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Re: look!!
by jsl123 12 y
and she not willing to put up her biopsy results whihc i find strange. i mean if i had results like that in my biopsy i would be glad to show it to everybody.
its unforunate but it still might actually be.
the docs said aldera could of manipulated my biopsy results. so im still abit unsure although the docs said i defs dont have it. but i dont know if they really checked for it or not. some doctors are very hard to talk to and dont listen alot.
so it would be good for some people to get some new fresh biopsy’s with their crusts on and get this time get it checked more in depth. im ...
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Forum: Peeling Lips
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It is your lips, your call !
by White Shark 7 y
You can find several biopsy stories on this page:
https://www.curezone.org/forums/s2.asp?f=403&c=19&ob=v
So far, in the 10 + years of this forum, nobody, not a single person has ever come back after biopsy and reported:
”I am so happy I took that biopsy! It has helped me cure my lips.”
I may be mistaken, so if I am, and if you actually know of such a story, please share the link with us !!!
In the same time, dozens, if not hundreds have come back and regretted biopsy, many reported about having one more ugly scar on their lips!
Here is one example:
...
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Forum: Peeling Lips
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Re: unfortunately guys i give up!
by jsl123 12 y
sirpes the problem is the docs said maybe my biopsy results would be different if i didnt recently put aldera on as aldera actually can manipulate the cells for weeks.
so im going to get another biopsy in a few months if i decide to get another one whihc i highly doubt. im so tired of ec both physically and mentally. its drained and ruined my life!!!!!!!!.
i use to literally bouce out of bed these days with ec i cringe at the thought of getting out of bed. its very sad!!!!!!!!!
so i still believe if there is going to be a solid answer it will come out of a biopsy result like lilo. ...
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Forum: Peeling Lips
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Re: Biopsy of salivary gland planned in 2 weeks
RN WARNING by lampwick 15 y
I had a biopsy done over 3 years ago and I still have a huge scar that’s way worse than peeling lips ever were. It’s a hard, discolored, partially numb lump of scar tissue and I can still see the cut lines. And the biopsy didnt even reveal the reasons for my lip problems. After that I looked over the peeling lips forums for biopsy results and no one has ever discovered the cause of their peeling lips from a biopsy. A biopsy will only make things worse.
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Forum: Peeling Lips
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Re: Biopsy results
by Nousername 7 y
Here are the important parts of my biopsy results. I translated it to the best of knowledge.
Skin biopsy 0,2cm
Microscopic description:
Lip biopsy shows visible uneven hyperplasia of epidermis, subepithelial layer mucinosis, very slight perivascular and interstitial lymphocyte infiltratation.
Clinical Diagnosis:
Lower lip cheilitis, urtcitaria, lip mucinosis
Final pathological diagnosis:
Changes seen in the biopsy are compatible with lip mucinosis diagnosis
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Quick heads up on my biopsy
by sirpreis 12 y
View First 20 Messages of 39
I just got an email from my derm about my biopsy results. She says that it looks most likely like atopic eczema / neurodermatitis.. but there is no definite diagnosis, as I would have thought. Also I’m not sure what she now thinks about treating it and if psoriasis is completely out of the question. I guess it isn’t. And they might have similar treatments (at least regarding topical ointments).
In her email she’s also talking about a possible ”viral inflammation/infection” (not sure if that’s just another guess or if that’s actually something that she saw from the biopsy result) and her ...
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Forum: Peeling Lips
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Re: Lip Psoriasis Article
by heavenlyhealing 12 y
hey sirpreis
dont take it serious yaar...just try it....as you can............its curable for you too......dont be depressed keep ur hope.....try to accept good suggestions/ideas man???
i didnt bit my lips and peel it ...healer may be absolutely wrong.....or forget to add this
chapstick and vasaline,toothpaste effect to have trauma over your lips........ or you may be alergic to those...
keep patience.....dont get depressed
what about your biopsy result???
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Forum: Peeling Lips
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Re: vunkkkkkkkkkk
by Vunk 12 y
Yeah I removed it about one week ago with no really improvement since. Also I’ve decided to not sleep with the ’gutter teeth’ during night to see if there would be a change, even if I’m not truthfully convinced LOL but it costs nothing so I give it a try, in the meantime, before getting my biopsy results.
At least, I can say that my mouth is just totally and perfectly clean, never had caries, amalgams, no stranger element in it!
Tiring.
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Forum: Peeling Lips
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Re: Acid Reflux
by longterm 10 y
I did not know this about the diagnosis of celiac disease:
”Average age of diagnosis of celiac disease is over 50, partly because until the condition reaches its end point the 2 common blood tests and biopsy results are likely to be negative.”
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Forum: Peeling Lips Cure
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Laser Surgery
by windham1983 8 y
View Entire Thread 11
Who on this forum has actually had laser surgery done? My doctor at Mayo Clinic is consulting with another doctor at the Mayo Clinic in Minnesota to determine if he thinks laser surgery could be helpful based on all the tests he’s run, biopsy results, etc.
I was just curious to hear from people who have actually had it done, not somebody to tell me it’s a stupid idea and I should just lick my lips constantly.
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Forum: Peeling Lips
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Update
by goldstander 11 y
View First 20 Messages of 43
I booked an appointment with one of the UK’s leading reconstructive surgeons. I tried to get his opinion on the injections etc. He said that it was really promising and would be willing to do it.
However, the BUT, was that my stupid biopsy results need to be back, so he could make sure there weren’t any underlying causes etc. He was willing to do a biopsy on the day and I’d get it back tomorrow, but I couldn’t go through the torture again, so ill wait 2 weeks to get the results.
I’ve also got another one booked for on wednesday, ill get his opinion too - his probably going to ask about ...
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Forum: Peeling Lips
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Re: guysss!
by jsl123 12 y
i hope so but i doubt it. the docotr said if he was treating me for it he would make me aaply it 2 or 3 times a week for 2 or 3 weeks
my lips as of now have no hard crusts just literal yellow puss oozing out exactly how lilo said the inflammation has gone down heapss. been off the cream for 5 days now. im not worried becasue there going to do more biospy’s taken this week. although im pretty sure i havent done enough to fully kill it becaseu i can see some parts on the top lip that were clearing up have now began to ooze out a little bit more so the virus must still be alive if it is. ...
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Forum: Peeling Lips
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Re: zyclara imiquimod cream
by sirpreis 12 y
Yea, I wouldn’t get overly excited. You might fall down into a deep hole if our or your symptoms are caused from a different root cause, which it very well might.
I mailed my derm asking about testing for it. The biopsy result said something like ”the histology could fit into a virus infect”. My blood was tested for viruses, but it seems like the HPV tests weren’t done (even though it says ”negative” on the result sheet, somewhat confusing). And it might not be found in the blood but just if you look for it in a biopsy specifically.
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Forum: Peeling Lips
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Re: Stopping Cyclosporine
by longterm 12 y
”there example was like a localised fungal infection for example candida infection but a certain strain they can only be found with an in depth culture of the biopsy. and saying the medication we have all tried is not strong enough as the candida is resistent to most of your basic treatments. so everybody is on hold till the results come back.”
Hey, are you saying they found you have candida? If so, do they know the particular strain or are they still waiting for biopsy results? I have candida so this could be my cause as well. Do they think EC is more caused by a virus or candida?
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Forum: Peeling Lips
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Re: Biopsy results
RR Educational by Nousername 7 y
Sorry for the 4 year bump.
I’ve had my biopsy results return and I have the same result. The diagnosis from the pathologist who examined the biopsy says ”lip mucinosis”.
When I asked my dermatologist what the hell that is she described something like the reticular erythematous mucinosis. Apparently it’s quite rare and tomorrow I’ll be going to be examined by a group of doctors who will decide how it should be treated at the same hospital.
Apparently it’s quite rare.
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Forum: Peeling Lips
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Re: White skin build up besides lips
by sirpreis 12 y
Yea, that’s the biggest problem, we don’t know if, and if so, when it so going to heal / go away.
I live in Germany and have started to contact a ”centre for rare diseases”, which we have a few of in Germany. They have answered and the doctors want to have some findings of my derm, biopsy results (I’m only getting the biopsy tomorrow) and stuff like that. They probably wont fix me, but we’ll see.
Best of luck to you and your son too! There are other things a guy of his age should be worrying about.. (as there are other things I at my age should be worrying about :)).
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Re: Mental
by #96194 16 y
Ronin, can you post the web site that where you read about the woman? because the biopsy results you mentioned lookslike mine, however, i never had schzophrnia, but had very intense anxiety problem for long time and not treated at the time and during that process started the ec problem, not have the anxiety problem anymore but the ec coninues, so i already posted about this many times that it is connected somehow to the mental thing because of chemical changes in the brain in the time of such stress(atleast in my side), my fist biopsy report says: THE MUCOSA SHOWS REMARKABLE ACANTHOSIS WIT ...
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Forum: Peeling Lips
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Re: look!!
by jsl123 12 y
yeah our condition does similar effect hard crusts that grow and grow and grow.
its very bizzare. but the only thing is i doubt he can put vaseline on it and it hides. i can essure you he would of tried plenty of creams with no sucess or even not being able to hide it. the reason why i think ours is actually just a skin condition. and also our biopsy results should come up with wart virus. so ill be watching closely for sirpies results.
and also if zyclara works for you.
i mean liloo sounded legit. but she vanished with no sucess so im guessing she didnt resolve her ec.
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Forum: Peeling Lips
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Re: Mike Pylon
by Healing2021 11 y
Many people on here have seen staph in their biopsy results, including me.
Everyone I have read of, and me, have treated it with an antibiotic and nothing has changed.
Supporting most derm’s hypothesis that any infection is most likely secondary, and due to the lack of hygiene of our lips and the hyperkeratosis being an ideal spot for infection.
If this was staph then it would be a relatively easy fix.
My staph was cultured and found not to be antibiotic resistant and I was prescribed an antibiotic based on the results of the culture. And it did nothing.
Like I said, his ...
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Forum: Peeling Lips
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Redness has went down a lot in last few days
by peel1234 11 y
View Entire Thread 4
Okay so lately I’ve been complaining that my Aquaphor is rubbing off at night and my lips have been redder in the last month. Well, in the last 5 days the redness has decreased a lot. My lips are looking really good actually.
I switched from Aquaphor to Vaseline and switched my toothpaste to Toms of Maine. Also, I changed my pillows and blankets and my Vaseline (previously Aquaphor) doesn’t seem to rub off as much at night anymore.
Finally, I got my biopsy results back and my pathologist thinks I may have an allergy but my dermatologist disagrees. I’m doing some allergy tests right n ...
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Forum: Peeling Lips
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Re: Injections start next wednesday!
by lipshitz 11 y
Thanks so much for sharing your biopsy results, goldstandar, and hope you do keep us posted about these injections, it would be great to have a public, modern case study with this treatment, since we have no idea how long those other cases stayed ”cured” or the effect of long-term hydrocortisone use if that was employed.
Would you be able to write up a case history about yourself, a list of your treatments tried, and a picture of your lips at their worst, and a picture after the treatment?
Thanks again for contributing to the community and our search for a cure (or at least some f#^ ...
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Forum: Peeling Lips
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Re: 1 day in medical college
by Vunk 12 y
I’m quite tiring of this actually, I’ve tried so many things which have led to nothing. Like I said, I went to another derm today and he prescribed me a cream for atopic dermatitis and eczema so I’ll give it a try, don’t have got it yet, drugstores were closed this afternoon, I’ll buy it tomorrow.
Time flies and I regret not having found out this forum at the beginning of my condition, this would have avoided me from wasting my time during more than one year and half with derms and chapped lips creams.
I wouldn’t really care about desquamation if this would concern my navel but why m ...
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Forum: Peeling Lips
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Re: Is anyone going to try it?
by sirpreis 12 y
I’m thinking about trying it (still waiting for my biopsy result regarding HPV, which should be coming in in the next few days; my derm will probably want me to use either something like Zyclara if it is HPV or something like Protopic if it’s not.. so we’ll see).
When trying the cocoa butter method, I won’t use that Palmer’s cocoa butter (I live in Germany, so it’ll probably be hard to get exactly that product; and also it contains all kinds of stuff, so I wouldn’t want to use it anyway). I will probably make myself my own lip balm containing pure organic cocoa butter and some kind of ...
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Forum: Peeling Lips
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Re: White skin build up besides lips
by sirpreis 12 y
My huge crust on my bottom lip just came off (well, it was just laying on my lip, so I manually took it off, without any force, I hope that’s ok...). There was some white fluid underneath, which is probably one of the things that’s smelling. I will take it with me to my derm today. It could be some sort of fungal/bacterial build up, but it might just be water that came inside from the side (the crust was lifted up a little on the side) and then couldn’t get out. That could be very possible, but I’m not sure.
The second thing that seems to smell are the often soaked (by saliva) parts on ...
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Forum: Peeling Lips
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Re: vunkkkkkkk and lip balmsss
by jsl123 12 y
i mean vunk to tell you the truth if i see any sort of progress and improvenment like you did i would probably continue doing the leave it alone theory for upto 1 year. in hope that it eventually comes to a complete stop. or even better goes into remission.
i think and this is just my opinion i could be wrong but maybe you mighta got 100% cured if you woulda kept going. but im sure you know your situation the best out of all of us and i lookforward to hearing your biopsy results please keep us posted on your next treatment.
and also how are your lips traveling do you still have full ...
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Forum: Peeling Lips
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Diagnosis of Oral Psoriasis
by longterm 12 y
”Although psoriasis is characteristically a skin condition, some clinicians believe it may uncommonly manifest on the lips, tongue, palate, buccal mucosa, and gingiva. A higher frequency of fissured tongue occurs in patients with psoriasis. The following 3 findings are suggestive of oral psoriasis:
1. small, whitish papules that yield bleeding points upon scraping
2. red and white plaques that follow skin lesions
3. bright-red patches
Because oral psoriasis rarely manifests without skin involvement, an oral diagnosis is made with the finding of skin lesions that are confirmed with ...
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Forum: Peeling Lips
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Re: I drank only water for 2 weeks and my lips stopped pe...
by CrustNoMore 7 y
Questlf,
Do you have anything like Canesten duo capsule available in your country? This medicine is an antifungal that is not made for the mouth (it is made for the vagina) but it is edible.
If you are very desperate, maybe I can post you some medicines to try if that would be helpful.
Personally form my research, I think EC is a form of retention hyperkeratosis of the lips that occurs in response to chronic inflammation. A lot of people’s biopsy results on this forum came up as showing hyperkeratosis. EC also looks very similar to the retention hyperkeratosis on this lady’s fac ...
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Fasting: Water
Probiotics
Perioral Dermatitis
Oral Allergy Syndrome
www.curezone.org/forums/fm.asp?i=2362219
Biopsy Update....sort of
by #92305 16 y
View Entire Thread 7
Alright guys, the biopsy results came back and my derm says that they found ”impetiginized cheilitis” I have done some research but not enough to understand whats going on. I will wait until Monday when my doctor actually explains to me what this is.
From what I have researched, It says it is ”pyoderma of the lips”.
It can algo go by ”Impetiginous Cheilitis”
---------------------------------------------
Adjective: impetiginous `im’pitijunus
1. Of or relating to or having impetigo
---------------------------------------------
Noun: impetigo `impi’tIgow
1. A very co ...
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Forum: Peeling Lips
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Re: Please answer me, thank you very much
by suburbanz 18 y
Update lip biopsy result show yeast infection.
I been taken Diflucan for 14 days now to treat the yeast infection for my peeling lips. I also apply corticoid ointment on my lips.
I don’t see any improvements since I been on my medication.
My lips are still scabbing up.
I still have white stuff sticking on my teeth.
My lips still washes and peels off.
I don’t know what to do, but keep hoping my lips will eventually heal up.
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Re: Sjogren syndrom ... we might all have
by ECblog 15 y
I have been thinking about this as well. I experience some of the symptoms:
* I have had dry irritated eyes during the last year. This is probably because I got a job about a year ago where I sit in front of a computer all day long.
* I always have had pretty dry skin in general
* I can sometimes have a dry nose
But then again I don’t experience any joint pains, dry mouth, extreme fatigue etc.
Some questions for you alesiom11:
1. When did you have your biopsy? Just recently?
2. What kind of biopsy did you do? Did they take tissue from you lower lip?
3. Can you tel ...
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Re: update
by jsl123 12 y
mmm 6 weeks i thought you were on them for longer i would expect 6 weeks to be long enough if it was going to work dont you agree? i mean you obviously didnt think it was working becasue you and your doctor decided to stop.
vunk in rgeards to biopsy firstly get f***ckcininigngggg virus’s and wart virus’s tested for tell your doc to get the pathologists to test for everything!!!!!!!!!!!!!!!!
my biopsy results will start to flow through by the end of the week there culturing for everything so not everything will take 8 weeks.
healing my doctors said its best to get biopsy’s when cr ...
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Re: Longterm what are you doing
by Ibinns 11 y
Also, I wanted to add that hydrocortisone & neomycin ARE NOT injected along with the hyaluronidase. The hydrocortisone & neomycin is constructed into an ointment that is then placed on the lips after the hyaluronidase injections. The hydrocortisone & neomycin are both leveled at 1% so, please make that clear to the doctors of those members here who have found doctors willing to try this treatment.
Another thing to keep in mind is that some patients went through this treatment for two weeks and some went through it for more than two weeks before showing any signs of it working so, don’t ...
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Re: Acidity not specific cause to lip problem....
by Eedbeedee 18 y
I have been using a product mentioned in Andreas Moritz’s book called ’Colosan’ or ’Colozone’ to bowel cleanse. I believe they are the same thing. It is really easy and painless. All you do is add one scoop (or heaped teaspoon) to a glass of water, stir and then drink last thing at night. When the glass is empty, squeeze the juice of half a lemon into the same glass and drink as well then go to bed. In the morning you should get some diarrohea. It is not bad, I usually go about 3 or 4 times to the toilet during the next morning.
Alternatively you could go and get a colonic irrigat ...
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Re: I am praying..
by danielxmiller 12 y
I’m rooting for them just as much as you are... But saying every case of ec is hpv is kind of illogical as several people on here have had their biopsy results showing no indication that hpv us present. If we need to have a specific test done that a normal biopsy wouldn’t show that would make more sense... But just because the lips build up skin continually can’t be justified by one thing, just like red bumps on the skin don’t correlate to one skin condition. I would love to believe that, but so far only Lilo has been diagnosed with hpv. Jsl hasn’t been tested for it although I do believe ...
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staphylococcus and streptococcus
RRR Educational by jsl123 12 y
View Entire Thread 21
was grown in some of my swabs taken back at hospital. they clearly have said that this is a secondary infection and is not the underlyeing cause of my lips biopsy. they said if the crust remains the bacteria thrive and grow off that. thats why they have asked me to not let the crusts build up.
i dont really understand wtf this means becasue alot of my swabs and biospy’s have grown in these test. but iv treated my lips both with plety of anti-bacterial and anti-biotics for several months. thats why i would agree with them in saying it is secondary.
anywyas just thought i would let y ...
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Re: vunkkkkkkkkkk
by Vunk 12 y
Hiii.
Yeah I agree in this picture I just have small flakes on my lips and honestly if every one here just follows the leaving alone treatment and allows his lips to get wet he would have exactly the same result than me.
It is more or less the same thing that Daniel experienced and according to me his progress is still just an illusion, no offense at all but when he wasn’t used to wet his lips they objectively weren’t showing some improvement and it’s just when he decided to wet them a little that they started to be esthetically more good.
Of course Daniel you said that underneath ...
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Re: monday going for a detailed check up!!
by jsl123 12 y
healing your father is a cancer doctor so i would suppose he would know at lot. can you ask him this for me when i had my biopsy results this is how they followed ill right it out exactly how it reads-
there is a marked hyperkeratosis and the epidermis shows moderate acanthosis but no evidence of dysplasia or malignancy. there is no significant inflammation on the underlying dermis within the scale crusts there are numerous PAS positive fungal spores it is difficult to identify definite hyphae. there are also bacterial colonies present.
cooment by pathologist- as i have indicated t ...
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Re: daniel miller and i hopethishelps
by Vunk 12 y
Remember that I just found out this forum recently and this was because of I just got dissatisfied with my few dermatologists I had met until that moment.
Since many months I was used to try the leaving alone method because a lot of people claimed here that it was the one and only solution, I realized that more than four months after the beginning there objectively wasn’t very improvement, so it has been just a few days that I decided to go back to one of my derm to another step, with a knowledge little more detailed of my condition, because before, I wasn’t aware of it, given that it j ...
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Re: attention jsl!
by jsl123 12 y
hey healing
yeah i do believe we all have the same thing. just on different scales and levels. well im noow convinced if these guys cant find what is this crap no one will. they just sent in about 10 doctors with some pathologist to get swabs. i wet it for them to see what it goes like and now there all really interested as they can see how bad it goes. they took about 20 different swabs and cultures and pieces of my actual lips. so far the biopsy results aernt in yet so were still waiting.
in regards to were im at i would rather not tell exactly thats a bit creepy! lol in saying that ...
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Re: Ec or Not-Ec
by lipshitz 11 y
There is a significant amount of medical literature referring to exfoliative cheilitis. However, this is clearly a symptom with unknown/ variable etiology. I think the presence of inflammation is a key, however, we’ve seen people with peeling lips get biopsy results that show no inflammation -- therefore, either we need to accept that the same symptom can be expressed without inflammation and our nomenclature is faulty, or we need to present a new name -- i.e., labial hyperkeratinization.
What I find frustrating is the perennial bickering over whether people with success on this forum ...
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