Unfortunately I don't have a cure for our type of problem to offer (believe me if I did I would definetly share it with all of you). I am having the same problem you are describing and the denying of the problems existance of doctors and family is the worst thing.
I know what comments and gestures you are talking about I've experienced them many times before as well and some people even made some pretty clear hints in regards to my smell.
I don't know where it comes from or what to do about it next (since many doctor visits, change in diet haven't helped yet), but there is a cure for this and I don't think this problem lies in our imagination. Comments and gestures are too obvious.
I know I didn't help much, but I believe you and I know what you are going through, really.