Dying to live, I also have the same problem. I seem to never be able to get myself totally clean unless I use soap and water.
I have contacted the CDC and asked them to read the posts on this website. They replied that I needed to see my State's Dept. of Health. But they said that if my physician would send them a sample of my blood they would test it.
Another website you should check out:
http://health.groups.yahoo.com/group/bodyodorgroup/
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Here is another thing that I have found that I will paste here:
Questions in The Gastroenterology Forum are currently being answered
by Kevin Pho M.D., who is board certified in Internal Medicine
and is also affiliated with an academic medical center.
Subject: odor
Topic Area: Digestive
Forum: The Gastroenterology and Liver Diseases Forum
Question Posted By: kevin p on Friday, March 21, 2003
Why do I have a fecal
Body Odor ? And why can't I smell if anyone has
passed gas? I've taken several enemas, and detox intestinal
cleansers. I take good showers everyday with deodorant soap, brush
my teeth and tongue after every meal. I'm not even sure where the
smell is coming from. Please help.
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Answer Posted By: Forum-M.D.-KYP on Saturday, March 22, 2003
Hello - thanks for asking your question.
Please understand my limitations over the internet as I have neither
met nor examined you. This information is for patient education
only. Please see your personal physician for further evaluation.
There are several causes of fecal
Body Odor . The most common cause
is constipation. When a person is constipated the walls of the colon
are generally packed or lined with accumulated feces from extended
periods of intestinal overloading. When wastes from the blood arrive
at the inner wall of the colon, the hardened feces prevent their
passage through this wall. Since blood circulates through every
organ in body, toxins in the blood contaminate the entire body.
However, you have already tried enemas without success.
Other causes may be anatomic considerations. Examples include rectal
prolapse, weakness of the anal sphincter or decreased rectal
compliance.
A flexible sigmoidoscopy can be considered to inspect the distal
colon and anus. Other tests you may want to discuss with your
personal physician include an endorectal ultrasound to evaluate for
structural abnormalities or anorectal manometry to evaluate for anal
sphincter dysfunction.
Some studies have shown that intake of vitamin K can control fecal
Body Odor - I would discuss this option with your personal
physician.
As to why you can't smell - there are many causes for this
(anosmia). This can include a respiratory infection, rheumatological
disease (i.e. Sjorgen's Syndrome), medications (i.e. beta-blockers,
ace-inhibitors), or head trauma. You may want to be evaluated by an
ENT specialist.
Followup with your personal physician is essential.
This answer is not intended as and does not substitute for medical
advice - the information presented is for patient education only.
Please see your personal physician for further evaluation of your
individual case.
Thanks,
Kevin, M.D.