Longterm 
ECaccutane
8 y
2,511
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Longterm hi .You have been actively involoved in this forum since many years. Do you still have EC or are you here just to help people clear their ec? I read few of your posts where you mentioned that antifungal cleared up your EC . How did you get EC and what has helped you so far?- Re: Longterm longterm
8 y
2,587
Lugol’s Iodine Free S&H
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This is a reply to # 2,314,455I'm here to help. I'm still not sure of the cause of my EC, though. I have celiac disease, which can cause elevated liver enzymes which I had. My allergist told me that elevated liver enzymes can cause peeling lips. Celiac disease also causes overgrowth of bad bacteria and candida in the intestines. It causes inflammation in the body as well.
At the same time I started a gluten-free diet, I took sporanox drugs for a fungal infection. I wouldn't advise anyone to take this drug unless a doctor prescribes it for a fungal infection since it's a strong drug. My lips healed during this time so I don't know if the drug killed candida or if inflammation decreased in my body due to the gluten-free diet.
Since the following product helped my lips, I don't know if EC is bacteria related.
http://motherdirt.com/mother-dirt-ao-plus-mist
Because I saw on the news that omega 3 heals peeling skin and Daniel's lips healed after eating lots of salmon (good source of omega 3) every day, I suspect that omega 3 might heal EC (as long as you keep ingesting it). However, there is less omega 3 in dairy today due to the hormones given to animals, etc. So, the best source of omega 3 is krill oil (it has more omega 3 in it than fish oil and doesn't go rancid as fast as fish oil). It's hard to eat lots of fish or it's safer to take krill oil pills. Krill oil drastically decreases inflammation in the body. I recommend EC sufferers to try krill oil for a month. Of course, you need to buy a reputable brand or it will not be effective.
- Re: Longterm longterm
8 y
2,510
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Fast and Painless Constipation Relief
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This is a reply to # 2,314,459I recommend Ovega-3 (algae) over krill oil since it doesn't go rancid. But either choice can help us find out if omega 3 stops peeling lips. - Re: Longterm carokann 8 y 2,418
- Re: Longterm Tergot223
8 y
2,437
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Hulda Clark Liver Cleanse
Hulda Clark Cleanses
Fast and Painless Constipation Relief
Oxygen Bowel Cleanser
This is a reply to # 2,314,459I think you are on the right track with this. I suspect an autoimmune disease stemming from gut issues, in my case.
I notice a direct correlation between how my lips are on a very basic diet versus mixing in lots of foods with loads of different ingredients. A trigger may be in the form of a flare up of my psoriasis/dermatitis around my face and a sore/sticky red inflammation on the inside of the lips followed by peeling/drying cycles on the outer lip (EC).
I am still suffering inflammation but my god it is reducing so long as I stick to basic fruits and vegetables. If I use cooking oils it will either be virgin olive oil or coconut oil. I have made a total overhaul to my diet and I am seeing subtle changes in the peeling.
I'd like to suggest a plant based omega 3 & 6 alternative - chia seeds. http://plenteousveg.com/vegan-sources-omega-3/ as well as a host of others.
I would also question these Antibiotic drugs that wipe out all of the gut flora (good as well as bad) - surely this cannot be a good thing, hence why they come with so many warnings.
The best approach is to aid the body in eliminating bad bacteria whilst nourishing the good. The bodies natural state is that of equilibrium, all we have to do is eat the right foods that do this, and not heavily laden toxic foods that disturb the gut and cause the normal autoimmune response to go into overdrive, attacking healthy tissue and cells.
- Re: Longterm longterm
8 y
2,464
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Fast and Painless Constipation Relief
Oxygen Bowel Cleanser
This is a reply to # 2,314,471Chia seeds are also a good source of omega 3. They also aid in dehydration by keeping the intestinal walls moist. You're supposed to soak it in water before you eat it. It mixes well in yogurt or cereal.- Re: Longterm Tergot223
8 y
2,435
Lugol’s Iodine Free S&H
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This is a reply to # 2,314,474What foods do you eat besides those mentioned and which do you avoid ? If you don't mind me asking- Re: Longterm longterm
8 y
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8 y
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- Re: Longterm Tergot223
8 y
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- Re: Longterm FreeAgentNoob
8 y
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This is a reply to # 2,314,459longterm, you've been here for so long and I'm sure you've heard of many possible theories on the causes of EC, but do you honestly believe that the medical field will be able to help us within our lifetime? There are also so many unrecognizable, unexplainable conditions out there that the medical field also cannot give an answer to.
- Re: Longterm longterm
8 y
2,536
This is a reply to # 2,314,547I don't know if the medical field understands this condition since some doctors blow it off as simply chapped lips or nothing going on in your body. Right now, no doctor seems passionate enough to solve the mystery.
With celiac disease, I had digestive issues in which digestive enzymes may have been helpful for EC if it had to do with digestive issues.
//www.curezone.org/forums/fm.asp?i=2306040#i
//www.curezone.org/forums/fm.asp?i=2305822#i
//www.curezone.org/forums/fm.asp?i=2246443#i
What I recommend to try now is omega 3 pills (since you would need to eat a lot of it to get what you need in food and we probaby require more omega 3). I would probably take it in the algae plant form since the seafood form may cause burping and fishy smell. If EC is an inflammatory condition, the omega 3 should decrease inflammation. You could also experiment with digestive enzyme pills (I mean try all of the enzymes listed in the 1st link above to narrow down where you may have digestive issue by improvement or no improvement).
- Re: Longterm FreeAgentNoob
8 y
2,388
This is a reply to # 2,314,550Thanks for the suggestions, I'll talk to my dad about the pills. Since I started taking the probiotics Ibinns used, I started hearing some stomach noises (but no pain) sometimes before I sleep, but I hope this is just normal and not some sort of underlying digestive issue.
Also, I'm not sure if I understood it right, but are you healed right now? - Re: Longterm Tergot223
8 y
2,473
This is a reply to # 2,314,550For how long would you expect to take omega 3 before seeing the benefit ? I'm adverse to supplementation in general. http://plenteousveg.com/vegan-sources-omega-3/ is a good list of sources.
Flax seeds, for example, are relatively inexpensive. According to that link only 65 grams (1 ounch is required daily) 6 times RDA.
The other consideration is omega 6 being a pro-inflammatory - ''Research suggests that Omega 6 inhibits the conversion of Omega 3 into DHA and EPA. So, the Omega 3 from foods like walnuts (2,542mg Omega 3 but 10,666 Omega 6) or sesame seeds (105mg Omega 3 but 5,984mg Omega 6) may not be adequate sources of Omega 3 for conversion into DHA and EPA.''
My trouble comes from understanding why the body is manifesting a pro-inflammatory response in the form of EC and other skin disorders. If EC is due to the maniestation of a digestive/autoimmune disorder what is being achieved from counteracting the inflammatory response with an anti-inflammatory if the problem is only going to continue? ...- Re: Longterm longterm
8 y
2,667
This is a reply to # 2,314,713If you take something like omega 3, it's supposed to decrease inflammation in the body/lips which could be a cause of EC. It's good for your body overall to decrease inflammation so it might be beneficial even if you didn't have EC.
I read somehwere that flax seeds are not really a good source of omega 3 although it has omega 3. I forgot what about it cancels the omega 3 out. So, I would take chia seeds over flax seeds.- Re: Longterm Tergot223
8 y
2,399
This is a reply to # 2,314,755Well a bit of scouting around and I've found a typical outline for an anti-inflammation diet:
http://www.augerchiro.com/files/Inflammatory_Foods.pdf
I eat both flax and chia seeds and I've already upped my intake of anti-inflammation foods as part of my switch to a vegan diet, but my evening meals consist primarily of white potatoes and white rice. White potatoes are pro-inflammatory being part of the nightshade family - more info here : http://www.thepaleomom.com/2012/08/the-whys-behind-autoimmune-protocol.html
I will be substituting the white potatoes for sweet potatoes, and white for brown rice.
“The nightshade veggies contain alkaloids, which act as natural pesticides, and can cause adverse reactions in some people. Some people are more sensitive to nightshades than others – particularly those who are experiencing arthritis, joint pain, GERD or other digestive issues. Removing nightshade vegetables from the diet has been known to greatly reduce inflammation and joint pain.” source : http://natracure.com/blog/eliminating-nightshades-arthritis
Thanks for bringing this to my attention.
- Re: Longterm longterm
8 y
2,387
This is a reply to # 2,314,829Out of the remedies listed in this link, I think the EPA remedy might work best since it has higher omega 3 (as mentioned above). You might also want to directly apply flaxseed oil on the lips.
http://www.drdavidwilliams.com/remedies-for-cracked-lips/- Re: Longterm Tergot223
8 y
2,371
This is a reply to # 2,315,146I'm not sure what good topical application would do if there is an underlining reason why they are peeling. I've pretty much accepted that topical application of creams/ointments/oils is not going to cure them which is why I am focusing on diet and doing everything I can to help my immune system.
I mix chia/flax seeds in with every meal I have now, having only introduced the flax last week. I may start eating organic hemp seeds as well for it's anti-inflammatory/omega 3 properties. I've ceased using aquaphor for the time being only because I'm conscious of elminiating any potential triggers. I'm not sure about you, but my peeling begins with redness/inflammation of the inferior lip (I've posted pictures on here in another thread) and I'm pretty certain this relates to the exfoliation of the entire upper and lower lip. One does not seem to occur without the other, which leads me to believe there is a synergitic link.- Re: Longterm longterm
8 y
2,392
This is a reply to # 2,315,155..just for some relief while your system builds up enough omega 3 or whatever your system is lacking.
By the way, I don't know if just eating foods with omega 3 will get you all you need unless the food is fish which is higer in omega 3, but you need to eats lots of it every day. You may see better results if you get a higher dose in omega 3 supplements.- Re: Longterm Cottonmouth
8 y
2,319
- Re: Longterm longterm
8 y
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This is a reply to # 2,315,163It depends on the supplement or how much omega 3 is included. I read how some people take 2-3 supplements twice a day. It is usually taken twice a day. Again, it depends on the dosage you buy. I would try to find research on the best dosage for omega 3 deficiency or how to build it up quickly.
- Re: Longterm longterm
8 y
2,508
This is a reply to # 2,315,165I copied and pasted this information..be concerned with the EPA, not the fish oil.
"To treat eczema, six grams of concentrated omega-3 fatty acids has been taken by mouth daily. A dose of 10 grams of fish oil has been taken by mouth for 12 weeks. The following doses have been taken by mouth: 12 capsules of fish oil daily (providing 2.0 grams of EPA plus 1.3 grams of DHA daily) or six one-gram capsules (containing 51% EPA, 32% DHA, and 3.6 international units per gram of DL-alpha-tocopherol) for 12-16 weeks. Doses of 1,800-3,060 milligrams EPA plus 1,200-1,920 milligrams of DHA has been taken by mouth."
American Heart Association recommended dosage for adults-
"500 mg/day EPA/DHA (equivalent to two servings of fish per week) for adults for cardiovascular health
1000 mg/day of Omega-3 EPA/DHA – patients with coronary heart disease
2000 to 4000 mg/day of Omega-3 EPA/DHA – patients with high triglycerides"
- Re: Longterm longterm
8 y
2,431
This is a reply to # 2,315,217I read that you should not take more than 3,000 mg fish oil per day. I think you should try for 1,000 mg to start. But, I would use the plant-based version of omega 3 instead of the seafood-based version.
Have you ever tried fish oil supplements before, but stopped because it gave you gas? I remember this happened to me in the past, but it isn't a side effect for most people unless you have a problem absorbing fat. Now, celiac disease tends to cause a problem absorbing fat. I don't know if accutane use creates this problem as well. If you do notice gas after you take omega 3 supplements, then you will know that you have a problem absorbing fat. In that case, I recommend lipase digestive enzymes. I also don't know if algae will cause gas since it's plant based (it's a more common problem). If so, a digestive enzyme like Beano will help with that.
Here are some suggestions I read to reduce gas while taking these supplements:
- Take the supplement right after eating a meal.
- Take a time-released capsule so your body doesn't get too much at once or start with a smaller dose capsule and gradually increase it throughout the day.
- Freeze the capsules.- Re: Longterm Tergot223
8 y
2,332
This is a reply to # 2,315,270It may also be because the fish oil they use is most often rancid.. it's a byproduct (a waste) from the fisheries... this is the primary reason that fish oil consumption is advertised so often by government organisations... it's a way to make money from waste product that would otherwise be disgarded... so for this reason I'd say plant based sources of all 3 omega fatty acids is probably your best often as well. I'll admit my consumption of DHA and EPA is currently non-existant. I get plenty of ALA though from seeds. I'm relying purely on my bodies ability to manfacture it at the moment which is less tham optimal if my EC is linked at all to a deficiency in omega 3. I'm also focusing now on the fact my zinc intake is WELL below the RDA, although I do wonder if most people take in more than 10mg of zinc per day ? The RDA is 12mg, with a tolerable upper intake of 40mg !!!
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