Hi,
I too suffer badly from foliculitis decalvans . I got diagnosed just short of a year ago, and no one unstands the pain that I'm in. My foliculitis is very deep, at one point you could see my skull, it's tearing me apart as no one understands, I'm very anaemic due to the amount of blood loss, when one erupts. I'm gonna try and figure out how to upload some of my pics of my scalp, to see if anyone has this as bad as me.