Re: Pyroluria and Histadelia

Hi! It's so good to find someone with pyroluria, I have no one to talk to about it!

When it says ref up to 0.08 ,does that mean you have to have over 0.08 to have it? I'm confused about the testing. I've just come off anti-depsressants, and I'm still on a mood stabiliser. I was taking B6 and zinc before the test, I think it may have effected the results?

Painful muscles - only in the neck and shoulders, not really joints - I have this! It's horrible. I never put it down to pyroluria, that's interesting.

Stretch marks - have these really bad, have you found anything that helps?

Paper thin nails and hair! Me too, nails always break, hair is really fine

And I also have a bland, ash brown/blonde hair colour! But I've always been told "I love it. It's so natural!" I've always dyed my hair because of this, it's really lifeless without hairdye, and my skin is so pale it makes me look ill!


Insomnia but fatigue during the day - I can't sleep until the early hours of the morning, and I'm tired all day.

Eyes are sensitive to light - this as well, have to wear tinted glasses

But I always get a great tan, real quick and have a golden colour always (probably my european nationality?) - I tan lightly eventually when i go on holiday, but I don't like going out in the sun as I'm sensitive to the heat, and get rashes.

No body odour - lucky you, i have this :o(

Never feel nauseous - i do but not severe, doesn't trouble me too much.

And of course the mental problems - jittery, angry, spaced out, wild, need drugs, alcohol, cigarettes, time alone (which is hard in a long term relationship!!) - I took a lot of drugs and alcohol before, but tee total now which has really helped.

I didn't know milk thistle was best after 11pm? I'm going to try that.

Do you have a natural dr treating you? What doses and supplements do you take?


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