Re: Is this forum dead?
I really feel for you, this thing is not easy to deal with & I've not met any one else with it in person, only online.
When I first got EC I dealt with it alone up to a point
I then asked my GP & my dentist about it
Then ended up with a specialist dentist who helped me try to treat it with different ointments
Nothing seemed to work too well & I was so upset
You can't eat, speak, laugh normally & you're constantly self conscious
Well it sort of waned over time on its own but now it has resurfaced
Having read some of the theories on this site, they're all over the place & often fairly divisive
Kinda got me depressed just reading all the weary tales
There are people on here who've dealt with this for 20 years, I dread that
I wish there were a universal cure because the professionals I dealt with never reassured me of much progress
I even got a biopsy done & blood taken & the bastards 'misplaced' them both
Really knocks your trust of doctors
I'm cautiously 'leaving it alone' at the moment but I really don't know what the best approach is
Keep the head up bro, don't let this define you