Re: any suggestions?

Hey - I'm new here but thought I would reply because I know exactly what you're saying. I've suffered from this embarrassing condition for about 18 years and it sucks. When I first started getting teased at school, I went straight to the doctor to get tested for BV etc, but there was nothing wrong with me. I was too embarrassed to pursue it any further.

I've only just become really proactive in the past year after doing a lot of research online and finding out about TMAU and the like. I went to a couple of doctors last year - one did a whole bunch of bloods and found nothing wrong and another laughed at me when I told him that people make my life hell because I supposedly smell like dead fish - neither doctor could smell anything. Neither can my family or my partner (he thinks I'm imagining it) or one of my lecturers at university who I talked to when I was at my wit's end. Like you, I've tried all the usual measures like charcoal, chlorophyll, b2, probiotics, ph balanced soap, avoiding too much choline... nothing seems to help.

I've found that my anxiety is a major trigger - I don't sweat but I start to feel hot and panicky can kind of feel this aura of panic surround me. :-/ Obviously, never knowing if I stink or not is a huge anxiety trigger. I'm going to try and build up the courage to see yet another doctor and see if they'll prescribe me some anti anxiety meds and see if that will make a difference.

You're not alone. :) I hope so much that a cure is found for this in our life-time - I can't imagine living the rest of my life being ostracised for something that's not my fault. If people only knew how hard we try not to offend their senses with this issue, I wonder if they'd be any more compassionate.