I was diagnosed with lichen sclerosis a couple of years ago. I underwent several rounds of using the topical steroids (first clobetasol, then mometosone fuorate)before they helped. I think my doctor underprescribed. I read on the Internet several different recommended doses and finally went with using the steroid (mometosone fuorate) twice a day for two weeks, then once a day for two weeks, then every other day for two weeks, then twice a week for several weeks. Sometimes I would go back to once a day if my condition got worse. Now I use it about once every week or two. It does not completely relieve the symptoms, but keeps them under control enough that I can sometimes enjoy having sex. Only time will tell if so much use of topical steroid will cause me any problems. It's my understanding that the main concern with using the topical steroids is that they might cause "striating" of the skin tissue, and I think that is mainly a cosmetic issue, anyway. If anyone knows any more about this, please let me know.
I am currently looking for information for alternative treatments of this condition, especially acupuncture or herbal therapies. I also suspect that stress aggravates the symptoms.