Oh, Carty, i'm so sorry you have to go thru this! I would dare to compare all this medical mambo-jambo to a genocide. It is happening in every aspect of medicine, people die every day being just neglected one way or another by doctors.
I'm so sorry that i cannot give you any advise, i don't know what to do myself, i'm reaching out and scream for help.:( Maybe we both get some help and directions to follow, God is with us, we are not alone - and I mean that, not just empty words.