Re: Is this forum dead?

I have had the condition of chronic peeling lips for 13 years, and have been making considerable progress since a major stress-related, bacterial-worsened flare-up a year ago. I used to be fairly active here, and found that it was easier to collaborate with people on Facebook, whenever I was active there, but do check here from time to time. Facebook has a pretty supportive community, and several active groups, but has some of the same pitfalls that existed here and drove many people away it seems.

I created a newer Facebook group to address these issues, Mutual Aid Network for Chronic Peeling Lips, but there is also a good one that is for Biomedically-Focused discussions, moderated by someone previously with EC who is in remission, Ellena Dee, and then there is the main group with over a 1000 members but only a couple dozen active contributors at any one time, also moderated by someone who is healed from EC. I hope to join their ranks soon myself, after all this time.

I will check out the Discord group, interested in collaborating.

-C.S. Tweet