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Re: update on B17/vit C IV treatment
 
Isis2004 Views: 2,475
Published: 19 y
 
This is a reply to # 338,453

Re: update on B17/vit C IV treatment


Thanks for your advice guys, some very uplifting advice there!

I suppose we just see a dramatic reduction in the CA199 marker from 188 to 24 with the chemo, but an increase from 24 to 71 after the alternative. Its only natural for us to feel reluctant to spend another £4000 on a treatment that may not be working (according to the test and the fact mum has lost appetite and lost weight).

She has gone from 55kg (121 lb) to 47kg (103lb) in the space of 5 weeks after alt treatment. Now she did seem to be eating a bit more yesterday, so hopefully its just a bad phase. Plus she had constipation at one point which put her off food. Mum is very thin on her arms and legs. Her weight before diagnosis 1.5yrs ago was 9.5 stone (not sure what that is in lbs or kg).

We have to drive 150 miles, 3 times per week with mum when on this treatment which certainly has its effect on mum too.

The alt. doctor has a specialised blood test which tests differently, this test is £250! So we thought we could use the standard tests at the hospital instead to see any results. The nurse who administered the alt. treatment said the best judge is how the patient is feeling in comparison to before treatment. Yes she did have more energy, but was this because she was off the chemo for a couple of months? or was it the B17/Vit C? Its been a month now since she finished the alt treatment.

Re the last post from Parazapper. Mum has been taking Co Q 10 (100mg) x 2, multivitamin complex, alpha lipoic acid, prolyetic enzymes (omnizyme forte), osteoplex supplement, quercetin, etc.

 

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