Re: I am only 13 years old. I was diagnosed with this disease one year ago.I have to take Diamox 3 times a day.

Hello my name is Nicole and i am also 13Years old i typed in this exacte thing on my computer and you showed up i have bine dyignost with Psedotumor Cerebri just like you, and i was verry interested in your story because it is also like mine because they have done at least 7 to 8 spinal tapes and some of them have bine high and some have bine low , My doctor put me on Diamox 1 and a half times a day unlike you i do not have much spinale fluid but do have spinale fluid and my vision is somewhat not verry good i got migrains in the begining of 2009 when i first started middle school and am now in the 7th grade and i have missed alot of school too , and i dont like my headaches like you but i just wanted to type to you to not give up and to live your life and when you get headaches just say to yourself "EVERYTHING HAPPENS FOR A REASON " :) that is what i say when i end up getting headaches and i hope that you get better as i hope that i do but then again im not ganna get a shunt put in my head and i wish you the best of luck with that and hope the best to you :)
SINCERLY , Nicole :) Tweet