Starting lyme protocol....Ottawa Ont... 
kairae
15 y
3,273
Hi,
I have been ill for just over a year. It's changed symtpoms so many times. Now, it's like I'm allergic to all foods, and get body symtpoms with muscle tickly itching, hives, and really itchy stinging inside esophagus. I react to every food now, also getting palpitations when I eat anything. Even water and mineral water etc burn. My mouth and tissues have burned for a year. It's scary now, with the allergic type symptoms, after a few good days last week - I am so so confused.
Now my doc who has run out of ideas, me too, is starting low dose clyndamycin IV 2x a week with possibly some meds by mouth. I am not happy about this, but am desperate.
She also is starting diflucan (used sometimes with lyme and rmsf she says, low dose naltrexone 3ml day on skin? and minoxycin ?sp? another tetracycline low dose only 2-3 days per week.
Please all you who know about lyme, please advise. I am to ill to read through old posts, I cannot eat any thing anymore. I have heard from a few of the patients that they had burning and itching in side and in esophagus like me. Mine gets worse daily it seems, to now, not having any safe foods.
I feel like there is acid or chemical reaction when I eat I feel like jumping out of my insane skin, feeling itchy and stingy deep inside with palpitations.
I had been doing homeopathic. Not sure if it's the reason for this increase in reactions to all.
I just don't get it and don't know.
But also, wondering if anyone in Ottawa Ontario has a rife?
She also recommended I contact someone to try to add this as well, maybe pay for sessions or whatever.
Thanks everyone. I know I asked you before Newport. Still if you had advice that would be great.
My life is all but ruined, I just turned 40 and have a little girl who really needs her mommie, she's only 5. I can't even eat now, it's crazy. How can my body act like it's allergic to every thing?!
Thanks for any and all help.
Also feel free to write at my email, I don't mind kairaepery@yahoo.ca
- Re: Starting lyme protocol....Ottawa... Newport
15 y
3,190
This is a reply to # 1,494,447Maybe stop the homeopathies, they require an immune reaction which a Lyme person just can not muster.
I would try low dose frequent chelation to remove some Lead and add ezymes to start.
Coffee enema, Triphalla and water soluble fiber. The new Cdn Benefibre will do for now with some fresh AJ or if not then the tetra packs must have a 1/2 tsp of Ascorbic Acid added for +1 hr to kill the mold.
Perhaps TMG to lower Homocysteine levels...
Niacinamide to get rid off the allergies.
Find an ND to help you past this hump.
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,185
This is a reply to # 1,494,492Hi Newport,
wow, just that and I'm confused. How does niacinamide stop allergies?
I have done metal tests, and they were 'normal' through the only lab in canada who does this. Though they were high for mercury about 7 years ago before I got sick like this....they said though their test doesn't differentiate between mercury 6 and merc 3 or something? One was from food or organic, the other was harmful metal.??
I had a hair analysis done by that lab that everyone uses, and it basically came up with high arsenic.
I can barely tolerate foods, and cannot eat dairy, any sugars, including fruit, I react as if allergic, head crazy, heart palpitations and hives I think if I have too much.
I dont' know what's going on!
I only know that igenex did tell me I was positive for lyme and rmsf. Does it matter the approach if it's an old infection or new?
lead never came up as a problem for me, why do you think I would have to start with that? I've never eaten old paint! But seriously, it never came up, so ??
Maybe I can try that benefiber, maybe I can handle it.
WHat is the purpose of it?
Enzymes have been hard on my gut, everything is now.
I have dealth with many NDs and they all have different approach, I have no money anymore, and they focus a lot on 'energy' and resolving past conflicts.
I don't know this feels VERY physical to me, I suffer a lot lately.
Also, does rife also diagnose if a person has a particular parasite or tick born illness?
Thanks very much.
- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,269
This is a reply to # 1,494,655Here is the chelation product that really reduced my allergies.
http://www.scienceformulas.com/
http://stanford.wellsphere.com/lyme-disease-article/chelorex-for-heavy-metal-...
About 5000 mg of MSM will remove foreign proteins from your body hopefully before you can have a reaction to them.
http://www.swansonvitamins.com/SWU112/ItemDetail?n=4294967187
http://www.swansonvitamins.com/Search?doSearch=true&ntt=&n=&ntk=Level1&ntx=mo...
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,076
This is a reply to # 1,494,995What kind of allergies or allergy reactions did you have? To foods you mean? My body is going baserk, it's just not accepting any foods without reaction - feels like insane itch inside my muscles, and weakness, and inner chest/esophageal stinging itch. Maddening.
I have reflux too, so maybe I have sores, but when not eating it's not as bad, it's once any food passes by.
Do you have lymes, what sx did you have, are you any better, did you do Antibiotics too, or just natural? Thanks very much. I can't even think anymore, this is not like me, this is not me at all. I got ill one year ago, and got positive lyme and rmsf results from igenex about 4 months ago. Now dr. is starting low dose Antibiotics .
I am worried about everything, not being able to eat, the drugs, the reactions if I dont' take drugs. It's really horrible. What is a good rife? I don't have any money left, waiting for disability b/c I haven't worked and all these tests etc cost so much.. you know I'm sure. Thanks for answering :o)
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- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,257
This is a reply to # 1,495,033What kind of allergies or allergy reactions did you have? To foods you mean?
JAB
No. just when I did stuff like mowed the lawn. My nose would drip for days. Normal tools like MSM and anti histamines didn't even help. Miracle-Mineral-Supplement would help but I don't thing you should use that for very long.
Do you have lymes, what sx did you have, are you any better, did you do Antibiotics too, or just natural?
JAB
I'm pretty sure I didn't have Lyme.
I had what the doctor guessed to be a 5 year bacterial infection that seems to be gone now. The Beck Protocol was the most helpful. Other things that helped me get 100% better were Liver flushes, Chelorex, Iodine, Amalgam removal, Cayenne Pepper, Hulda Clark Zapper and other ideas, Fish oil, EMEM by Rife Labs, Atelier Robin F165 Rife Pad device, exercise.
What is a good rife? I don't have any money left, waiting for disability b/c I haven't worked and all these tests etc cost so much.. you know I'm sure. Thanks for answering :o)
JAB
Their are no real Rife machines that I know of available exactly like what Rife was using. Most are using the F165 on this forum for Lyme but their are many other machines that may be as good or better.
More
- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,257
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,085
MoreThis is a reply to # 1,494,995Also meant to say that I drank vitc/salt in water today all day, and got such bad flu like aches in my legs, groin, arms - shooting aches and very sore and weak. I drank more water (even though that burns my mouth/esophageal tissues) and it lessened somewhat.
Do you know is that typical with that treatment? Does this treatment or any of them work? How does that stuff you suggested help allergies? I am afraid to take anything. Thanks very much.- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,043
MoreThis is a reply to # 1,495,035lso meant to say that I drank vitc/salt in water today all day, and got such bad flu like aches in my legs, groin, arms - shooting aches and very sore and weak. I drank more water (even though that burns my mouth/esophageal tissues) and it lessened somewhat.
Do you know is that typical with that treatment?
JAB
Yes. When you kill off a large amount of pathogens you will often get a Herx. Body overwhelmed with to much toxins at one time.
How does that stuff you suggested help allergies? I am afraid to take anything.
JAB
I would guess. By removing heavy metals and other toxins you are no longer on the verge of having a reaction.
- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,043
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,106
This is a reply to # 1,494,995did you try niacinamide like newport recommended to me? I am trying to find info on 'how' these things work in the body. I want to try, but I need to also read/research a bit too.
How is the msm taken? Is it a chelator too? How does it remove proteins?
I have questions about everything you recommend! The links are helpful, I can read about it a bit right away, thank you.
everyone seems to do coffee enemas. How does putting just a bit of coffee in the rectum help?
I had done colonics before I got this bad, I did humaworm for only 3 weeks, a Liver Flush and about 5 colonics until I was empty. Not much of anything, no plaque, no big worms with colonic was seen.
i do know I have lyme, unless igenex can have a false positive test?? Is this possible? Has anyone seen that here?- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,984
This is a reply to # 1,495,045The links are helpful, I can read about it a bit right away, thank you.
Jab
Here's a couple links for Lyme treatments and Rife Lyme testimonials. Some of them are old though.
http://info.lymebook.com/listings.htm
http://www.lymebook.com/top10book
http://www.lymebook.com/lyme-disease-rife-machines-bryan-rosner
- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,984
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,076
- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,269
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,030
This is a reply to # 1,494,492Newport, is there an energy machine like rife that can detect lyme, or certain parasites, basically 'test' for them, or do people just treat as much as they can with rife assuming they have parasites or lyme etc.? Thanks, just wondering if there is a test that will back up the lab tests. Thank you :o)
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,185
- Re: Starting lyme protocol....Ottawa... Johny Apple Bomb
15 y
3,078
This is a reply to # 1,494,447Heavy metal poisoning will cause allergies. When the metals build up it doesn't take much to set off a reaction.
http://www.google.com/#hl=en&source=hp&q=chelorex+side+effects&aq=0&aqi=g6g-m...
- Re: Starting lyme protocol....Ottawa... kairae
15 y
2,985
This is a reply to # 1,494,511Not sure if I have heavy metal problems. Had the hair test done, and not really anything significant except deficiencies. That link in your message didn't work....
Has anyone here cured lyme, but just have to keep it under control? How does it work at this forum? Natural methods only? Thks!- Re: Starting lyme protocol....Ottawa... Dameon
15 y
3,150
This is a reply to # 1,494,971Read up on Andy Cutler. The hair analysis test is not best read by just looking at toxic levels. You need to see if your mineral transport is screwed up.
http://books.google.ca/books?id=U765adeBPlEC&pg=PA111&dq=andy+cutler+interpre...
http://books.google.ca/books?id=ZG9glNfif5YC&pg=PA98&dq=andy+cutler+interpret...
- Re: Starting lyme protocol....Ottawa... kairae
15 y
2,988
This is a reply to # 1,494,977Thanks yes, have the book, and read a lot of it when I 'could' before.
My test was done in a different format, so I could not post to that site that compares values....
So, I don't even know what to do with the test now. Do you know how to interpret this? Thanks.
- Re: Starting lyme protocol....Ottawa... kairae
15 y
2,988
- Re: Starting lyme protocol....Ottawa... Dameon
15 y
3,150
- Re: Starting lyme protocol....Ottawa... kairae
15 y
2,985
- Re: Starting lyme protocol....Ottawa... Dameon
15 y
3,220
This is a reply to # 1,494,447I'm in the same boat, can barely eat any thing. It sucks, no doubt about that but I'm surviving and getting better(slowly). If I were you I would be:
- Getting anti parasites and preparing for over a year of therapy.
- Getting an enema kit and starting up coffee enemas. I do them every day with out issue.
- Getting on a gluten/dairy/corn/soy free diet. This includes NO grain fed(NOT EVEN SUPPLEMENTED) meat. You need one hundred percent GRASS FED MEAT!
- Getting on a colon cleanser(Barefoots LBB is great, Shultz I heard works nice). I would avoid psyillium.
- Getting a Rife machine.
- Getting on Iodine with selenium.
Hang around for a while and start up what ever therapies you can. Make sure you are getting your channels of elimination open. Colon first, then liver ext. Once you're working hard on your self and sharing what you're going through other options could open up for you. For now though, gotta build trust with us(me at least). ;)- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,173
This is a reply to # 1,494,984Thanks Dameon,
I have zero money left. I've been sick for a year now.
I don't work. Waiting to try and get disability for the meantime. What reactions do you have when you eat? Do you have any stingy itching inside your esophagus/chest? I started with nausea a year ago, that changed into different symptoms, and now it's like I'm allergic to everything. Believe me, I don't eat those foods, I am on such a limited diet and even plain vegetables give me a crazy insane stingy itch in my skin and inside my muscles, I can't even explain it.
I am being put on lyme protocol with low dose Antibiotics , did you do that? Do you have lyme for sure? Thanks for your words. Does the rife help you? I tried vitc/salt in water today and got the most achy flu feelings all day, I could barely use my arms/legs, they got so achy like the flu and weak....I did try humaworm and got through 3 weeks of it. But I was reacting too much, too many herbs, probably allergic to at least a few. I did one liver flush. I can't really tolerate anything. Even since this began, water has burned my mouth, that spread to esophagus and stomach. Now, it's a stinging itch reaction and allergic reactions too, itchy like allergy.
and the body stuff, it's like I"m being poisoned everytime I eat anything now. Nothing is a safe food for me. I'm pretty worried.
- Re: Starting lyme protocol....Ottawa... kairae
15 y
3,173
- Re: Starting lyme protocol....Ottawa... Newport
15 y
3,190
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