Re: When it started?

Ok, I thought there may have been something that you noticed that may have happened or was happening coincidentally at the time this was starting. Like a viral infection or entering adolscence....just interested in how old you were when you began to notice it starting. But I assume that it was so insidious, that you cannot pinpoint any real starting time.

It defintely seems the medical industry today obviously haven't got a clue about this or you would have a recognised name for what you are suffering and you dont. Basically you are just working in the dark and trying anything and everything.
This annoys me, with all the technology we have today and you and who knows who else has to suffer a condition like this with no name. How can you treat something you dont understand?

Well I am sure that anything I mention you have already been there and done that and I may even repeat myself. I gather you have been down the road of looking at Amalgam toxicity? This can cause a massive array of mysterious health problems and symptoms and can affect anything. All I can say is, if you've exhausted so many other areas, this is one you may have overlooked (though I very much doubt that). i would imagine youve already looked at this too and probably had your dental fillings removed also. But let me know if you have or not.

This is just one of the most unusual and distressing things I've heard of. Someone else out there must have this,you aint subhuman! so there are other cases but obviously like yourself they probably stay pretty much hidden. I would definitely get into the vitamin A for the infection side of things are the scar tissue (you probably already do that), and stick to a good diet regardless. I know it may not seem to do much, but your body is under a lot of strain whatever the issue is and will need as much support as possible.

Like mine, i cannot cure what I have and it stays with me daily. It is also a mysterious infection I got years ago. Never recovered. I can only remotely "sometimes' control some symptoms but that is all. Though I do not have the outward manifestation on the skin as yourself, but I look like shit anyway. No consolation to you, but the infection I have is not known and I contracted it would you believe by an infected mascara!! It must have been a particular vicious bacteria that got in (after I was stupidly using water to moisten the mascara when it got dry, bad move). It started with infecting the eyes and the infection spread into the rest of my body, brain the lot. I believe this because I was going off-balance, slurring my words and was unable to read or type as fast after it, though that improved later, the rest of me did not. I can now not exercise properly, I cannot do much at all. I now remain ill and any exposure to toxins or other viruses, I'm a sitting duck for it.

So infections can be devastating and long lasting. Yours is mindboggling. But if I find out anything at all that I feel relates to what you are suffering, I will indeed contact you about it. I'm again very sorry that nobody can seem to find an answer for you but good on you for even trying and somehow hanging on.