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After reading all of your messages I feel obliged to let you know that lichen sclerosis can indeed turn to cancer. I know because I have had three laser treatments in that area where they burned the skin off right down to the last layer and still ended up with two major surgeries. I know this is not what you want to hear but it is what you need to hear. I have had both a vulvectomy (first surgery) and a radical vulvectomy because of cancer. Doctors try to avoid this disease because they don't understand what they are dealing with and some really don't seem to care. I have seen MANY, MANY doctors about this and not one of them prescribed anything but the steroid. After ten years of suffering, I tried yet another doctor because I had moved to a new location for my employment. Thank goodness he was "with it" enough to immediately take me off work and get the ball rolling. I would not be alive today if it had not been for this man. Seems like all of you - the ones I have read anyway - have so far escaped this. I was given steroids and, not knowing what the side effects of steroids were, used it all the time and in ample amounts. Not one of the doctors I had seen prior had mentioned anything about the dangers of this cream. I cannot stress enough to use anything BUT the steroids.....anything!! Obviously, I am very depressed about having my vulva and clitoris removed but at the same time I am happy that the doctors, and I had a team of them, found the cancer in time to save my life. I have grandchildren - 5 of them - and I want to be able to enjoy them - I have learned so much from this forum that I feel I may have been able to avoid such measures if I had had more faith in the internet and what's on it. I still have lichens sclerosis on the parts that are left so I will indeed try some of the things that you people have suggested here. Thank you!!
What has worked for me to halt the symptoms of Lichen Sclerosus is pure Calendula Oil. I use organic from Herb Pharm, which you can easily get online or in some health food stores. It has alleviated all symptoms and halted the progress of this disease for about a year now - and I was miserable. I promised my daughter, a doctor, I would post online to help others. Good luck.
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