Oh Heather. I'm so sorry.

Yes, I definitely agree with your doctor that it is the Mirena that has caused all of these terrible symptoms with your daughter. If you look around this forum alone, you will see that so many of us had the same type of symptoms. I was actually two weeks away from my spinal tap (because they also thought I had MS or Lupus) when I tested positive for silicone poisoning. At that point, I had figured out that it was the Mirena, but there is still just so far to go even after we find that out.

Let me start by saying that YES....your daughter is going to get much, much better. But, let me also tell you that--most of the time--is is a long and frustrating road back to recovery. For some, they rebound back right away. For many others, it takes quite some time with many ups and downs (relapses....see "Mirena Crash") along the way. I had my Mirena removed 14 months ago (after having it in for 17 months), and I am still dealing with some lingering issues. That being said, I am SOOOOO much better than I once was.

I continue to write in my Mirena awareness blog. It tells my story, and I what I have done to find relief and recovery. The address is http://www.mylifeaftermirena.blogspot.com


You will be doing the first ultimate step towards healing by having the Mirena removed. In my opinion, the next thing that you need to do for her is a detox. I detoxed twice, but I can tell you, I felt much better after the first one....and I have medical documentation that shows that I had elevated silicone levels in my blood, I did this three week detox, and I came back to take the same blood test--where the results showed that it was completely removed from my blood. It worked well for me. If you would like to speak with my doctor (the detox info is in my blog), please feel free to message me, and I will send you his contact information. He has sent it to many women in other states via mail if they can't find someone where they live.

Just to prepare you, your daughter may not get better immediately after her Mirena removal. There is so much poison in her system that needs to be filtered out, and so many systems in her body that need time to repair. I know that some of my symptoms, such as the anxiety, turn a worse turn right after removal because of the hormonal shock to my system. After time, it got better and better.

The only reason that I am telling you this is because I don't want you to, if she doesn't get better right away, ever think that you were wrong and it wasn't the Mirena. It is. Taking it out is the best thing for her. Then, detox out those toxins that are destroying her systems...and the most frustrating part: let time pass. It takes a long time to bounce back from this. However, PLEASE (both you and your daughter), keep remembering that she WILL. This nightmare will pass for you. She WILL start healing. And know that we are all here for you as she does.

I'm so sorry that we "meet" in this way, but know that we are walking this with you, and we are praying for your daughter. You are right, it is a huge injustice what has been done to so many of us, but we are fighting back for our health and our lives. She will, too....and she will slowly heal.

Please let me know if there is anything that I can do for you, and please continue to check in with us regarding her progress. This is a wonderful forum of ladies who know, all too well, what your family is enduring.

Big hugs to you, Heather. And no matter what, keep reminding yourself that she will get better as time goes on. Hold on to that.

Blessings,
"ProudMomma"

http://www.mylifeaftermirena.blogspot.com

I just read Proudmomma's response to you and I second every word she says!!! She has a wonderful way of expressing herself, and her blog is great.

I am sick to hear that your daughter is struggling with her symptoms (which mirror mine almost exactly) at such a young age. I'm 40 now with 4 children, and it isn't easy at any age. I pray that her youth will help her rebalance fast. I am 2 years post removal and doing so much better, but it has been a long road, and I still have my struggles. But I am functioning well most of the time, and that is huge considering that I thought I was dying 2 years ago and that Christmas 2009 was going to be my last. My husband was mourning the fact that I was dying. But your daughter will finally start healing now that it's out. I remember wishing I could fast forward time during my first year especially which was so hard. Our symptoms seem to surge back during our periods and ovulation. We can feel better for a a couple weeks and then plummet back to sickness. But it does get better over time. If her symptoms started with the Mirena, then she will improve. During the hard times, keep reminding yourselves that it will get better, but it can take time for the body (especially the hormonal systems) to rebalance. Some people have improved very quickly however, and I hope this will be the case for her! I find it encouraging to come to this forum when I have worrisome symptoms just to run them by the amazing ladies here. It is so comforting to hear someone say that yes, they've felt this too. I am having a few weird things happening to me right now, but I don't feel too worried because it's probably Mirena weirdness (as I call it) and it will go away.

Did she test positive for ANAs or autoimmune markers? May I ask what her test results were?

Keep posting! I, for one, check this forum at least once a day.

Love,
Diana

Dear Heather,

I am so sorry to hear what your daughter is going through. We all understand how it feels to be where she is. I echo the words of the other ladies and will also say that she needs you now more than she ever has and she will need to be stronger than she thinks possible.

Please let her know that she is not alone, even though she will feel that she is I'm sure. I'm sending my prayers to you. Please let us know of her progress.

love to you and your family

Clare xxxx

I am Heather's daughter. I've been reading the forums and decided to join too! It is so wonderful to have all of this information. I feel so much better knowing that I am not alone in this and that I am not going crazy! Your words of encouragement and prayers have been very helpful during this tough time. Thank you all for the support!

I wanted to add too, that my daughter became severely allergic to everything after getting the Mirena (food, environment, medications) she went to several allergists, after experiencing chronic/severe 'anaphylactic episodes' hives/difficulty breathing/flushing/throat swelling/nose bleeds, and at times was having to use her EPI pen on a daily basis and had to go to the ER for emergency allergy treatment probably 20 or more times in a one year period. They ruled out mast cell disease and did all allergy testing, and came to the conclusion that this too was most likely caused by the Mirena. Looking back now, we would much rather have to deal with the anyphylaxis episodes rather than the severe neuro problems that it has caused since then. As bad as the allergy attacks were it is nothing compared to what we are dealing with now.

I am very sorry to hear about your daughter. I am a 31 year old mother of 2 and got my IUD 1 year ago. I was fine until the 6 month mark. I started having migraines, abdominal cramping, mood swings, blurred vision, no sex drive, weight gain, hair loss,hair growth (in places I didn't want), chest pain, heart palpations, and a few days ago I started with the tingling in my right arm and neck. It scared the crap out of me and I called today and had mine removed. I am hoping as well it will resolve my problems. If not, my OB suggested to go the route your daughter has. I think they should take it off the market. If you goggle numbness and mirena you have all kinds of women complaining about the same things as we. I surprised it hasn't been added as a side effect...I am wishing the best for your daughter.

I am so thankful that I found this once googling "mirena numbness" a couple of nights ago!
Here's my story of how it only lasted 10 days with me:
I had my Mirena placed Friday, Nov 2. I decided it would be most convenient since I do not plan to have another child for at least a couple of years. The insertion was somewhat painful/ caused alot of cramping the first 12 hours or so to follow. When I awoke the next day, I felt better, besides a little bit of bloating, which I dismissed as my body "getting used to" this foreign object in it. I waited until the bleeding had stopped for awhile before I attempted to have sex with my boyfriend, which ended up causing bad cramping, so we decided to wait a couple more days and try again. Over the next week, I stayed fairly bloated and also noticed my back (upper and lower) was always in pain. I even had a massage the following Wednesday and the pain/tightness/stiffness came right back. I didn't associate this with the Mirena though; while I've never injured my back, my stress seems to build and reside there. It was a little excessive though on the pain level. I could never get comfortable sitting or laying down.
On Monday, Nov 12 I had a normal day with it, a little bloated, and of course the all-over back pain that I still wasn't associating with my IUD. That night while cooking dinner I became severly bloated, very rapidly, and also started having very strong cramping and sharp stabbing pains in my lower right abdomen. The stabbing pains were so intense that they would give me a "hot flash" when they happened. I decided to check for my strings, which I made 2 failed attempts at. I figured I just didn't know what I was looking for, so I took 3 ibuprofen and went to bed.
Once in bed, I started having a tingly-cooling sensation on my lower back. I rolled over and made sure I was under the covers and not cold a couple of times and it continued, so I sat up, wondering if I was somehow laying wrong. My boyfriend attempted to rub my back to see how it felt to me and it did really feel like it was going numb. I got out of bed and walked around to see if it would go away, only to feel a sharper pins-and-needles feeling on the heels and balls of my bare feet when they touched the floor.
At this point, I decided to call my OB to talk to a nurse on call. Once she called back I explained to her not being able to find strings and all of my symptoms, leading up to the one that made no sense to me but bothered me most - the numbing feeling going from my lower back down my legs. She told me that if the pain worsened to call back and to try to get some rest and call in the morning if I was still having issues. Rest? I can't rest when my legs are aching due to feeling like they are starting to go numb, or I'm worried why my body is going numb in the frist place.
I try to not read up on the internet about symptoms too much, so as to not tempt myself to self-diagnose, but I decided to google "mirena numbing legs", I think it was, and up came tons of blogs about how this had happeend to so many others. Most of the women either didn't connect it to Mirena or once they suspscted it, their doctors usually told them there was no possible way that the IUD was the culprit. This bothered me more and more as I read more counts of the same things I was feeling. One person said she only had it in for 2 weeks and still had residual/ recurring symptoms, especially around her monthly period. i then went back to my search results and found a link to livestrong.com saying that Sciatica is a potential side effect for some women who use Mirena. Not a blog, an actual medical site. That was it...I was going to drive myself to the ER and get it out of me right then!
My boyfriend woke up as I was dressing and told me there was no way I was driving myself, so off we went. About 1.5 hours later, the Dr decides to follow my wishes, do a pelvic exam, and then remove it for me. Only....HE can't find the strings either! That was so scary to me. A doctor with all of his equipment (and a much better view than myself), and knowledge of body parts cannot find it either? They did a urine test which said my white blood cell count was a little high, but not high enough for him to say I had an infection. I paid my $150 co-pay and was discharged. I knew I would call my doctor the moment they opened the next day and demand they take it out. I have seen where all of these doctors refused to remove it or told their patients to stick with it for 3 months or however long....but it's my body, it was my choice to purchase it and pay to have it put in, and it's also my choice to tell them to take it out. I was ready to put up a fight.
I went to my appointment at 11:15 am, told the nurse a little bit of background, and the PA came right in and said "so I hear you want your Mirena out? Well let's get it out, then." Easy as that! It did not hurt one bit and she barely asked any questions and removed it, and called in my rx for my Jolessa, which I had previously been on with absolutely no side effects at all.
Lesson learned - it's taking a pill once a day, none of us are too lazy to just do that...sure it seems more convenient not to have to worry about taking anything and know you're protected in 2 ways, but at what cost? If your current or past regime/ rx works, don't change it. Yes there are women who say that Mirena was wonderful for them, but there's also women who say that the birth control that's worked for you for years made them gain weight, have acne, and all sorts of other issues you may have never experienced. We all have a different chemical/ hormonal makeup, so no one solution is going to work the best for everyone.

I too have the mirena iud. Ive had it since 2012. Ive felt tired all the time and also chalked it up to being a mom of two small children. But since I already have anxiety and panic disorder the symptoms im experiencing drs say its caused by the anxiety. Recently I have been geting extremely fatigued, pressure in my head muscle spams muscle cramps. Lightheaded. Went to er sun and tues because of these symptims plus bloating and nausea. Ive been dehydrated and always have sinus problems. And never nauseated. Blood work is normal xrays are normal urine is normal. Could it be the mirena?? Im thinking I may get it removed! Any answers would be greatly appreciated. Thank you.

Hi..my name is Marty...I had the iud put in in 2012 after my sonwas born I started having my period again in Sept 2013 and and it was heavy..in march if 2014 I started getting lightheaded and in Sept 2014 I got it taken out but still around the time I am going to have my period I get lightheadedness and I get nervous a lot and I have anxiety...one doctor said I had pre menopausal I looked at him lime he was crazy I am only 27 years old....I was seeing if someone can help me on how long it takes to get this out of the system or what I can take to help me..I can not take the lightheadedness I feel like am going pass out overtime it happens...please and thanks a lot...I am glad I found this web site it has helped me a lot... may god bless all of you and your family's

I'm so glad to have found this blog. I've had Mirena inserted six months ago and about three months ago my sciatic nerve began acting up. The insertion was pretty painful in itself. I've been researching amd researching what could be causing my back to hurt do much. My left foot is partially numb, my left leg tingles all the time, my calf muscle is losing function, and I now have to lay on the floor to relax because it's a hard surface. I made an appointment to have it removed tomorrow. I so hope it will make this pain go away. This is no way to live life! It's probably an effective birthcontrol method because you lose your sex drive and are in too much pain to even consider it.
Never avain! I'm 44 and have had two kids. I think I am going to just have it all tied up! No more foreign hormonal objects!