thanks both, --also i found different things on internet--
This is from a place called tradicional chinese medicine guide:
Hemophilia treatment is mainly conservative local treatment and replacement therapy to stop bleeding, hemophilia people’s lives to avoid injuries or heavy physical activity; try to avoid injections and surgery; forbidden to take drugs affecting platelet function, such as the A Division aspirin, indomethacin, dipyridamole and so on, blood stasis of Chinese herbal medicine should be avoided.
This is from news-medical dot net:
Herbs which strengthen blood vessels and act as astringents may benefit patients with haemophilia, however there are no peer reviewed scientific studies to support these claims. Suggested herbs include: Bilberry (Vaccinium myrtillus), Grape seed extract (Vitis vinifera), Scotch broom (Cytisus scoparius), Stinging nettle (Urtica dioica), Witch hazel (Hamamelis virginiana), and yarrow (Achillea millefolium).
No studies have examined the value of herbs for haemophilia specifically, and you should never use herbal therapies without your doctor supervision. However, based on their own experience, health care providers may recommend the following herbs to strengthen blood vessels and act as astringents (causing contraction) to make bleeding less severe:
Bilberryfruit (Vaccinlum myrtillus)
Bilberry fruit (Vaccinium myrtillus), Grape seed extract (Vitis vinifera)
Hawthorn berry (Crataegus monogyna), Scotch broom (Cytisus scoparius)
Stinging nettle CUrt/ca dioica), SWitch hazel (Hamamelis virginiana). Yarrow (Achillea millefolium)
In addition, people with haemophilia should avoid the following herbs, which tend to make bleeding more severe:
Ginkgo (Ginkgo bilob, Garlic (Allium sativum), Ginger (Zingiber officinale)
Ginseng (Panax spp.), Horse chestnut (Aesculus hippocastanum), Turmeric (Curcuma longa), White Willow (Sahix alba)
Other herbs, such as licorice, dill and oregano should be used with caution and under the advice of a trained herbalist.
Supplements and Herbs
Hawthorn berry (Crataegus monogyna), Bilberry fruit (Vaccinium myrtillus), Scotch broom (Cytisus scoparius), Grape seed extract (Vit is vinifera), Yarrow (Achillea millefolium), Stinging nettle (Urtica dioica), Witch hazel (Hamamelis virginiana),Cissampelos pareirae
While the above-mentioned herbs may be useful for haemophilia patients, there are a number of herbs that they should avoid, as using these herbs will only increase the severity of bleeding. Some of the herbs that need to be avoided by haemophilia patients are as follows:
Garlic (Allium sativum), Ginko (Ginko bioba), Ginseng (Panax spp.), Ginger (Zingiber officinale), Turmeric (Curcuma longa), Horse chestnut (Aesculus hippocastanum)
Lifestyle and home remedies
These steps may help you avoid excessive bleeding and protect your joints:
Exercise regularly: Activities such as swimming, bicycle riding and walking can build up muscles while protecting joints. Contact sports — such as football, hockey or wrestling — are not safe for people with hemophilia.
Avoid certain medications: Drugs that can aggravate bleeding include aspirin and ibuprofen (Advil, Motrin, others). Instead, use acetaminophen (Tylenol, others), which is a safe alternative for mild pain relief. Also avoid certain blood-thinning medications, such as heparin and warfarin (Coumadin), which prevent blood from clotting. Certain herbal supplements also contain ingredients that may cause bleeding, especially if you have hemophilia. Talk to your doctor before taking any herbal supplements.
Practice good dental hygiene: This can help prevent the need to have a tooth pulled, which can lead to excessive bleeding.
Protect your child from injuries that could cause bleeding. If your child has hemophilia, ask your doctor for guidance that can help your child stay active while avoiding injury. Kneepads, elbow pads, helmets and safety belts all may help prevent injuries from falls and other accidents. In addition, keep your home free of furniture with sharp corners and keep sharp objects out of reach or locked away.
and here also talks about an study on hemophilia hemorrhage: http://www.ncbi.nlm.nih.gov/pubmed/21866655
what do you think?
thanks a lot Lolite i don't wanna discuss nothing, just research, i know is genetic and cannot change, but there must be things that can be worse or better for it (such foods, herbs or whatever...)
i've been looking on medline,
like you said is the missing factor VIII,
"The main treatment is injecting the missing clotting factor into the bloodstream"
also here talks about the treatment
The main treatment for hemophilia is called replacement therapy. Concentrates of clotting factor VIII (for hemophilia A) or clotting factor IX (for hemophilia B) are slowly dripped or injected into a vein. These infusions help replace the clotting factor that's missing or low.
Clotting factor concentrates can be made from human blood. The blood is treated to prevent the spread of diseases, such as hepatitis. With the current methods of screening and treating donated blood, the risk of getting an infectious disease from human clotting factors is very small.
To further reduce the risk, you or your child can take clotting factor concentrates that aren't made from human blood. These are called recombinant clotting factors. Clotting factors are easy to store, mix, and use at home—it only takes about 15 minutes to receive the factor.
You may have replacement therapy on a regular basis to prevent bleeding. This is called preventive or prophylactic (PRO-fih-lac-tik) therapy. Or, you may only need replacement therapy to stop bleeding when it occurs. This use of the treatment, on an as-needed basis, is called demand therapy.
Demand therapy is less intensive and expensive than preventive therapy. However, there's a risk that bleeding will cause damage before you receive the demand therapy.
(Also explains other treatments and info)
I don't say there must be a cure, but there must be more useful information outside from the web about this
your experience for example, thanks again Lolite!
Strengthening the blood vessels for the sole purpose of reducing the risk of bleeding in the first place would not be a bad idea.
Herbs high in silica and vitamin C would be the most effective.
For silica I recommend diatomaceous earth, bamboo stalk, oatstraw, couch grass, nettle leaf or seaweeds.
For vitamin C rosehips, acerola cherry, amla or foods such as peppers, kiwis, papaya or berries.
I have a friend son's with hemophilia, my friend said me is about blood clotting that increases the risk of bleeding and injury. It is also genetic.
There's some natural treatment?
Not really. Since this is a genetic disorder there is no natural way to change the genetics so that he can properly produce clotting factors.
also things to avoid?
Again not really. The blood is not going to clot properly regardless due to the lack of clotting factors.
PD: I've searching about this in curezone but didn't see anything useful, also i've seen in other webs, but i trust more in people from truth in medicine, and of course HV... hope this post also can help others with same problem
Something that they can try that may or may not help is to focus on strengthening the hypothalamus and pituitary. The reasoning is that the drug Desmopressin is used to help treat hemophilia by stimulating the release of factor VIII. Desmopressin is a synthetic version of arginine vasopressin (AV) produced by the hypothalamus and stored and released by the pituitary.
Maybe supporting the hypothalamus and pituitary will help him increase his own AV.
Herbs that will support these glands include alfalfa and parsley leaf. Periwinkle (Vinca minor) also helps increase function of parts of the brain by increasing ATP. Periwinkle is normally hemostatic as well, but I don't know if this effect will still occur in the absence of clotting factors.