1. Age of AI =

39 years old.


2. State/Country of AI =

USA


3. Gender of AI:

Female.


4. What is the current state of health of the AI (low quality, average quality, above average quality)?

Above average after 17 years of low quality.


5. Does the AI have what visually appears to be ropes? (see photos in above research paper)

Yes.

6. Approximately when was the first rope seen?

Fall 2010.

7. Approximately how many ropes have been seen since the first rope was noticed?

Hundreds of ropes in last three years.

8. What symptoms has the AI experienced in reference to the ropes?

Gas, burping, constipation, diarrhea, abdominal pain, toxic feeling, brain fog, body pain, sinus issues, feeling of a low lying infection, fatigue, insomnia, hormonal dysfunction, sore throat, itchy ears, itchy bottom and skin breakouts.

9. Does the AI have a bloated belly on a regular basis?

Yes.

10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?

Yes. 80% fruits and vegetables for last 18 months. History of high junk food diet, lack of water and lots of sodas.

11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?

Yes. High gluten sensitivity per Metametrix GI Effects Stool Test.

12. Does the AI have food allergies or food sensitivities ?

Yes. Many foods react instantly when eaten. Better food combining and the elimination of a bucket of ropes has improved this problem.

13. Does the AI have behavioral or mood issues?

Not currently but emotions were not quite as level as they are today after moving out hundreds of ropes.

14. Have the ropes been seen only in stool or have they been seen coming out of the nose?

Stool only.


15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?

Ropes have been seen naturally in stools and also with the use of enemas and colon hydrotherapy. Ropes are seen almost daily.


16. If enemas are used, what type(s) of enemas are used?

Water enemas, S.A. Wilson green Gerson Therapy coffee enemas, Volinsky eucalyptus broth enemas and wheatgrass implants.

17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?

Yes. Many mucus ropes and were expelled with each treatment.

18. Does the AI have a history of chronic constipation?

Yes.


19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?

Yes. Chronic sinus issues and headaches.

20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?

Yes. Cystic Acne and boils. Accutane was used on three 6 month occasions in the 1990s.

21. Is the AI currently suffering or recovering from Autism?

No.

22. Is the AI currently suffering or recovering from chronic fatigue?

Yes. History of very weak adrenal glands and general exhaustion. Adrenal glands are improving but fatigue still exists. Insomnia also still exists at times.

23. Is the AI currently suffering or recovering from Lyme Disease?

No.


24. Is the AI currently suffering or recovering from Morgellon’s Disease?

No.

25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?

Yes. Undiagnosed Crohns disease. Severe inflammation of the small and large intestine. Pain, difficulty digesting all food including proteins and fats.


26. Has the AI had a history of a weakened immune system?

Yes. Chronically sick or feeling like there is an underlying infection. This is better today but still lingers a bit.

27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.

Yes. Antibiotics taken since birth for ear infections, cold/flus, skin problems, stomach problems, conjunctivitis (eyes)etc.

28. If Antibiotics have been used, please list the names of specific antibiotics used if possible?

Penicillin, Bactrim, Duricef, Keflex, Erythromycin, Rifampin, Azithromycin, Tetracycline, Monocycline, Doxycycline, Sulfa Drugs, Cleocin and many many more...


29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?

Two parasite Positive Unknown Protozoa results, Blastocystis Hominis, Citrobacter freundii, Morganella morganii and Mucus Strands.

30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?

Yes. Thin hair with split ends, thin nails, needing to eat more food than other people, 20 lb. weight loss with anti- parasite protocol.


31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.

Antibiotic treatment for bacterial overgrowth - Ceftriaxone. Stomach was wrecked and felt weak for several months. No noticeable benefit.

32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.

Yes.

ParaGone - major die off - temporarily effective - still had positive parasite test 6 months later.

Amazon A-P - major die off - temporarily effective - very effective at managing problem for improved quality of life.

Parasite-Free - currently using - gas symptoms are reduced - still seeing ropes almost daily (leading one to believe that the ropes may be related to resolving chronic small intestine malabsorption via detoxification and cleansing instead of the actual parasite problem. The working hypothesis of this participant is that the ropes are the home for microscopic parasites which are now knocked back with Parasite-Free.

33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?

Bahamas and Mexico.

34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?

N/A.

35. Is there any other information that the AI or guardian of AI would like to include in this survey?

I made this survey to hopefully begin an organized dialogue about this health challenge. While there is currently no consensus about what the ropes are, where they come from or how they are transmitted we can all agree that this is a problem that needs more research and attention. I encourage anyone suffering with this health issue to share their data so that some logical conclusions can be determined. Hopefully together we can help researchers develop effective protocols to eradicate this problem. Thank you!

1.Age of AI =22

2.State/Country of AI =England

3.Gender of AI:Male

4.What is the current state of health of the AI (low quality, average quality, above average quality)?
Rock bottom (I don't think anyone on CZ is having a good life right now...)

5.Does the AI have what visually appears to be ropes? (see photos in above research paper)
Yes

6.Approximately when was the first rope seen?
2 weeks ago

7.Approximately how many ropes have been seen since the first rope was noticed?
Just the first one.

8.What symptoms has the AI experienced in reference to the ropes?
I'm unsure which of my symptoms are being caused exclusively by the ropes.

9.Does the AI have a bloated belly on a regular basis?
Yes

10.Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?
Mixed of everything,including fruits and veg every day.

11.Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?
Not as far as I'm aware.

12.Does the AI have food allergies or food sensitivities ?
I eat everything. Yum.

13.Does the AI have behavioral or mood issues?
Since I was born.

14.Have the ropes been seen only in stool or have they been seen coming out of the nose?
Stool.

15.Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?
Use of Prazi/Ivermectin combination.

16.If enemas are used, what type(s) of enemas are used?
N/A

17.If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?
N/A

18.Does the AI have a history of chronic constipation?
Yes

19.Does the AI have a history of sinus issues, migraine headaches or breathing issues?
Yes,since I was 15.

20.Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?
Severe Acne in Teen years. Only over the counter creams used.

21.Is the AI currently suffering or recovering from Autism?
Not as far as I'm aware.

22.Is the AI currently suffering or recovering from chronic fatigue?
Chronic since a kid.

23.Is the AI currently suffering or recovering from Lyme Disease?
Not as far as I'm aware.

24.Is the AI currently suffering or recovering from Morgellon’s Disease?
Not as far as I'm aware.

25.Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?
I suspect so but I'm unsure.

26.Has the AI had a history of a weakened immune system?
suspected but unproven.

27.Has the AI had a history of taking Antibiotics ? Please note extent if possible.
No.

28.If Antibiotics have been used, please list the names of specific Antibiotics used if possible?
N/A

29.Has the AI had a stool test(s) when ropes were present? If so, what was the determination?
N/A

30.Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?
Have always had droopy eyes with only the uncovered part of the eye being very yellow. I have pictures proving this since I was 4.

31.Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.
prazi/ivermectin/pyrantel pomoate/fenben/meben
things came out of stool but symptoms still there :'(

32.Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.
Garlic-A lot of weird things in stool but symptoms unaffected.

33.If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?
Non-US

34.Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?
symptoms since a kid. Lived in Montenegro at the time.

35.Is there any other information that the AI or guardian of AI would like to include in this survey?Your reply:
Im tired of being tired.

1. Age of AI = 29.


2. State/Country of AI = United Kingdom.


3. Gender of AI: Male.


4. What is the current state of health of the AI (low quality, average quality, above average quality)?

Below average quality.

5. Does the AI have what visually appears to be ropes? (see photos in above research paper)

Yes.

6. Approximately when was the first rope seen?

2010.

7. Approximately how many ropes have been seen since the first rope was noticed?

Lost count. 100+


8. What symptoms has the AI experienced in reference to the ropes?

I am not sure if these symptoms are linked but my current symptoms are:

- Fatigue (especially in the mornings)
- Brain fog
- Confusion
- High-level anxiety and paranoia
- Poor social integration
- Slurred Speech
- Abdominal pain (constant)
- Shaky hands
- Depression
- Weight loss
- Hair loss
- Premature greying of hair

9. Does the AI have a bloated belly on a regular basis?

Yes, constantly.


10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?

Mixed. I am currently on a normal diet after being frustrated of limiting wheat, dairy, gluten, Sugar for years with no significant improvement.


11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?

I have had an allergy test by an independant company which came back as positive for cow's milk, yeast, wheat, egg white. My GP has carried out allergy tests since and claims I have no allergies at all.


12. Does the AI have food allergies or food sensitivities ?

See above. It's inconclusive.


13. Does the AI have behavioral or mood issues?

Yes, since a very early age. Poor social skills, anger, anxiety, shyness, generally miserable feeling probably due to being in pain constantly.


14. Have the ropes been seen only in stool or have they been seen coming out of the nose?

Both. But much smaller in the nose so I am not sure if they are the same. I also cough up ropey/wormy looking things through my mouth in the mornings and sometimes throughout the dya.

15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?

Both.


16. If enemas are used, what type(s) of enemas are used?

Plain warm water. Sodium of Bicarbonate. Eucalyptus oil as per Volinsky.


17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?

Yes, from eucalyptus oil. I have not yet tried the others as I am worried that enemas increase weight loss.


18. Does the AI have a history of chronic constipation?

Not really.


19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?

Not really.


20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?


21. Is the AI currently suffering or recovering from Autism?

No, however I definitely think I have some of the symptoms (behavioural).


22. Is the AI currently suffering or recovering from chronic fatigue?

Yes.


23. Is the AI currently suffering or recovering from Lyme Disease?

No.


24. Is the AI currently suffering or recovering from Morgellon’s Disease?

No.


25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?

No.


26. Has the AI had a history of a weakened immune system?

Not sure.


27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.

I took Driclor from the age of 17-21.


28. If Antibiotics have been used, please list the names of specific Antibiotics used if possible?

See above.


29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?

Yes, came back as normal.

30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?

Yes, I was diagnosed with leaky gut syndrome via a lab in Germany through a homeopath.


31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.

Yes, many. Paragone, Candigone, Candex, plus all the other usual herbs for Parasites/Candida. I experience an increase in the die off feeling but I wouldn't say it increases the number of 'ropes' but I do see more weird things in my stool.


32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.

All the usual antifungal herbs. See above.



33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?

I live in the UK. This all begun shortly before a trip to Mexico, around 10 years ago.


34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?

Mexico.


35. Is there any other information that the AI or guardian of AI would like to include in this survey?

My main belief all along is that the ropes are either Candida or Parasites. I am more than willing to provide any other information should it be required and I have many many photos of the ropes. I have definitely experienced a reduction in symptoms since expelling the ropes, but nothing seems to get rid of them completely. Either way, I think it is a systematic infection that is widespread throughout the whole body and not just the instestines. However, the intestines is definitely the 'hub' of the infection. This is all just my opinion, of course, and I would welcome any expert medical advice/assistance, since mainstream medicine does not seem to have a clue about this phenomena.

1. Age of AI = 30


2. State/Country of AI = UK


3. Gender of AI:Male


4. What is the current state of health of the AI (low quality, average quality, above average quality)?
Low


5. Does the AI have what visually appears to be ropes? (see photos in above research paper)
Yes

6. Approximately when was the first rope seen?
2009

7. Approximately how many ropes have been seen since the first rope was noticed?
100+

8. What symptoms has the AI experienced in reference to the ropes?
Poor concentration
Bloating
Excessive gas
Foul odors from pores and breath
SIBO
Feeling hungover upon waking in the morning
Brain fog
Tiredness
Anxious
Constipation/Steathorrea
mucus covered stool when constipated
Sinus blocked





9. Does the AI have a bloated belly on a regular basis?
YES. Especially after eating


10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?
Been on many diets aimed at eliminating carbs and refined processed foods..candida diets etc....fall off the wagon after a few weeks

11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?
Home test kit suggested negative but I suspect I am.

12. Does the AI have food allergies or food sensitivities ?
Red meat makes me constipated and increases odor. Think I have leaky gut

13. Does the AI have behavioral or mood issues?
Depression. Low moods. Mood swings. Anxious.

14. Have the ropes been seen only in stool or have they been seen coming out of the nose?
Only stools


15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?
Seen after enemas..only seen naturally on two occasions.

16. If enemas are used, what type(s) of enemas are used?
Water.
ACV with water

17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?
Haven't tried this yet

18. Does the AI have a history of chronic constipation?
Yes, often constipated for the last 12 years

19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?
Sinuses have been blocked/partially blocked for the last 8 years. Sinus always run when eating foods.

20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?
Yes. I was given Acne Antibiotics from 15-20 daily for that period. Lymcycline

21. Is the AI currently suffering or recovering from Autism?
Not that I know of.

22. Is the AI currently suffering or recovering from chronic fatigue?
Do feel lethargic/lack of concentration and have done for past 8 years.

23. Is the AI currently suffering or recovering from Lyme Disease?
Not to my knowledge.

24. Is the AI currently suffering or recovering from Morgellon’s Disease?
Not to my knowledge.

25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?
Small Intestinal Bacterial Overgrowth (SIBO); leaky gut

26. Has the AI had a history of a weakened immune system?
Not to my knowledge

27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.
Acne treatment nonstop for 5 years.
Would be given Antibiotics by GP if had cold etc so must have had many courses throughout my life,

28. If antibiotics have been used, please list the names of specific antibiotics used if possible?
penacilin, doxycycline, amoxicilin, lymecycline etc


29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?

Not yet

30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?
Yes thin fine hair.
Premature rapid graying
Steathorreah stools
Foul smeeling stools as fats are not being digested (suggests pancreatic enzymes are impaired)

31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.
No. Only mebendazole. No effect

32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.
Only candida products: garlic, pau d'arco, caprylic acid, serrapeptase, GSE

parasite herbs: Black-Walnut , Wormwood

33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?
I live in UK. I had the symptoms for the past 10 years, but I only noticed a rope in 2008..I had visited rural Poland in 2008 and consumed lots of pork (so possible but wouldn't explain the symptoms prior to that)

34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?
vide supra

35. Is there any other information that the AI or guardian of AI would like to include in this survey?
I think there is a combination of issues all of which make the other more likely and can be coterminus:
SIBO; Candida;Leaky gut; impaired liver function; insuficirent pancreatic enzyme function.

**************************************************************
Survey submitted by Kiki7777 on the behalf of CZ member Anon45
**************************************************************

1. Age of AI = 45


2. State/Country of AI =USA


3. Gender of AI: Female


4. What is the current state of health of the AI (low quality, average quality, above average quality)?

About 75% quality now that I have expelled lots of Ropeworm.


5. Does the AI have what visually appears to be ropes? (see photos in above research paper)

YES.


6. Approximately when was the first rope seen?

Past 3 years have seen pieces that I thought were Flukes.
"longer pieces" confirming "Ropeworm" would be last week.


7. Approximately how many ropes have been seen since the first rope was noticed?

Over 100 juveniles since large expelled (still have one or so large ones present internally)


8. What symptoms has the AI experienced in reference to the ropes?

Auto-immune disorder, burning feet, chronic food sensitivities , inflammation, exhaustion after eating, Jaundice, liver inflammation, chronic constipation, feeling toxic, insomnia.


9. Does the AI have a bloated belly on a regular basis?

Yes, has relaxed some since last week.


10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?

Yes.


11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?

Since onset of symptoms yes.


12. Does the AI have food allergies or food sensitivities ?

Yes, since onset of symptoms.


13. Does the AI have behavioral or mood issues?

Fatigue after eating random foods.


14. Have the ropes been seen only in stool or have they been seen coming out of the nose?

After coffee enemas.


15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?

Enemas.


16. If enemas are used, what type(s) of enemas are used?

Coffee.


17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?


18. Does the AI have a history of chronic constipation?

Yes, since onset of symptoms.


19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?

Since Ropeworm scattered, have felt movement in what I suspect is the sinus cavity, pain when there is movement.


20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?

No.


21. Is the AI currently suffering or recovering from Autism?

No.

22. Is the AI currently suffering or recovering from chronic fatigue?


23. Is the AI currently suffering or recovering from Lyme Disease?


24. Is the AI currently suffering or recovering from Morgellon’s Disease?

No.


25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?

Ropeworm.


26. Has the AI had a history of a weakened immune system?

No.


27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.

No.


28. If Antibiotics have been used, please list the names of specific Antibiotics used if possible?


29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?

No.


30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?

Yes. Rapid graying hair, unhealthy skin coloring, thin nails, hair dull.


31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.

All the protocols on Curezone. All would allow about a couple weeks relief (looking back; as if the Ropeworms got nauseous
and took a break). Fenbenzadole 7 days, seemed to help some.


32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.

Yes. No relief.


33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?

No.


34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?


35. Is there any other information that the AI or guardian of AI would like to include in this survey?

The only research I can find of rope parasites is from unpublished work of the Russian doctor Volinsky. Is there any other source? If I search for the latin name used in the research, 'funis parasitus', I come up with nothing, nor the term "rope parasites".

How credible is this theory of rope parasites?
If they are so prevelent and enormous is size how come there is no more data on them?

1. Age of AI = 40


2. State/Country of AI = Caribbean


3. Gender of AI: Male


4. What is the current state of health of the AI (low quality, average quality, above average quality)? Average


5. Does the AI have what visually appears to be ropes? (see photos in above research paper) yes


6. Approximately when was the first rope seen?

September 2013

7. Approximately how many ropes have been seen since the first rope was noticed?

20-30 did not count, but many

8. What symptoms has the AI experienced in reference to the ropes?

itching in the testicles, lower back, itching in feet (upper part) itching back of knee. Insomnia.


9. Does the AI have a bloated belly on a regular basis?

No

10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?

No, but eating rice, beans, fish (been reduced), no meat, little chicken.

11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?

No
12. Does the AI have food allergies or food sensitivities ?

No
13. Does the AI have behavioral or mood issues?

Not generally
14. Have the ropes been seen only in stool or have they been seen coming out of the nose?

Stool only

15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?
I did a liver cleanse, followed by a colon irrigation. Then ate a hand bunch of raw pumping seed and the next day, without expecting anything I saw 30-40 worms with the stools.

About 5 days ago I started eating raw pumping every now and then as snack. It has been very tough! itching incremented, got some hives, hard stuff, I had to drink benadryl and use itching stop cream.

I did an enema bottle yesterday and expelled some worms this morning. It seems that when they die all their stuff goes out and is very hard on you.

16. If enemas are used, what type(s) of enemas are used?

Bottle enema over the counter, but I think that the pumpkin seed (RAW) is what killed them.


17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?

have not used

18. Does the AI have a history of chronic constipation?

No
19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?

No
20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?
NO

21. Is the AI currently suffering or recovering from Autism?
NO

22. Is the AI currently suffering or recovering from chronic fatigue?
No

23. Is the AI currently suffering or recovering from Lyme Disease?

No
24. Is the AI currently suffering or recovering from Morgellon’s Disease?
No

25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?
IBS

26. Has the AI had a history of a weakened immune system?

No
27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.
NO

28. If Antibiotics have been used, please list the names of specific Antibiotics used if possible?
NO

29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?
NO

30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?

No
31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.

No
32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.
Yes, Wormwood , clove mixes. The usual, these worked for a while but did not work to eliminate the problem.

33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?
Traveled to many countries, Mex, Australia, Canada, Ecuador, etc.

34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?
No

35. Is there any other information that the AI or guardian of AI would like to include in this survey?

Thanks for doing this! we need to know how to kill them. For me Pumpking seed seems to work, perhaps it can be combined with other things! Thanks

Deleted questionnaire per user request.

1.Age 55

2.Country - UK

3.Female

4.Average (have been very ill in past before I started treatment)

5.Have passed ropes regularly (largest 4ft long!)

6.About 10yrs ago.

7.Thousands ??

8.Pain, bloating, twitching sensations, fatigue, headaches, muscle & joint aches, foggy brain, general malaise, indigestion, food allergies /intolerances, nasal allergies, glue ear etc etc.

9.Most of time.

10.Low carbs, no grain except occasional rice cakes, low sugar.
The more grains & Sugar I eat the more symptoms I get.

11.symptoms are serious if I eat gluten, couldnt tolerate gluten for more than 3 days so couldnt get tested for coeliac.

12.Many

13.Have been depressed in past due to illness but OK at moment.

14.Stool, nose & coughed up in sputum.

15.Enemas

16.Various - I change them from time to time - the worms become immune to them after a while so when I stop seeing them then I change the formula & they start coming out again.
I have had success with the following.
Coffee (no longer works)
Goldenseal (excellent)
Thyme oil(occasionally- very irritating to colon)
Eucalyptus oil
MSM powder (the best)
Probiotics (occasionally to repopulate colon)
Salt
Epsom salt
Milk
Im sure there are more but I cant remember

17.I havent used them all together but I do remember an old remedy for pin worms was to sit in a bowl of milk & they will be attracted to the milk & exit through the anus so may be the milk attracts them in the colon the the eucalyptus kills them ? thats my theory anyway.

18.Yes

19.Yes all 3 in past

20. Acne & rosacea - only treatment was oxytetracycline tablets

21.No

22.Yes

23.No

24.No

25.Yes - due to the inhabitants.

26.Yes - I believe the parasite has developed a way to change our immune system by excreting some chemical that prevents our immune system from working properly.

27.Several courses in past for acne, UTIs,chest infections, ear infections.

28. Oxytetracycline,distaclor, clarythromycin

29.Ropes present in stool, all tested negative ( they test for eggs - no eggs present only adult phase - the eggs are laid deep in tissues (muscles) they are not laid in gut - NB this is my theory)

30.Yes but I take supplements to keep topped up.

31.Mebendazole
Albendazole
Ivermectin
Piperazine
They all reduced worm load - larval stage & a few small adults, none cure - have to be repeated regularly. Mebendazole & piperazine only annoy the adults, piperazine stuns them and can cause migration deeper into tissues to get away from the poison.
32.Parastroy - helps with control - contains digestive enzymes which help as i think the parasites can neutralize our enzymes,
does not cure.
MMS - doesnt work
Ozone - doesnt work
Alkaline water/alkaline diet - doesnt work
MSM powder - helps control symptoms.
Diatomaceous earth - helps a bit - doesnt cure
Dr Clarks regime - done it twice - doesnt work
Zappers - have bought several - they dont kill parasites - they do annoy them & stop them burrowing into tissues therefore have some pain relief.
frequency generator ( as above.
33. never leave UK.
34.got this condition from UK
35.I am willing to answer any questions.
Have tried most things on market - none work
I have tried most things on the market

http://CancerSurvivals.com

1. Age of AI =31


2. State/Country of AI =Spain


3. Gender of AI:Male


4. What is the current state of health of the AI (low quality, average quality, above average quality)? Feeling toxic. Cronic infection.White tongue.Teeth infections.genital trush.Concentratien, mood problems etc
Helicopbacter pylori infection. Giardia lamblia positive. Probably candida. Toenail fungus. Ear ringing/ear infectiinbs/mucous


5. Does the AI have what visually appears to be ropes? (see photos in above research paper) Yes


6. Approximately when was the first rope seen? Last year


7. Approximately how many ropes have been seen since the first rope was noticed? 2 more


8. What symptoms has the AI experienced in reference to the ropes?Candida, leaky gut symptoms.


9. Does the AI have a bloated belly on a regular basis?No


10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI? Not now but i did. It didnt do anything.


11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)? Dont know. Not in analysis

12. Does the AI have food allergies or food sensitivities ? I dont know. I just feel toxic. I can eat whatever but mixing some thing will give diarrea and undigested stools.


13. Does the AI have behavioral or mood issues?Yes. Many. And even more since founding i had candida so psycological issues are there too.


14. Have the ropes been seen only in stool or have they been seen coming out of the nose? Stool. Mucous in nose too like ropes, but they are mucous...i think


15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)? Just 3 times. Water fast(i almost died), after a big drunk with jagermaister licour (veridic)and after 2 days on pemmican only diet.


16. If enemas are used, what type(s) of enemas are used? water.


17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?


18. Does the AI have a history of chronic constipation?no


19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?yes


20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?no. I think i could be non secretor


21. Is the AI currently suffering or recovering from Autism?
slight attention defficit, social problems, going against my beliefs, education/family issues

22. Is the AI currently suffering or recovering from chronic fatigue?no


23. Is the AI currently suffering or recovering from Lyme Disease?

24. Is the AI currently suffering or recovering from Morgellon’s Disease?


25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind? ibs


26. Has the AI had a history of a weakened immune system?YES


27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.YES


28. If Antibiotics have been used, please list the names of specific Antibiotics used if possible?Tipicals


29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?NO, giardia lamblia but not ropes


30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?Yes


31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.No


32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.No


33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?Indonesia, mexico.


34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?Indonesia, mexico. But i think there is an issue because other porblems.


35. Is there any other information that the AI or guardian of AI would like to include in this survey?

1. Age of AI = 40


2. State/Country of AI = uk


3. Gender of AI: female


4. What is the current state of health of the AI (low quality, average quality, above average quality)?
Average to low

5. Does the AI have what visually appears to be ropes? (see photos in above research paper)
Yes, all stages

6. Approximately when was the first rope seen?
3 months ago

7. Approximately how many ropes have been seen since the first rope was noticed?
200

8. What symptoms has the AI experienced in reference to the ropes?
Joint pain, fatigue, blocked gas, immunity impairment, heavy phlegm on upper respiratory system. Blockage in throat, infection in gallbladder, throat infections and abscesses (quincy) in throat

9. Does the AI have a bloated belly on a regular basis? not every day.


10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?
Yes, some free range meat, avoiding fungus.


11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?
Sight sensitivity to gluten

12. Does the AI have food allergies or food sensitivities ?
Not much im aware of, avoiding dairy because of phlegm.

13. Does the AI have behavioral or mood issues?
anger and depression


14. Have the ropes been seen only in stool or have they been seen coming out of the nose?
stool

15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?
with the use of praziquantel, albendazole, ivermectin, levamisol, fluconadazole. (Klinghardt systemic protocol)


16. If enemas are used, what type(s) of enemas are used?
mms and volinsky eucalyptus and lemon

17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?
no

18. Does the AI have a history of chronic constipation?
no

19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?
sinus infection, upper respiratory infection, inhaler produces no relief.

20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?
none

21. Is the AI currently suffering or recovering from Autism?
no

22. Is the AI currently suffering or recovering from chronic fatigue?
diagnosed with fibromyalgia, suffer with tiredness but not diagnoses with CFS

23. Is the AI currently suffering or recovering from Lyme Disease?
Undiagnosed, recently finished 6 months of doxycycline, joint pain now returning.


24. Is the AI currently suffering or recovering from Morgellon’s Disease?
Yes, 23 years of Morgellons D


25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?
other worms


26. Has the AI had a history of a weakened immune system?
yes

27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.
for chest infections, and recently 6months doxy pulsed with tinidazole (6 weeks). I found my response to the antifungal fluconadazole was v intense, so I decided to rest from the Antibiotics , but also my doctor refuses to continue to prescribe.

28. If Antibiotics have been used, please list the names of specific antibiotics used if possible?
Doxycycline and tinidazole for lyme and morg


29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?
no

30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?
no

31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.
praziquantel:effective albendazole:effective better when taken with prazi. Ivermectin: better when taken with prazi or levamisol. Fenbendazole:milder, supposed to help with morg, some fibres exited upon intial intake.

32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.
no

33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?


34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?
India? this is where I suffered bad health from a tick bite.

35. Is there any other information that the AI or guardian of AI would like to include in this survey?

I am not sure if taking abx is a good idea now as I feel this rope worm or whatever other component is present has a large fungal element, possibly made worse by abx. I would be greatful for any advice on this matter? My problem is that these rope worms live in my throat and I have been going through a terrifying experience for many years as they have gradually begun to squeeze my throat, and lay some kind of larvae in my throat, which I sometimes have had to massage out to ease the choking sensation. I am in desperate need of help, turned away as delusional by the UK medical community and no longer attend any appointments with them. The eneamas produce no results, I cannot seem to take them,the liquid is ejected almost immediately, and the gas emerges. Sometimes I spend hours trying this but to no avail. Please advise as to what option is available when these worms have become systemic? The antiparasiticals are not a long term option, and they only produce 2 or 3 worm pieces a day, I think I have identified what could be the worm head, do we have any positive identification images to help us with this?

thankyou for you active response to this serious issue.

hey Kiki7777,

great initiative!

i see you've gotten some answers by now, have you had time to analyze any of the data yet?

anyway here are my answers:

1. Age of AI =

30

2. State/Country of AI =

sweden

3. Gender of AI:

male

4. What is the current state of health of the AI (low quality, average quality, above average quality)?

low quality

5. Does the AI have what visually appears to be ropes? (see photos in above research paper)

yes

6. Approximately when was the first rope seen?

first rope seen 46 days ago

7. Approximately how many ropes have been seen since the first rope was noticed?

hard to say. 50-100. mostly smaller, 2-5 cm. some 7-10 cm. no big ones yet. feels like there are lots still in there though.

8. What symptoms has the AI experienced in reference to the ropes?

fatigue, insomnia, depression, anxiety, poor memory, irritability, Sugar cravings/emotional eating, restlessness, bloating, constipation/indigestion, weak nails, being cold all the time, lethargy, chest pressure, inability to concentrate, poor sense of smell, feeling 'spaced out', feeling unsocial, low self esteem.

9. Does the AI have a bloated belly on a regular basis?

yes

10. Is the AI currently eating a cleansing diet high in raw fruits and vegetables? If not, what is the current diet of the AI?

yes. fruit does not work so well for me at the moment though, so only apples and some fresh lemon juice. lots of greens, root vegetables, lentils and some oils, nuts & seeds. no processed foods, no white/brown sugar/honey/syrup. no caffeine, no alcohol/other recreational drugs.

11. Does the AI suffer from Celiac disease or gluten sensitivity (i.e. sensitivity to wheat, barely, oats or rye)?

no. have been mostly gluten free for the past 3 years. now wheat seem to make me constipated, but had no problems prior.

12. Does the AI have food allergies or food sensitivities ?

no

13. Does the AI have behavioral or mood issues?

yes. irritability, depression, lethargy, feeling unsocial, low self esteem.

14. Have the ropes been seen only in stool or have they been seen coming out of the nose?

stool only

15. Are the ropes appearing in the stool appearing naturally or are they seen with the assistance of home enemas or colon hydrotherapy (colonics)?

coffee enemas. they do come out with normal bowel movements also, but only when doing daily coffee enemas.

16. If enemas are used, what type(s) of enemas are used?

* water cleansing enema.
* coffee retention enema. 1 liter twice daily, hold 20 minutes. 4 tbsp of coffee per liter water.
* gubarev (volinsky) eucalyptus+lemon & milk+salt. have done 3 each so far.

17. If Volinsky enemas have been used (i.e. eucalyptus broth, milk & salt or lemon) has the AI seen any effectiveness?

yes. have not yet tried water + baking soda though.

18. Does the AI have a history of chronic constipation?

no

19. Does the AI have a history of sinus issues, migraine headaches or breathing issues?

no

20. Does the AI have a history of acne? If so, have Acne medications such as Accutane (a.k.a. Roaccutane) been used?

no

21. Is the AI currently suffering or recovering from Autism?

no

22. Is the AI currently suffering or recovering from chronic fatigue?

yes (well, self-diagnosed - tired all the time)

23. Is the AI currently suffering or recovering from Lyme Disease?

no

24. Is the AI currently suffering or recovering from Morgellon’s Disease?

no

25. Is the AI currently suffering or recovering from any intestinal disease? If so, what kind?

no

26. Has the AI had a history of a weakened immune system?

have always caught colds easily, usually with throat pain. often after working out hard, staying up late and/or nights out drinking. not so much last 3 years, maybe because of changed diet & no alcohol.

27. Has the AI had a history of taking Antibiotics ? Please note extent if possible.

maybe 5-10 times in my life, for throat/ear infections. last time around 4-5 years ago i think.

28. If Antibiotics have been used, please list the names of specific Antibiotics used if possible?

don't know.

29. Has the AI had a stool test(s) when ropes were present? If so, what was the determination?

parasite stool test approx 40 days ago, came back negative. just did a new one, waiting for results. don't know specifically what they test for.

30. Does the AI have any symptoms of malabsorption in terms of an obvious lack of nutrients being absorbed in the small intestine (i.e. thin hair, thin nails, thinness)?

thin nails, wounds heal slowly, enamel erosion, weight loss (lost about 7 kg (15 lbs) last 5 years. currently 63 kg, 185 cm (140 lbs, 6'1"), which gives a bmi of 18.4.).

31. Has the AI used pharmaceutical anti-parasitic agents to treat the ropes? If so, which ones? Please note effectiveness.

no

32. Has the AI used herbal parasitic formulas to control the ropes? If so, which ones? Please note effectiveness.

Taken lots of different herbs, in general hard to tell the effectiveness of each individual one:

* Dr Morse's GI broom
* Dr Morse's liver/gallbladder formula
* Eucalyptus
* Liquorice root
* Cayenne
* Ginger
* Turmeric
* Echinacea
* Essential oils: eucalyptus, lemon, pepper mint
* P&B shakes
* Chaga (seems to work very well)
* Pau d'arco
* Cinnamon
* Cardamom
* Cumin
* Garlic

33. If the AI lives in the U.S., has the AI traveled outside of the U.S.? If so, which countries have been visited?

-

34. Do AIs residing in countries outside of the U.S. have any indications of a place they may have visited when a rope parasite exposure may have occurred?

not really. slowly gotten worse over many years - can't tell when it started. i believe exposure might just as well have been at home.

35. Is there any other information that the AI or guardian of AI would like to include in this survey?

have used 1-2 tbsp of xylitol daily. added 1 tsp food grade 3 % hydrogen peroxide to about every liter of liquid (2-3 liter per day). only drinking distilled water (straight and as herbal tea) and fruit juices.

take daily multivitamin supplement, 1 drop of Lugol's Iodine & 10 000 IU vitamin d daily.

first rope i noticed was expelled just after starting with enemas (water cleansing and coffee). coffee enemas seem to work very well.

Sorry--see the message under this one. Posted an image that was too large and couldn't figure out how to delete the message.