Ellena Dee manages one called Exfoliative Chelitis (Biomedically Focused Research Group). Cheilitis is the correct spelling but it is spelled that way in the group.
Ellena has confirmed she is still in remission after using a "balanced" moisture approach (thin layer, careful not to remove crusts prematurely, for a year's time) with Aquaphor. She posts frequent new pictures, albeit with lipstick, which seem to show her still to be in remission, for anyone who is doubtful.