldn but damn why does anyone else have to loose there abilities when ldn is out there and allways works.With no side affects too.At less than ten dollars a month we should all try it.
- Re: MS and LDN JoyceF
20 y
6,021
This is a reply to # 4,899Oh boy Wordww...I say to walk..no run to your nearest doctor for a prescription for this. It is probably the closest thing to a cure going these days. I know that it is not a cure but my God....what more can I ask then to find something that is actually halting any further progress of my MS. It surely is a miracle in my life because I never thought I would be able to say that. I've been on the LDN for about 20 months now and I always told myself that if after a year I knew that it worked, you could not keep me from shouting it from the highest mountain to anyone that will listen. There is way too much suffering going on in this world that does not have to be but until we can get a clinical study going, it won't be recognized by the neuros nor will it be recommended...how sad. I for one don't have that kind of time to wait and neither I'm sure do you. Please do not hesitate to write me with any questions....I will make time to help anyone who wants to know more...it is THAT important!! Good luck to all and Godbless...JoyceFAdvertisement
Hulda Clark cleanses
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- Re: MS and LDN arfie1
20 y
5,849
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This is a reply to # 4,940Hi,
I'm new to MS and would be interested in learning more about your experience on LDN. I am currently considering it. I've looked into other 'trials' (Campath 1-H) and most of the info about LDN seems to be based on testimonials.
Would really apprecaite educating
Thanks- Re: MS and LDN JoyceF
20 y
6,845
RRR
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This is a reply to # 4,943Hi there Arfie,
I'd be happy to share my experience with the LDN. I will try to make a long story short and say that I had few bouts of Optic Neuritis which is what led to me discovering that I had MS. I went about my life after my eyesight came back and did remarkably well, not knowing that the endorphin producing exercise that I was doing was what no doubt saved me all those years. I only started to go downhill a few years ago when I slacked off of the exercise. Luckily I found the LDN before there was too much damage. Now, I have some balance issues and cannot walk for any long lengths before I must sit but other then that am doing quite well now. Am on the LDN for about 22 months now and quite convinced it is halting any further progression of the MS. If you want to know more, please do not hesitate to write...wkendz32@hotmail.com I am quite enthused to help anyone find this therapy as I think of it as a Godsend. Hope you find it too.
- Re: MS and LDN JoyceF
20 y
6,845
RRR
- Re: MS and LDN MO
20 y
5,985
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Original Dr. Hulda Clark
Hulda Clark Cleanses
This is a reply to # 4,940Advertisement
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By now many of you have probably been reading lots of posts regarding LDN therapy. Many of the comments seem to zero in on the absence of clinical studies with it and MS and rightfully so. Well now is your chance to do something to try and get this wonderful therapy recognized for what it is. Some very resourceful people in Ireland have decided to gather together 100,000 names via the net on a petition to get a study started on it for all of us. Here is a link to that online petition. http://www.thepetitionsite.com/takeaction/110785607. Time for all of us to ban together and try and get something going with this. I personally don't need a study in order to realize how great this therapy has been for me, but for all those that do, this is your chance to get involved. Please sign and forward this information to anyone you know that might be interested in helping...thanks so much.http://www.thepetitionsite.com/takeaction/110785607
- Re: MS and LDN JoyceF
20 y
5,814
J.Crow’s® Lugol’s Iodine
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Original Dr. Hulda Clark
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This is a reply to # 4,947Hi there MO....I'm currently on 4.5mg. That is what Dr. Bihari is recommending at this time and so far so good for me. It seems to be something that needs to be altered on a case by case basis. Some seem to be happier at 3mg. Are you contemplating trying it? - Re: MS and LDN mo
20 y
6,349
This is a reply to # 4,947My wife was diagnosed last summer with MS and we have decided to have another child before going on any medication. Her neuro suggested she go on Avonex after the baby is born (next month). My wife doesn't like needles much and the side effects from Avonex from other testimonials sounds a lot worse than the flu like symtoms for 1 or 2 hours our neuro said would occur. I have been reading a lot about LDN and I would like to have her try it first, but our neuro won't prescribe it. I am currently looking for a doctor who will, I'm located in Toronto, Canada if you know anyone. Anyway, if I do find someone, I'm trying to determine what the appropriate dosage would be to start with, she weighs in around 120lbs (or should be after the baby is born).Advertisement
Hulda Clark cleanses
Wormwood, Clove, Clarkia, Turmeric, Epsom Salt, Uva Ursi, Goldenrod
- Re: MS and LDN Rachel320
20 y
6,162
This is a reply to # 4,951I have been on LDN 3.0mg for 6 weeks and it has reduced my symptoms about 50 percent. I have suffered with pain for some time, to the point that I wanted to cut my left leg off. It burned, it was hot, it was cold and it hurt to be touched, even by the softest fur of my cats.
I have Brown Sequard syndrome...inflammation in T3/4 area but not yet pressing on my spinal cord. I find that if I lay on an ice pack in that area at night on the nights that are bad, my next day is so much better.
It took me a long time to find a doctor that would prescribe LDN for me but I emailed LDN to find out how to get a prescription wrote should I find a doctor and they gave me 2 web addresses to go to...
"If you cannot find any doctor to do so, here are two websites that have
lists of doctors all over the US who are much more open to such new uses
for medications:
1) www.acam.org (once there, click on Doctor Search)
2) www.lef.org (once there, click on Health Concerns at the top, then, on its menu, click on Innovative Doctors, and then choose your state)
Remember that naltrexone is a generic, FDA-approved drug (approved at much
larger doses for other disorders), which has no toxicity or side effects
at these low dosages, and any physician is legally and ethically entitled
to write an off-label prescription for it."
Good luck...
I am seeing Dr. Steven Margolis in Sterling Heights, MI 586.323.1122, if you can't find one closer.
Rachel
- Re: MS and LDN pappi
20 y
5,915
This is a reply to # 4,951hi im also from toronto.......ive had ms for 15 years
email me pure5abi@msn.com
im interested ion ldn too - Re: MS and LDN hydrocare
15 y
5,029
This is a reply to # 4,951Consider seeking a second opinion from another specialist. This is a serious case and shouldn't be neglected. Wishing your wife well.
- Re: MS and LDN Rachel320
20 y
6,162
- Re: MS and LDN JoyceF
20 y
5,814
- Re: MS and LDN arfie1
20 y
5,849
- Re: MS and LDN Liza
20 y
5,914
This is a reply to # 4,899
Just starting ... have the same questions and concern, but I believe there is nothing to loose and everything to gain. Serious look at your options. Also its not expensive at all. About $15/month through SKIPS pharmacy. 1800-553-72429- Re: MS and LDN JoyceF
20 y
6,203
This is a reply to # 4,949Advertisement
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Hi Liza,
I think you will be quite happy with this therapy and you are using a great compounder. Skip is a great guy with a soft spot for MSer's. All I ask is that you report back here after being on it for a few months ok? Oh and you are right...so inexpensive that I don't even claim it on my insurance. Good luck to you...{{{hugs}}} JoyceF
- Re: MS and LDN JoyceF
20 y
6,203
- Re: MS and LDN capp3735
21 y
6,223
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