miserable vulva 
#134618
14 y
29,967
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Hello. I'm pretty much just writing to vent as I have a very personal, embarassing problem with my vulva. I've pretty much lost hope that doctors can help me and I'm frustrated and don't have anyone else to tell besides my mom.
In the summer of 2008 I began developing itching on my vagina and vulva, and didn't have it treated right away because I was suffering from severe depression. I finally made it to the doctor, had a pap, and she gave me some cream for a yeast infection. The itching never went away but it got better and then would return.
It steadily got worse and in early 2009 it slowly became worse and worse. I felt like I had something crawling under my skin! I shaved all my pubes and it was examined, and nothing! I also have a gastroenterology problem and doctors simply associated the lower abdominal pain and itching with ovarian issues and focused mainly on my internal organs which turned out to be OK, thank God.
The problem continued and I went and got tested for STD's and turned out to be negative as well. Sadly, I asked to be blood tested for herpes and came out positive which brought on another load of suffering and humilation from my vulva.
I have never had any blister or sores just itching with no visible abnormalities.
The doctor said the itch had nothing to do with it, so the two are not connected. She diagnosed me with gardenella and put me on Antibiotics which did help with some of the itching. By this point all the yeast infection creams left my urethra raw and peeing burnt so bad I'd had tears in my eyes. I was taking Antibiotics for gardenella and urinary tract infection which left me in a daze for about a week. She finally said I needed to see a psychologist so I switched gynos because I was fed up.
My new gyno said everything appeared fine. She took tests, they did a complete bloodwork and everything came out fine. Nothing worked, I was on steroid medication which was only a temporary fix.
She finally did a biopsy on my vulva which hurt so bad I couldn't sit! It turned out I had lichen simplex and I was referred to a dermatologist. He did tests also and put me on a lotion for itching which helps a little.
I still have yeast infections and have all but eliminated Sugar from my diet, and it's still there itching every damn day.
Oh, and I was re-tested for herpes and HIV again and came out negative. I don't believe doctors have any clue what they're freaking doing! What am I supposed to do now!?
I don't know what to do. I have become very bitter and withdrawn, and an angry person. I don't even care for finding a partner because I am too ashamed of this. I've tried having faith that a higher power might help me. I've really worked very hard to change my thinking, I live a healthier lifestyle, be a good person, and overall try to have hope- even though all this brought on a complete crisis of faith in me.
It's really frustrating, for example, to be talking to someone out in public and to be itching or feel a sting on my labia or clitoris or any other random spot on my vulva. It makes me cry because I don't want to deal with this forever! This is so frustrating and I don't want to put steroid lotion on it, I want a solution! I don't know what to do and this is really bad! I wouldn't wish this on my worst enemy and I don't know why more than two years later I'm still suffering with this! WHY IS THIS HAPPENING TO ME!!!?
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- Re: miserable vulva aijian
14 y
28,799
MoreThis is a reply to # 1,712,723How old are you? Where are you living? Do you have other symptoms than an itchy vulva? Do you have intestinal symptoms? Do you have food intolerance?
You are not crazy. You may have a severe case of vulvodynia related to a chronic intestinal candidiasis. You may be allergic to yeast. Please look for Marjorie Crandall candida packet. She describes very well your problem. Conventionnal medecine won't be of any help for you. You are now at the best place. People here can help you. We don't know if this disease can be cured but it is manageable. It is caused by a immune system imbalance. Please try find an environmental or holistic MD as soon as possible. You must begin shortly with strong antifungals and probiotics. Get check for heavy metals intoxication. Get a CSDA for parasites and bacteria screening. Get tested for leaky gut. You have to eliminate NSAID, alcolol, caffeine, sugar, lactose, caseine, gluten, tobacco, yeast from your diet.Advertisement
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- Re: miserable vulva #134618
14 y
28,619
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This is a reply to # 1,712,814Hello Aijian and thank you so much for responding. This problem has really affected my life...
I'm 28 years old, and this started when I was 26. I live in south Florida. The main symptom is the itching. I also get a lot of yeast infections, usually right after my period.
I've had a lot of intestinal problems which began 3 years ago, my doctor diagnosed me with irritable bowel syndrome because I would get diarrhea, constant nausea and overall sick feeling, and a really horrible pain in the lower right quadrant of my abdomen. Eating too much, or certain foods, would leave me curled up in pain and I went to the hospital a few times. The pressure would cause a lot of bloating and it would hurt all the way down to when I pass a bowel movement. Doctors always focused on my ovaries and nothing resulted from that.
The pain in my abdomen is rare nowadays. It only gets bad when I eat too much. I completely changed eating habits and take the probiotics and I think that may have helped with the intestinal problems.
I'm still itching and sometimes my vulva gets red and irritated (usually after my period) which I always think is a yeast infection.
It never occurred to me to see a holistic doctor though. It sounds like a great idea. I'd rather find a natural remedy and the doctors aren't very encouraging. I'm definitely going to look into it.
- Re: miserable vulva dvjorge
14 y
28,547
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This is a reply to # 1,712,866It looks like you have a case of Chronic Atrophic Erytemathous Candidiasis. It is a commun case caused by a latent yeast infection and low immunity. Yeasts were able to penetrate the cells and are "dormant" but still producing metabolic products that cause redness, itching, burning, and inflammation. You WON'T find Drs who know about this condition. You will need long term systemic antifungal drugs ( possible a combination ) and a local cream at the same time. This problem won't show up in conventional tests. I also live in S. Florida ( Miami ) I have information about some Holistic MDs in this area. You should get guidance from Dr. Marjorie Crandall, as Etienne advised you, Crandall is a pioneer in this area and brought this condition to the light. There isn't anybody else better than her to advice you about this problem. Any of us can give you her phone and you can set up a phone consultation with her.
Jorge- Re: miserable vulva gibby
14 y
28,445
This is a reply to # 1,712,878Advertisement
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Yes, Dvorge is right. I am under her guidance now, (Dr. Crandell) and she's working along with my gyno as well. You have to find a gyno that will listen and prescribe what is needed. Trust me, most won't. My first didn't listen to me, and I went on for month after month complaining of itch. He assured me nothing was wrong, all is Normal!! So I go on for months, just trying to treat myself with boric acid suppositorys' and cocunut oil. Finally, this doctor listened and took a closer look. I'm still not out of the woods. I was on diflocan, not really responding, now on ketoconozole, daily, and still not turning around. Dr. Crandell says I need to add another class of azole like lamisil to my antifungls. Get liver function test every 2 weeks, and I use lotrisome on the vulva area, along with new, lamisol OTC. It really burns a lot, but Dr. CRandell says I need to keep this up. I'm so scared I'll never get better. Things really haven't turned around for me, and I'm really getting depressed. Talk to Dr. Crandell. No one else will know about this except Dr. Crandell. I think I've now created resistant strains and I'm scared nothing is really working...I have treated myself with so much stuff, Nystatin tabs, and even now, Teroconozole cream nightly, it's been 3 weeks. I really don't know if anything is working for me.- Re: miserable vulva #134618
14 y
28,242
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Dental work and fillings, not a problem.
This is a reply to # 1,712,887I know how frustrating it is. I became really depressed because of this too. Been telling myself it's something I just have to get used to. And the doctors don't really listen. It's so frustrating because I can't do anything about it since I don't know what it is yet!
- Re: miserable vulva #134618
14 y
28,242
- Re: miserable vulva #134618
14 y
28,084
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
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Dental work and fillings, not a problem.
This is a reply to # 1,712,878Hello Jorge. I'm really interested in seeing that doctor or a holistic doctor in this area. I also live in Miami. May I have her phone number?
- Re: miserable vulva gibby
14 y
28,445
- Re: miserable vulva Hveragerthi
14 y
28,603
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Original Hulda Clark
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This is a reply to # 1,712,866I've had a lot of intestinal problems which began 3 years ago, my doctor diagnosed me with irritable bowel syndrome because I would get diarrhea, constant nausea and overall sick feeling, and a really horrible pain in the lower right quadrant of my abdomen. Eating too much, or certain foods, would leave me curled up in pain and I went to the hospital a few times. The pressure would cause a lot of bloating and it would hurt all the way down to when I pass a bowel movement. Doctors always focused on my ovaries and nothing resulted from that.
The pain in my abdomen is rare nowadays. It only gets bad when I eat too much. I completely changed eating habits and take the probiotics and I think that may have helped with the intestinal problems.Probiotics are a good start, but you need to feed the flora as well with fibers. Rice bran or oat bran are especially good since they are soft fibers, do not cause bloating like psylllium does and they provide a lot of B vitamins that also benefit the nervous system.
By the way IBS does result from a lack of intestinal flora, so you are on the right track.
- Re: miserable vulva dvjorge
14 y
28,547
- Re: miserable vulva #134618
14 y
28,619
- Re: miserable vulva Hveragerthi
14 y
28,510
This is a reply to # 1,712,723Advertisement
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Testing for herpes is done through an antibody tests and antibody tests are a notoriously inaccurate. These same types of tests are used in testing for other viruses as well including hepatitis viruses and HIV, but they have an extremely high false positive rate. Being that you never had an outbreak chances are that your first test was a false positive, which again is very common with these tests.
As for the vulvar itching, what you are describing does sound like lichen simplex. There are various things that can contribute to this including allergies, soaps, perfumes, douches, lubricants, condoms, etc. Pantyhose and tight underwear should also be avoided.
If you have allergies you need to focus on building up your adrenals since allergies stem from adrenal dysfunction:
http://curezone.org/forums/fm.asp?i=1527351#i
Building up the adrenals will also allow your body to generate its own steroids to help keep the inflammation down and to help with coping with stress.
Something else that may help is the amino acid glycine. Glycine is both a neuritransmitter inhibitor, which will help calm you and will also reduce nerve sensations causing the itching feeling. Recommended dose is 500-1000mg 3 times daily at least 30 minutes before meals. Glycine is also a component of collagen, so it helps to heal the tissues.
Do not use douches, perfumed toilet paper, salt baths, bubble baths, creams, lotions, etc. that may contact the area. And try not to scratch the area, which will only make it worse.
If you do suspect an infection the best way to address it is to take some probiotic powder, add just enough water to make a thick liquid. Then lay on you back and use an eye dropper to squirt the probiotic liquid in to the vagina. Lay there for a few minutes for the liquid to disperse and absorb before standing up so it does not run back out. The probiotics will restore your good flora that produce mild acids, peroxides and bacteriocides that kill pathogens and will compete for food and space with Candida and other microbes.
- Re: miserable vulva #134618
14 y
28,313
This is a reply to # 1,712,889Wow, I really appreciate all the support and advice here. Everyone's responses has been so helpful and encouraging. It makes a lot of sense to me, about the candida.
I've basically eliminated everything that may worsen the symptoms. I use cotton underwear and pads (gladrags) instead of regular pads and the differences in comfort is dramatic. No soap just water, although I was using cetaphil which I later found out might cause dryness. The probiotics really help but I have to remember to take them everyday because if I stop for a few days, I notice the difference again.
I have a tendency to have allergic reactions, like rashes and irritations. Even wearing a band-aid my skin gets burned from the glue. My skin is really sensitive so I don't use perfume and avoid anything that might irritate.
- Re: miserable vulva zc7
14 y
28,449
This is a reply to # 1,714,409Just like to tell you that God wants everybody to be well and with perfect health. When God created us he says in the bible that we were meant to eat fruits and vegetables. Unfortunately people later started eating lots of things and diseases started to emerge. The RAVE diet is the diet which can reverse almost all illnesses and it consists of no Refined foods, no Animal foods, no Vegetable Oils and no Exceptions and Exercise. I make the exception of extra virgin olive oil. Also Dr. Richard Schulze one of the greatest natural/herbalist of the world says olive oil is good. I would also suggest you to do his 30 day incurables program to really "destroy" your disease.
God bless you,
PaulAdvertisement
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- Re: miserable vulva zc7
14 y
28,449
- Re: miserable vulva #134618
14 y
28,313
- Get OFF of birth control pills if yo... #1434
14 y
28,499
This is a reply to # 1,712,723Get off of birth control pills if you are on them. Throwing your hormones off balance can change the texture of the skin in that area, and make things (like candida or other things) more able to irritate the skin.
- Re: Get OFF of birth control pills i... gibby
14 y
28,306
This is a reply to # 1,712,908Dr. Crandell says to not put probiotics in the vagina. That is not proven to help, plus, it can cause an infection.
- Re: Get OFF of birth control pills i... #134618
14 y
28,247
This is a reply to # 1,712,908I was on birth control pills for over 10 years and had stopped taking them about a year before this all had started. Do you think it's related to the hormones? I hadn't realized the timing...
- Re: Get OFF of birth control pills i... gibby
14 y
28,306
- Re: miserable vulva MENDOMAID
14 y
28,717
This is a reply to # 1,712,723I have had Candida/yeasts for years starting with a vaginal problem. The first vaginal cream I tried burned but another brand was OK. I had to be careful after that to not eat too much sugars or carbohydrates and wash often if the itching started to flare up. I also developed intestinal candidias, apparently had it for years, and it wasn't until I saw tiny clumps and strings of white/transluscent balls during a Liver Flush that I realized I had an overgrowth in the intestine. In the past I used the herb Pau d'Arco tea for the vaginal flare-ups and it did help. Candida lives in a biofilm in the epithelium or skin cells. It is often necessary to digest away the biofilm to expose the yeast to the medication or candida herbs.
Have you had the lab test for Pinworms (Enterobius)? This is one of the most common invaders causing vaginal and vulvular irritation. The roundworms live in the lower intestine and when the eggs hatch they crawl out the anus and often into the vagina where sometimes they become embedded in the tissues causing long-term problems. Do a search on the parasite Support Forum or the Parasite: Drugs Against parasites Support Forum for pinworms or Enterobius to learn what people do about this problem.
Some of your symptoms suggest you may be sensitive to gluten in wheat, barley and rye. Have you been tested for Celiac Disease? This problem is often misdiagnosed as IBS and it is a common problem. http://www.celiac.com
has several fact pages on symptoms and diagnosis and an active forum. - Re: miserable vulva Sagitta
14 y
28,447
This is a reply to # 1,712,723Hi Dear,
This sounds like an allergy Hverghity gave some good advice. In addition to that soak one tablespoons full of rolled oats in a half pint of warm water for about 15 minutes. Cool and bathe the area. This should calm the skin. Good luck. - The power of Vinegar - one more anti... Raynbo
14 y
30,221
This is a reply to # 1,712,723If you can handle it.
Soak in a bath tub of luke warm water with about a 1/2 to one cup of apples cider vinegar in it. Stay in the water as long as you can. (Hot water can increase the itch...although it will subside once your skin cools down, and it won't interfere with the overall effect of the remedy. You can do this several times a day if you have the time.
If you find this helps, you can also make a solution of vinegar and water and dab it on with a cotton ball during the day.
This has helped me with a number of itching problems. Maybe it will help yours. Douching with vinegar and water could help too. I know that helped me with vaginal yeast infections.Advertisement
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- Re: miserable vulva explorer2009
14 y
28,373
This is a reply to # 1,712,723Things are rather plain in terms of Su-jok medicine:
--- itching is harmful "Dampness" energy
--- yeast infection is also harmful Dampness
--- Depression is harmful Dryness energy
--- Dryness energy also controlls skin
If put this together, it explains the situation.
Looks like reproductive system the most vulnerable area where the itching developed.
Good specialist in Su-jok can treat all this by the same
acupuncture scheme. - Re: miserable vulva #117759
14 y
28,522
This is a reply to # 1,712,723A lot of good help here. What you also need to know is that the majority of today's population is Iodine deficient.
Please check out the Iodine supplementation forum. Our bodies cannot function properly without it and we do not get near enough, not near enough.
If the Iodine supplementation forum is too wrought with info and you just don't know where to start, then my next suggestion would be to start here, perhaps like I did:
http://optimox.com/pics/Iodine/opt_Research_I.shtml
After doing some body cleanses, including fasting, I came to realize there was still something wrong, until I read publication #5 from the above link. I have since learned how terribly iodine deficient my body had been - I have been supplementing now for over three years and I will NEVER go without iodine again. The plus is that it needs so little on a daily basis - (once you're maintaining, that is). - Re: miserable vulva Melis19750
13 y
27,592
This is a reply to # 1,712,723Hi,
I just want to say DON'T BELIVE all the hype that this could be from yeast. Many people on here are so soooo convinced this is from candida. In fact- many times its not.
I also contacted Dr Crandall, and I feel wasted a LOT of money. Not only this she diagnosed me over the phone.
So I went to my doctor- convinced them I had this "red yeast" and went on anti fungal Diflucan 200 mg a day...
the diflucan actually made me sick...
It ended up I was having allergic reactions to things like topical application to coconut oil, boric acid, etc, etc, etc....
I do have a mild form of vulvodynia which is going away thanks to a compounded estrogen/testosterone cream- where as the diflucan and other anti fungals did not help.
I say this- GET cultures done, ask for a vulvoscopy... and even the GEN PAP... the Gen pap is great at detecting all sorts of different candida strains, bacteria, and stds.
If everything comes back Negative- you probably have some form of vulvadynia- or something else... it does not mean YEAST.
In fact- one women I know was on long term anti fungals because she also convinced her doc it was yeast under the skin- and the anti fungals DESTROYED her vulvar skin...
its a little complicated to explain.
but dont let people on here convince you. I think treating something that is NOT there can do more harm then good.
Not only that, taking long term anti fungals can cause resistant strains of fungal infections that are even harder to treat.
I will say Im so much better now than I was several months ago when people on here, Crandall, etc; convinced me it was yeast and i listened and went on anti fungal approach with diflucan.
I now found a great doctor who treats women with vulvar issues... and acupuncture... herbs
etc:
oh also- I have had MUSCLE testing for yeast, stress test/ etc;
seen a natural holistic MD
and they all agree I dont have a yeast issue..
and Ive had many DNA and regular candida/ fungal cultures done- at least once or twice a month the last 10 months
including one that took 30 days to grow
and guess what all completely negative
and my vaginal secretions are all normal and clear.
Many things can cause VV
I suggest visiting http://vulvodynia.hannaoriginal.com
or
http://vulvodyniasupport.forumotion.net/
also get "The V Book"
its a great book that talks about this
but be your own health advocate
and dont listen to everyone on here or on the net/ phone/ e-mail
if they have not examined you themselves- and done testing on you, they honestly can NOT diagnose you... and thats the problem I have with experts like Crandall!
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- Re: miserable vulva aijian
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