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Re: Hemophilia?
eoeoe69 Views: 3,976
Published: 11 years ago
This is a reply to # 1,935,115

Re: Hemophilia?

thanks a lot Lolite Smile i don't wanna discuss nothing, just research, i know is genetic and cannot change, but there must be things that can be worse or better for it (such foods, herbs or whatever...)

i've been looking on medline,

like you said is the missing factor VIII,

"The main treatment is injecting the missing clotting factor into the bloodstream"

also here talks about the treatment

Treatment With Replacement Therapy

The main treatment for hemophilia is called replacement therapy. Concentrates of clotting factor VIII (for hemophilia A) or clotting factor IX (for hemophilia B) are slowly dripped or injected into a vein. These infusions help replace the clotting factor that's missing or low.

Clotting factor concentrates can be made from human blood. The blood is treated to prevent the spread of diseases, such as hepatitis. With the current methods of screening and treating donated blood, the risk of getting an infectious disease from human clotting factors is very small.

To further reduce the risk, you or your child can take clotting factor concentrates that aren't made from human blood. These are called recombinant clotting factors. Clotting factors are easy to store, mix, and use at home—it only takes about 15 minutes to receive the factor.

You may have replacement therapy on a regular basis to prevent bleeding. This is called preventive or prophylactic (PRO-fih-lac-tik) therapy. Or, you may only need replacement therapy to stop bleeding when it occurs. This use of the treatment, on an as-needed basis, is called demand therapy.

Demand therapy is less intensive and expensive than preventive therapy. However, there's a risk that bleeding will cause damage before you receive the demand therapy.

(Also explains other treatments and info)

I don't say there must be a cure, but there must be more useful information outside from the web about this

your experience for example, thanks again Lolite!



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