Re: serious mystery - peripheral neuropathy despite healthy paleo diet

Dear Pankulj,

So sorry to hear of your problems, very similar to mine but a bit worse, although mine have worsened slightly in the last few weeks - now a slight problem in my left foot and also a kind of occasional "attack" of tingling and a fevereish feeling progressing in waves around the right side of my head and face, and now to the left side of my throat sometimes. When this occurs, I feel wobbly generally, and a bit weak in my right leg - where the burning occurs in this thigh, it feels quite feverish at the top - a kind of "fluey" feeling.

It's been difficult to do much as I have been travelling a lot, but am now settled and must solve the problem. I don;t dare think of ALS or MS! I bought some magnesium & B12 & multi-B supplements, they didnt seem to really do much so have stopped them - your experience with 3 years of B12 injections is sobering!

I suspected my diet was somehow making me weak, and that after 3 years, this is why I got candida and then neuropathies. I was given advice to check out "metabolic typing" because if "you keep doing what you've always done, you'll keep getting the rersults you always get" !! I bought the book, found I am probably a "Mixed" metabolic type, and that even the "Protein" types should eat some grains. I really suspect 3 years of no grains whatsoever, may be my problem, why I d ont know - even though one is theoretically getting enough B vitamins, there may be many properties of foods whaich we cant analyses scientifically.

I originally gave up grains & went Paleo due to IBS caused by bread especially, and I thought paleo must be the ideal diet for us all. But, since recently I felt abit better when having some dark rye bread in Russia,I decided to start eating lots of pumpernickel (which I can digest well and seems to give me strenghth) and lots of a type of refrigerated vacuum-sealed golden flax available here in oz ("Stoney Creek Golden Flax Meal") which is kind of rolled into flakes rather than ground - highly digestible and I thought the Omega 3's may help as well as its being a type of grain (since fish alone clearly wasnt the answer - I;ve been having plenty of wild herrings & salmon). It has only been the last few days that I've been home and able to do this, so too early to say, and clearly a long-term dietary deficiency wont be corrected overnight. Have been a little better yesterday & today, although strangely, I am havign an "attack" right now when I saw your message! If I am awoken by an attack at night, I've been getting up & having a big bowl of the flax (mixed with water into a "porridge") and it has helped. I have a referral to a neurologist next week, so should know by then if the diet change is helping at all. I've beend deliberatley cutting down a lot on red meat and fats, and having lighter proteins, the rye and flax, and much less fats - still the same veg & fruit of course, for health!

One more thing, because I feel quite feverish at times, I'm wondering about shingles - my mother & grandfather both had it, although I have no skin symptoms. The weird thing is, everyone says how healthy I look, especially since starting to eating the rye and flax! I guess there's no chance you could have shingles of 3 years, so I do wonder about the no-grain diet being the cause for you, and for me as well. I read that soem people develop problems on the rawfood diet, although they are quite coy about what the problems are.

keep in touch on this forum, and so will I - my very best wishes and sympathy, I know what you;re goign through. Tweet