I am only 13 years old. I was diagnosed with this disease one year ago.I have to take Diamox 3 times a day.

I have had only 4 spinal taps within this year.My Docter is on the verge of deciding if I will have a shunt put into my brain to drain the fluid.I am very nervous to have to get surgery.I will be very happy when this gets over.I'm so tired of my headaches and most of all, my double-vision.I have a very hard time at school.I have to miss alot of school days because of Dr.'s appointment's and from having spinal tap's.I have of this until I was diagnosed with it.I would like to know more about this very rare disease.
My doctor said this disease mostly happens to overweight teen-
age girls, but I am not very much overweight.Thanks- you for listening to what I have to say. Tweet